@ellybrosius
Pets, nature, physics, health, sewing, crafts, ME/CFS/OI/LC science & symptoms, medicinal metaphors, gratefulness practice. Volunteer for Renegade Research including R50, NoVA ME/CFS, OI & Long Covid Support Group, MEAction NC.
“We’re fighting to save science, we’re fighting to protect health, and we’re fighting to defend democracy,” @cdelawalla.bsky.social, founder of @standupforscience.bsky.social, about today’s Stand Up for Science rallies. eos.org/articles/tho...
Today! Come learn about ways to fix breathing in sleep so the chronic stress response lowers.
New panelists:
Bela Chheda, MD, Inf. disease & internist
Anil Rama, MD, neurology and sleep medicine
Kishan Tarpara, DO, neurologist & sleep medicine at Vanderbilt Autonomic Dysfunction Center
Hey DORKS! Are you attending your local Saturday, March 7th National Day of Action rally?
Not sure where your nearest rally is? Visit standupforscience.net/march7 to find your local rally!!!
#March7
#standupforscience
#science
#rally
A white graphic background featuring a graphic of a blue butterfly flying in pink, orange and blue pain splashes. The title reads "Low-Dose Nicotine Project" in orange text. A QR code is in the upper left hand corner with a graphic below it of a hand with a pointer finger selecting a donate button. The words "A small donation makes a difference" in red and blue text are in the lower left hand corner. The Renegade Research logo is in the lower right hand corner.
A screenshot of the Renegade Research purple Zeffy crowdfunding page, titles "Accelerate Research and Care for ME/CFS and Long Covid," with a description of Renegade Research. Different donations boxes with varying monetary values are depicted. You'll receive a tax receipt for making a donation.
We have several projects in the works by our citizen/patient scientists!
We made a Zeffy page for The Nicotine Test (a followup to our previous Nicotine Test project), to help the budget. PI Troy Roach.
Donate to The Nicotine Test project and our other patient-led projects in this thread 🧵
Looking forward to this! See you there
An airborne virus is a virus that can infect other people through unseen particles in the air, sometimes for hours after the sick person has left the area! Masks and clean, ventilated air can reduce the risk of getting sick from airborne viruses or infecting others.
SUFS ANNOUNCES DR. JENNA NORTON AS A SPEAKER AT THE MARCH 7TH NATIONAL DAY OF ACTION WASHINGTON D.C. RALLY!
Stand Up For Science announces Jenna Norton, NIH Whistle-blower (@jenna-m-norton.bsky.social) as a speaker at the Washington D.C. National Day of Action rally on Saturday, March 7th!
Visit standupforscience.net/march7 to find a rally near you!
#science
#standupforscience
#rally
#March7DC
#March7
Saturday in D.C.
A woman with Long Covid won almost one million dollars in a lawsuit against her employer who refused to allow her work from home accommodations.
May this set a precedent.
Remote work should be accessible to all who need it.
It’s a game changer for people with disabilities.
I designed these! 💞 Please boost these posts so our very deserving and #LongCovid and #MECFS communities (and all who care about us) can stay stylish while funding education, research, awareness and advocacy ❤️🩹
The Most Elusive Color in Chemistry Might Surprise You gizmodo.com/the-most-elu...
Great events in March by @renegaderesearch.bsky.social
Times ET US
3/06 12p sleep breathing
Dr. Gold
3/13 1p hypercoagulability
Drs. Vaughn, Pretorius, Kell
3/17 TBD X Space
Chat 4 LC Awareness Week
3/27 1p neurogastroenterology
Dr. Spiritos
It's always fun when work you've been part of makes it out of the ivory tower and into the popular press!
Coverage of our paper on brainstem deformation in ME/CFS and Long COVID w/ @renegaderesearch.bsky.social.
www.iflscience.com/what-causes-...
An orange graphic with bubbles, depicting a QR code in the upper left hand corner and the Renegade Research logo in the upper right hand corner. Center right depicts a photo of Dr. Zac Spiritos, Neurogastroenterologist, a smiling white man with short brown hair wearing a black shirt. White text reads: Clinician's Roundtable, GI-NeuroImmune Axis and the role of Histamine and Mast Cells, March 27, 2026 at 1 pm ET US. Co-host #MEActionNC. Renegade-Research.org. Register: tinyurl.com/ypy99ma5
We welcome you to join us on Friday, March 27 at 1 pm ET (US) for a Clinician's Roundtable with neurogastroenterologist Dr. Zac Spiritos
He will be discussing the Gastrointestinal-Neuroimmune Axis & the Role of Histamine and Mast Cells
Registration link below with info on Dr. Spiritos' work 🧵
Graphic with list of 4 ways Medicaid changes affect everyone. 1. Greater cost burden on states 2. Increased strain on hospitals and providers 3 Rising health care costs for everyone 4. Workforce disruptions and new roles Black background with each point in a white box with red accents. Credit at bottom: Information from article in US News & World Report by Christine Comizio
As we continue to build-up our campaign regarding Medicaid work requirements, we will also be spending time helping us all understand Medicaid and the upcoming changes.
Today, we are focusing on how Medicaid changes affect everyone in the US.
health.usnews.com/wellness/art...
#Medicaid #PwME
This Sleep Dysfunction & Breathing Mechanics discussion is actually at NOON on 3/6/2026. Sorry for the mistake.
I'll get an updated graphic for the next post.
Just found out the time is 1 hour earlier at NOON on 3/6.
Glad you are excited for this. 😀
We have 2 new webinars available. The one listed above and Top 10 Lessons From 20 Years of Caregiving with Kim Moy. We also have a new document with advice from caregivers who are also sick.
#MEAction offers two free caregiver calls each month, as well as a Facebook support group.
#Caregiver
Dr. Gold, Sleep Medicine / Pulmonary specialist, will speak at next @renegaderesearch.bsky.social Clinician's Roundtable.
Sleep Dysfunction & Breathing Mechanics
Friday
March 6, 2026 at 1 pm Eastern US
Free. Invite your networks interested in sleep.
Sign up
us06web.zoom.us/webinar/regi...
So wonderful. Celebrating with you. Thank you for sharing!
Simple graphic urging you to sign the HHS letter today. Cream background with large red circle in the center. Text in center: Join over 1600 signers!! Sign letter to HHS today. Freakin' Frail and #MEaction logo at the top. Text underneath: Protect Medicaid access for people with ME/CFS and Long COVID! FreakinFrail.org
Can you sign & share our letter to HHS? freakinfrail.org
Thank you to the 1600 who have signed!
Congress has mandated that Medicaid recipients work 80 hours a month unless they can prove they are “medically frail." We want to protect Medicaid access for #pwME & #pwLC.
Great stuff. Print on demand items like this might arrive after the New Year so give or ask for Bonfire e-cards if you need something soon. Love the Renegade Chef apron!
Many #MECFS #pwME #LongCovid patients are discussing the #BornFreeProtocol by Joshua Leisk, which some have used to improve symptoms
It's complex and many clinicians/researchers wonder where to start - watch our roundtable with Leisk and @doc4care.bsky.social www.youtube.com/watch?v=4_a2...
1/2 🧵
Graphic with the StudyME logo, showing a blue interconnected globe and the text ‘Accelerate Research – Join OMF StudyME Registry,’ along with the OMF logo in the corner.
🔬Help advance #MECFS and #LongCOVID research by joining OMF’s StudyME, a free global participant registry that connects you with researchers conducting studies in these areas. Healthy volunteers are needed too!
👉 Sign up today: www.omf.ngo/studyme/
#UnitedForME #MECFSresearch #POTS #pwME #pwLC
The holidays can be tough when you’re living with a chronic illness. 💙
Join our Support Group on Dec 9 at 1:00 pm MST as we talk about what this season is like, what makes it challenging, and what helps us get through it with more ease.
🔗 https://bit.ly/4npZ4Ud #BHCSupportGroup
The image shows all OMF Directors, Maureen Hanson & Linda Tannenbaum. At the bottom, there’s a blue overlay with white text that reads: “Last Day to Triple Your Impact” Below that is the Giving Tuesday logo with the red heart-shaped “V.”
⏰ 3x Match Ends Today! Today is #GivingTuesday, marking the final hours of our Triple Giving November campaign!
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
1. It's here...... #GivingTuesday2025 ! In the next 24 hours help us raise 24K to support our mission of pioneering accessible, patient-led efforts to uncover scientific insights and improve overall quality of life for our global MECFS & Long Covid community
It's Giving Tuesday. Please support this relatively new organization that has made an impact with free educational videos, securing discounts on helpful supplements and tests, bringing together researchers, clinicians, and patients, with more.
#MEAction has a 3X Matching opportunity for this #GivingTuesday - all donations will be TRIPLED today! www.meaction.net/donate
We simply cannot continue without your support. Help us continue to be a lantern in the darkness. We need your help to raise $150,000 by December 31st.
Thank you!
#GivingTuesday
