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jo

@moerakijo

Living with Long Covid and ME Love books, libraries, histories she/her Aotearoa New Zealand #LongCovid #ME #WearAMask๐Ÿ˜ท #CovidIsNotOver #LongCovidAwareness

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24.09.2023
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Latest posts by jo @moerakijo

Image left side: Text reads, โ€œWhat wonders would emerge from the earth.โ€ Illustration depicts fiddlehead ferns spiraling in on themselves.ย 
Image right side: The image depicts a forest floor and the trunk of a redwood tree, covered in moss,ย  mushrooms, and ferns. Text reads, โ€œIf juiceless plants were encouraged to flourish?โ€

Image left side: Text reads, โ€œWhat wonders would emerge from the earth.โ€ Illustration depicts fiddlehead ferns spiraling in on themselves.ย  Image right side: The image depicts a forest floor and the trunk of a redwood tree, covered in moss,ย  mushrooms, and ferns. Text reads, โ€œIf juiceless plants were encouraged to flourish?โ€

I'm grateful for @disabilitylab.bsky.social's new venture, Disability Culture Currents, which explores the intersections of disability identity and culture through opinion, personal essay, and graphic storytelling.

Tonight, Iโ€™m feeling so very seen by Robin Larisch's comic โ€œJuiceless.โ€

07.03.2026 03:44 ๐Ÿ‘ 10 ๐Ÿ” 3 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 1
Square Emerge Australia social media graphic with a bright blue background and dark blue lower band, featuring a black-and-white headshot of a woman framed inside a stylised browser window. Large text at the top reads โ€œJoin us for Media Award Finalist,โ€ and a green rounded name label beneath the photo reads โ€œPHILIP HOOVERโ€ A small megaphone icon appears in the lower left, and the Emerge Australia logo appears in the lower right.

Square Emerge Australia social media graphic with a bright blue background and dark blue lower band, featuring a black-and-white headshot of a woman framed inside a stylised browser window. Large text at the top reads โ€œJoin us for Media Award Finalist,โ€ and a green rounded name label beneath the photo reads โ€œPHILIP HOOVERโ€ A small megaphone icon appears in the lower left, and the Emerge Australia logo appears in the lower right.

๐ŸŽ‰ We are thrilled to celebrate and recognise Philip Hoover as a finalist in the prestigious #emergeaustralia Awards for #longcovid Journalism Excellence!

Read Philip's powerful article here: zurl.co/0pGT2 ๐Ÿ“– You won't want to miss it!

Thank you, Philip! ๐Ÿ’ซ

07.03.2026 04:00 ๐Ÿ‘ 3 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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6 years on from Covid, BBC Look North highlights the ongoing impact of #LongCovid. Reporter Cathy Minton says itโ€™s personal, her husband Tom hasnโ€™t improved in a year. He still canโ€™t care for his toddler or go for walks. @franhaddock.bsky.social says new people continue to get long Covid.

07.03.2026 05:04 ๐Ÿ‘ 15 ๐Ÿ” 7 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 3

Imagine having a disease that severely limits your quality of life but no one has heard of it, you can't work or get a benefit, and any help you get at the doctor involves hours of background research and advocating for yourself.

#longcovid

05.03.2026 22:43 ๐Ÿ‘ 40 ๐Ÿ” 13 ๐Ÿ’ฌ 2 ๐Ÿ“Œ 0
Image is collage artwork of a man in sunglasses and a respirator mask holding open a black trenchcoat in a grey alley. Text is cutout "ransom note" style letters that read:

Pssst
Wanna buy some
PROTECTION

Inside thre man's trenchcoat on display like illicit goods is more text that reads: N95, KN95, redimask, Flomask, BOOSTER, Hepa filter, UV light, ventilation

Image is collage artwork of a man in sunglasses and a respirator mask holding open a black trenchcoat in a grey alley. Text is cutout "ransom note" style letters that read: Pssst Wanna buy some PROTECTION Inside thre man's trenchcoat on display like illicit goods is more text that reads: N95, KN95, redimask, Flomask, BOOSTER, Hepa filter, UV light, ventilation

New: Physics Girl is back! #LongCovid books for kids, Covid is 2x as deadly as RSV in AU + US, new research: Covid can directly infect heart tissue, places lighting up for International Long Covid Awareness Month, updated local risk levels, and more.

Cats await you: www.patreon.com/posts/covid-...

05.03.2026 23:27 ๐Ÿ‘ 28 ๐Ÿ” 9 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0

Please, if you see posts from people with Long Covid on any platform this month: Reshare them.

#longcovidawarenessmonth #longcovidawarenessday

05.03.2026 23:50 ๐Ÿ‘ 10 ๐Ÿ” 6 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
How to support your friend who lives with ME/CFS or long COVID โ€“ Emerge Australia

March is Long COVID Awareness Month.

This is an excellent guide on how to support your friend who lives with ME/CFS and Long COVID

#LongCovidAwareness

05.03.2026 22:05 ๐Ÿ‘ 3 ๐Ÿ” 2 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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PART 1 - What is Long Covid?

Professor Danny Altmann, Immunologist at Imperial College London and Trustee of Long Covid Support, explains what Long Covid is.

#LongCovid #LongCovidAwareness #ProfessorDannyAltmann #LongCovidSupport

05.03.2026 17:01 ๐Ÿ‘ 23 ๐Ÿ” 14 ๐Ÿ’ฌ 2 ๐Ÿ“Œ 0
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Covid: March 5, 2026 | Threat Model Get more from Threat Model on Patreon

It's #LongCovid Awareness Month, so mask up and dive into @violetblue.bsky.social's latest Threat Model: #Covid newsletter-- read (always free, never paywalled)/share/support (join the Patreon or send Violet a tip):
www.patreon.com/posts/152269...

#MedSky #PublicHealth

05.03.2026 17:01 ๐Ÿ‘ 10 ๐Ÿ” 6 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
POTS symptoms that are often missed: lightheadedness, insomnia, heart palpitations, air hunger, temp intolerance, sound sensitivity, adrenaline dumps, headaches, coat hanger pain, tremors, joint pain,  brain fog, vision changes, exercise intolerance, GI nausea, abnormal fatigue. Graphic by The POTS Life.

POTS symptoms that are often missed: lightheadedness, insomnia, heart palpitations, air hunger, temp intolerance, sound sensitivity, adrenaline dumps, headaches, coat hanger pain, tremors, joint pain, brain fog, vision changes, exercise intolerance, GI nausea, abnormal fatigue. Graphic by The POTS Life.

POTS symptoms that are often missed

โžก๏ธ Dysautonomia / POTS is a huge and misunderstood part of #longcovid

H/t The POTS Life on fb

05.03.2026 20:11 ๐Ÿ‘ 8 ๐Ÿ” 7 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
Black graphic with silver frame and LCSA teal logo and LC Awareness ribbon. White text says: People are being misdiagnosed.  People report having their symptoms dismissed as psychological. Doctors still aren't well educated on Long Covid.

Black graphic with silver frame and LCSA teal logo and LC Awareness ribbon. White text says: People are being misdiagnosed. People report having their symptoms dismissed as psychological. Doctors still aren't well educated on Long Covid.

#longcovid #longcovidawarenessday #6years

05.03.2026 20:14 ๐Ÿ‘ 40 ๐Ÿ” 11 ๐Ÿ’ฌ 2 ๐Ÿ“Œ 2
Dark, distressed graphic styled like a cracked road or hazard sign in teal, black and white. A large warning symbol is on the left. Large, bold, black weathered lettering reads โ€œSPREAD AWARENESS NOT COVID.โ€ Underneath is Long Covid SOS logo. The background is textured with fracture lines and a gritty, apocalyptic feel, conveying urgency and a strong public health message about Long Covid awareness. Text at the bottom reads Long Covid Awareness.

Dark, distressed graphic styled like a cracked road or hazard sign in teal, black and white. A large warning symbol is on the left. Large, bold, black weathered lettering reads โ€œSPREAD AWARENESS NOT COVID.โ€ Underneath is Long Covid SOS logo. The background is textured with fracture lines and a gritty, apocalyptic feel, conveying urgency and a strong public health message about Long Covid awareness. Text at the bottom reads Long Covid Awareness.

Do we really want to continue down this path of disease spreading unchecked?
Millions of us are left to navigate life-altering illness without research, recognition or rights.

This isnโ€™t a dystopian film
This is year 6 of Covid

#Covid infections are still causing #LongCovid
#LongCovidAwareness

04.03.2026 08:57 ๐Ÿ‘ 17 ๐Ÿ” 11 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 1
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Sunrise, Monday, 5 March, from Okitu Beach, Aotearoa / New Zealand.

High tide and high surf have kicked up the sea foam, which makes it even more fun to watch.

Ata mฤrie / Good Morning โ˜€๏ธ

04.03.2026 18:25 ๐Ÿ‘ 61 ๐Ÿ” 9 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 1
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Global sea levels have been underestimated due to poor modelling, research suggests Analysis shows average levels are 30cm higher than thought, and up to 150cm in south-east Asia and Indo-Pacific

New sea level rise study reveals ocean levels are higher than previously believed and following a relative sea level rise of 1 metre, (increasingly likely this century) more coastal areas and millions more people than previously believed will be affected:

www.theguardian.com/environment/...

04.03.2026 20:23 ๐Ÿ‘ 16 ๐Ÿ” 9 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 2

Dr @binitakane.bsky.social explains how a theory that #MECFS is caused by deconditioning and a fear of exercise permeated medicine and framed the illness as psychological. This led to the patients being neglected, gaslit, and some would say abused. Causing huge trauma for the community.

04.03.2026 19:01 ๐Ÿ‘ 43 ๐Ÿ” 20 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 2
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The Brighter Future What would this country look like in a decade or so if we actually did what so desperately needs doing?

Emily Writes @emilywrites.co.nz and I are starting a new series called The Brighter Future, where writers and artists and poets and so on imagine what a better future might look like, if we actually did some of the needful that's right in front of us: www.emilywrites.co.nz/the-brighter...

04.03.2026 05:41 ๐Ÿ‘ 61 ๐Ÿ” 24 ๐Ÿ’ฌ 4 ๐Ÿ“Œ 3
White graphic with black and pink text. Top left: โ€œwhn.globalโ€. Top right: โ€œLong COVID Awareness Monthโ€. Main text: โ€œEvery COVID infection adds risk, not protection.โ€ The word โ€œriskโ€ is in bright pink; the rest is in black. Below in bright pink: โ€œEach infection increases the risk of Long COVID.โ€ Bottom text: โ€œWorld Health Network - Science for a safer, healthier world.โ€

White graphic with black and pink text. Top left: โ€œwhn.globalโ€. Top right: โ€œLong COVID Awareness Monthโ€. Main text: โ€œEvery COVID infection adds risk, not protection.โ€ The word โ€œriskโ€ is in bright pink; the rest is in black. Below in bright pink: โ€œEach infection increases the risk of Long COVID.โ€ Bottom text: โ€œWorld Health Network - Science for a safer, healthier world.โ€

Every COVID infection adds risk, not protection. The more times someone is infected, the higher their risk of developing Long COVID.

Reducing infections is one of the most important ways to protect long-term health. The Five Pillars of Protection help lower risk by layering prevention strategies:

04.03.2026 19:51 ๐Ÿ‘ 109 ๐Ÿ” 59 ๐Ÿ’ฌ 3 ๐Ÿ“Œ 1

Me too

04.03.2026 06:39 ๐Ÿ‘ 2 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

Given it's Long Covid Awareness month, it would be great to add that each infection and reinfection increases your risk of long term effects.

04.03.2026 05:16 ๐Ÿ‘ 38 ๐Ÿ” 21 ๐Ÿ’ฌ 2 ๐Ÿ“Œ 0
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Covid hospitalisations climb as New Zealand enters new wave Thereโ€™s been an increase in hospitalisations and in wastewater detections, and itโ€™s expected to last another month or two.

Still absolutely adamant you do not want Covid. Long Covid is still a crisis and is the worst health impact Iโ€™ve ever personally experienced.
Our health system is much worse than it was in 2020 - you do not want to navigate it with Covid impacts.

Book a booster here: app.bookmyvaccine.health.nz
๐Ÿ‘‡

04.03.2026 06:16 ๐Ÿ‘ 85 ๐Ÿ” 34 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 2

This story needs a correction. It is absolutely true that admissions are the highest since October, but 184 admissions is the last 4 weeks (to 16 Feb), not last week (to 16 Feb). 184 in a week is 2022 levels. This would be much easier to keep track of if we had the data rather than a Power BI report

04.03.2026 03:37 ๐Ÿ‘ 49 ๐Ÿ” 24 ๐Ÿ’ฌ 4 ๐Ÿ“Œ 0
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TVNZ board chair rang senior minister to discuss negative coverage Justice minister won't reveal exactly what the public broadcaster's board chair said, while police minister doubles down on concerns about bias.

โ€œA senior Cabinet minister has confirmed the board chair of public broadcaster TVNZ discussed concerns about its journalistsโ€™ reporting of crime statistics, in a private call days before the outlet ran a follow-up story to outline the Governmentโ€™s successes.โ€
#nzpol

04.03.2026 03:00 ๐Ÿ‘ 40 ๐Ÿ” 30 ๐Ÿ’ฌ 5 ๐Ÿ“Œ 4

Some items to consider if your org values inclusion:

02.03.2026 22:59 ๐Ÿ‘ 29 ๐Ÿ” 13 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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First look inside the new Wellington Library Sewing machines, 3D printers and a taniwha slide sit amongst the hundreds of thousands of books inside the fresh, five storey library.

First look inside the new Wellington Library

Te Matapihi ki te Ao Nui

03.03.2026 23:51 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
Polaroid style headshots of podcast speakers, on a light blue background with the Emerge Australia Logo top left on mid blue banner. "Listen In: Imagine Podcast" Speakers  L-R: Prof David Putrino, Leonie Cavill, Assoc Prof Bernard Shiu, Kit McMahon, Dr Michelle Tavoletti, Dr Emma Tippett, Henry Barker.

Polaroid style headshots of podcast speakers, on a light blue background with the Emerge Australia Logo top left on mid blue banner. "Listen In: Imagine Podcast" Speakers L-R: Prof David Putrino, Leonie Cavill, Assoc Prof Bernard Shiu, Kit McMahon, Dr Michelle Tavoletti, Dr Emma Tippett, Henry Barker.

๐ŸŽ™๏ธ Announcing #EmergeAustraliaโ€™s 2026 #LongCOVID Awareness Week Podcast Season!

๐Ÿ“… Release Date: Starting 9 March 2026 ๐ŸŽง Available on: Spotify, Apple Music, Emerge Australia website and all good podcast platforms.

#imaginepodcast

03.03.2026 21:00 ๐Ÿ‘ 5 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
Black graphic with LCSA logo and LC Awareness ribbon. White writing says Children are still unwell. Long Covid can affect people of all ages. 20% of children and young people are having persistent health symptoms following Covid 19 infection, according to a 2025 Otago study.  This causes them to miss school and social time.

Black graphic with LCSA logo and LC Awareness ribbon. White writing says Children are still unwell. Long Covid can affect people of all ages. 20% of children and young people are having persistent health symptoms following Covid 19 infection, according to a 2025 Otago study. This causes them to miss school and social time.

#longcovid #longcovidkids #lcawarenessday

03.03.2026 20:57 ๐Ÿ‘ 7 ๐Ÿ” 4 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
Black-background WHN graphic with white and pink text. At the top is the logo text โ€œwhn.globalโ€ with a pink dot. Large central headline: โ€œCOVID isnโ€™t โ€˜just a cold.โ€™โ€ Below that: โ€œIt can affect the brain, heart, and immune system, even months later.โ€ In bright pink near the lower middle: โ€œPrevention matters.โ€ At the bottom: โ€œWorld Health Network - Science for a safer, healthier world.โ€

Black-background WHN graphic with white and pink text. At the top is the logo text โ€œwhn.globalโ€ with a pink dot. Large central headline: โ€œCOVID isnโ€™t โ€˜just a cold.โ€™โ€ Below that: โ€œIt can affect the brain, heart, and immune system, even months later.โ€ In bright pink near the lower middle: โ€œPrevention matters.โ€ At the bottom: โ€œWorld Health Network - Science for a safer, healthier world.โ€

COVID is not โ€œjust a cold.โ€ Even mild or asymptomatic infections can cause lasting health effects, damaging blood vessels and organs, affecting the brain, and weakening the immune system.

03.03.2026 12:15 ๐Ÿ‘ 104 ๐Ÿ” 57 ๐Ÿ’ฌ 3 ๐Ÿ“Œ 2
Free selfโ€‘paced education for ME/CFS, Long COVID and related conditions, from Bateman Horne Center & Emerge Australia

Free selfโ€‘paced education for ME/CFS, Long COVID and related conditions, from Bateman Horne Center & Emerge Australia

Through our ongoing partnership with @emergeaustralia.bsky.social, self-paced modules on PEM, pacing, orthostatic intolerance & sleep remain available for those living with ME/CFS & Long COVID.

Accessible. Practical. Built with lived experience + clinical insight.
๐Ÿ”—https://emerge.org.au/lea-ea-bhc/

03.03.2026 16:28 ๐Ÿ‘ 15 ๐Ÿ” 5 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
Graphic with a dark textured background and teal text reading: โ€œLONG COVID. You can look โ€˜fineโ€™ and still be very unwell. Fund Long Covid research. Long Covid Awareness Month.โ€ The Long Covid SOS logo appears at the bottom.

Graphic with a dark textured background and teal text reading: โ€œLONG COVID. You can look โ€˜fineโ€™ and still be very unwell. Fund Long Covid research. Long Covid Awareness Month.โ€ The Long Covid SOS logo appears at the bottom.

You can look โ€œfineโ€ and still be very unwell

We are still waiting for answers
Still waiting for treatment
Still waiting to be believed

Fund Long Covid research.
We canโ€™t wait any longer.

#longcovidawarenessmonth #fundlongcovidresearch #wecantwait #LongCovid

03.03.2026 16:27 ๐Ÿ‘ 24 ๐Ÿ” 16 ๐Ÿ’ฌ 2 ๐Ÿ“Œ 1
Teal background graphic with white text. Top left: โ€œwhn.global.โ€ Top right: โ€œLong COVID Awareness Month.โ€ Large centered headline: โ€œLong COVID isnโ€™t rare.โ€ Below in smaller bold text: โ€œPer the WHO, approximately 15 in 100 people still have symptoms at 12 months after contracting COVID-19.โ€ Bottom line: โ€œWorld Health Network - Science for a safer, healthier world.โ€

Teal background graphic with white text. Top left: โ€œwhn.global.โ€ Top right: โ€œLong COVID Awareness Month.โ€ Large centered headline: โ€œLong COVID isnโ€™t rare.โ€ Below in smaller bold text: โ€œPer the WHO, approximately 15 in 100 people still have symptoms at 12 months after contracting COVID-19.โ€ Bottom line: โ€œWorld Health Network - Science for a safer, healthier world.โ€

Long COVID isnโ€™t rare.

According to the WHO, about 15 in 100 people still have symptoms 12 months after COVID-19 infection.

Prevent infection. Prevent reinfection. Protect your health.

#LongCOVID #LongCOVIDAwarenessMonth #PublicHealth #CleanAir

03.03.2026 18:36 ๐Ÿ‘ 112 ๐Ÿ” 65 ๐Ÿ’ฌ 3 ๐Ÿ“Œ 5