What Rob said.
βWeβve set ourselves a task, and Iβm not talking about riding to Dublin, Iβm talking about finding a solution to MND.β
Kathy, Rob and the 40+ teams of cyclists need your support more than ever. Donate to Kathyβs fundraising page here: www.justgiving.com/page/fivehea...
This is why we do it.
So incredible to be joined by Lewis Moody, Ed Slater and our patron Jill Douglas this morning as the cyclists departed Gloucester.
The weather is not on our side today. Show the cyclists your support by donating now: www.justgiving.com/campaign/tri...
βWe canβt give them much to look forward to but we can give them hope. We are pedalling hope.β
This is why these rides are so important. When you donate to Doddieβs Triple Crown, youβre helping fund vital MND research.
Show your support and donate now: www.justgiving.com/campaign/tri...
For more information, see here π
ukmndri.org/2026/03/10/n...
In case you missed it, Raya Therapeutic Inc.'s drug smilagenin (RT1999) has been selected for the EXPERTS-ALS trial platform. Here, Professor Chris McDermott, co-lead for the EXPERTS-ALS trial, tells us more about why EXPERTS-ALS and this news is so novel and important.
ππ
A huge thank you to PureGym Leeds for opening their doors and giving our cyclists a place to rest for the night - even turning the gym floor into a bed for the teams after a long first day
A class act and brilliant partnerπ€
Day 2 - let's go! Donate here: www.justgiving.com/campaign/tri...
About yesterday...what a day! 180 miles covered and Β£1 million already raised for MND research - but thereβs still a long way to go π΄
Your support means everything this week as the teams make their way to Dublin ππ
Donate now: www.justgiving.com/campaign/tri...
Here we go! Four days, 750 miles, one mission: a world free of MND.
Doddie's Triple Crown has officially kicked off. Donate now: www.justgiving.com/campaign/tri...
Thereβs continued discussion about a perceived link between rugby and MND, but some commentary can miss key points from existing studies & data.
MND research is complex & this is no exception. That's why weβre resharing this article to provide more clarity: www.myname5doddie.co.uk/whats-on/art...
MNDβSMART have confirmed amantadine is being removed from the trial as interim analysis shows it doesn't slow MND progression.
Whilst disappointing, this allows MND-SMART to move on to test other treatments. Recruitment for tacrolimus continues
Details here: www.myname5doddie.co.uk/whats-on/art...
Itβs great to see positive news for potential new MND treatments, this week the US biotech QurAlis have provided an interim update from their early-stage clinical trial of a gene therapy.
More details here: www.myname5doddie.co.uk/whats-on/art...
Weβve been looking urgently into how we can help improve access to tofersen for people living with SOD1-MND across the UK. Too many are still prevented from accessing this life-extending treatment, and that must change.
Read what weβre doing to help fix this: www.myname5doddie.co.uk/whats-on/art...
Our Translational Research Review Committee is essential in ensuring we fund the very best MND research, and weβre excited to introduce you to our new Chair of the Committee, Professor Paul Matthews.
More details here π
www.myname5doddie.co.uk/whats-on/art...
Heβs done it! Davy Ε»yw has made history as the first person with MND to compete in snowsports at the Winter Paralympics! π
Huge congratulations from all of us here, Davy β you're a legend! π₯
We spoke to scientifyRESEARCH recently about our Catalyst Awards and why they're so important. If you're thinking of applying, make sure to get your application in by Friday 27 February at midday.
Application details here: www.myname5doddie.co.uk/research/fun...
For more details and to donate, click below π
justgiving.com/campaign/triplecrown26
βNow is a time to step up and try and help keep the awareness out there, and hopefully raise a lot of money to help research.β
Yesterday Kathy Weir spoke to BBC Reporting Scotland about her involvement in βDoddieβs Triple Crownβ - a 750-mile cycle to raise funds for MND research.
Rob Wainwright is back, leading hundreds of cyclists on a 750-mile ride for us, and this year heβs joined by Kathy Weir ππ
Kathy says itβs the first time since Doddieβs death that sheβs felt mentally ready for a challenge of this scale.
Donate now π www.justgiving.com/campaign/tri...
π¨There's only 2 weeks left to submit your application for our Catalyst Award! We want to help MND researchers bring bold, innovative and early-stage ideas to life.
Applications close 27 February at midday.
More details here π www.myname5doddie.co.uk/whats-on/art...
π£ Featured funding of the week!
π‘ Catalyst Award (motor neuron disease | UK) by @mndoddie5.bsky.social
ποΈ Deadline: Feb 27, 2026
π Location: United Kingdom
π° Amount: 100,000 GBP per one year
Β
π Learn more: www.scientifyresearch.org/grant/cataly...
Β
#UKResearch #ResearchFunding #NeuronResearch
Congratulations Emma, 515 miles is a superb effort! Thank you so much for taking part in Doddie Aid and for all of your support ππ
It is completely unacceptable that the drug, tofersen, is only being given to some of those who are eligible to receive it. Read our statement to find out more.
www.myname5doddie.co.uk/whats-on/art...
As proud funders of the UK MND Research Institute, it's great to see all they have accomplished in their first three years π
Nigel, who is living with MND, is now one of the worldβs leading disabled snooker players. Heβs taking part in Doddie Aid to raise money for MND research and show that movement - in any form - counts ππ
Read about Nigelβs story on our website here π
www.myname5doddie.co.uk/whats-on/art...
π¨ Our Catalyst Award is OPEN for applications!
Weβre looking for bold, early-stage ideas that need catalytic funding to get off the ground.
π΅ Awards are a maximum of Β£100k for up to 1 year
π‘ Applications close 27 February
For more details and to apply π
www.myname5doddie.co.uk/whats-on/art...
A special edition beer, crafted in honour of the legendary rugby player Doddie Weir, has launched across Aldi stores in Scotland beertoday.co.uk/2026/01/13/c... #beer #beernews @mndoddie5.bsky.social
Doddie Beir is now available across all Aldi Scotland stores, cheers to that! π»
Every can purchased helps takes us closer to our goal: a world free of MND. Weβre hugely grateful for all the support from Aldi and Cold Town Beer.
Thanks so much for signing up Emma, great to have you on board! Good luck with your goal of 500 miles ππ
There's been plenty of snow and ice this week, thankfully 'My Name'5 Doddie Foundation' the gritter is on the case! βοΈ
