I just want to wake up one morning and actually feel rested. Like my body actually did what sleep is supposed to do. Like I could get up and exist without pushing through exhaustion before the day even starts. #longcovid #mecfs
How did you spend Long Covid Awareness Day, did you know it was happening?
As folk with energy limiting illnesses we're all impacted by how society & the medical & research fields treat each other's illnesses 💙
We're stronger together!
#mecfs #longcovid #pots #chronicillness
@batemanhornecenter.bsky.social
We're very happy to see you guys here on Bluesky!
Yikes, what a week over in this part of me/cfs land!
To make up for it, let's do two questions!
What's your favorite thing about using the #visbleapp?
What do you wish they'd add?
Selfcare is core to #pacing & it's always valuable to hear from people living it rather than wearing a lab coat and preaching it. We all have our own paths, but we can also always learn from each other's experiences 💙
Did you know that Visible has a blog which covers new research around energy limiting conditions & that's available through the app via the community tab?
If so, how do you like it and how do you feel about the use of ads?
#visbleapp
[Updated] "My paternal #grandmother was a professional seamstress & would hand sew..dresses for us when we were children.. #embroidery work can be lots of fun, & is also a #meditative experience as you focus and repeat the stitches": https://buff.ly/3T0DfxS #surgery #MondayBlogs
Has anyone gotten the 2.0 armband &, if so, do you think it was worth it?
Questions are probably going to be weekly now, but with all the usual caveats we're all used to giving.
Please feel free to bump old posts, tag us when you want to interact with folk who truly get it, or when you're having a good moment/hour/day!
I love that! Let me find the password and I'll message you when I do 💖
@belasco.bsky.social?
Sooooooo I keep hoping I'll have the spoons to do the daily questions etc. But I'm so tired! Does anyone want to take over this account to do it? #visibleapp #visibleappchat
Q6 what are some quiet activities that help you when you need to reduce your pace points for the day? #visibleappchat #visibleapp
Q5 do you have ideas for daily-ish questions for #visibleappchat? What do you think of people volunteering for a certain day of the week (or other schedule) to come up with one? #visibleapp
Q4 how did you hear about #visibleapp? What made you decide to try it, if you have?
#visibleappchat #visibleapp #pacing #mecfs #longcovid #pots #spoonie #chronicillness #chroniclife
Q3 when your heart rate is up, is there anything that helps bring it down quickly? Or at least reduces it a bit?
#visibleappchat #visibleapp #mecfs #longcovid #pots #spoonie #chronicillness #chroniclife
Many new friends here (thanks @maggietokudahall.bsky.social ❤️) so here's an intro!
We are an alternative to Amazon-owned Audible that shares all profits with indie bookshops across the globe. Plus:
❤️Employee-owned Social Purpose Corporation
🚫Booksellers drive our recommendations—not algos!
LA WILDFIRES: EMERGENCY GRANTS. Donate $15 or more to the We Need Diverse Books Emergency Grant Fund and receive a free Libro.fm audiobook credit.
@weneeddiversebooks.bsky.social is providing emergency grants to BIPOC, LGBTQIA+, &/or disabled authors, illustrators, educators, & more in LA impacted by the wildfires ❤️
From now through February, donate $15 or more to their Emergency Grants and you’ll receive a free Libro.fm audiobook credit.
We're a registered Social Purpose Corporation, but what does that mean?
We pursue social goals, even if those goals conflict with our financial interests. This is because we deeply care about supporting indie bookshops & local communities.
We hope you'll join us for your audiobook listening ❤️
An animated heart wears headphones and is blushing. Reads: For the love of audiobooks reading challenge: Read 10+ hours of audiobooks between February 5-14 and you’ll earn a free Libro.fm audiobook credit!
How the challenge works: Read 10+ hours on audio: While you can use any audiobook listening app, we love Libro.fm (hi!) and libraries. Submit a form by Feb 19: Head to the link in bio to access the form. Make sure to submit by 5 PM PT on February 19. The honor system: You’ll be asked to cross your heart that the information is true and correct. Earn your credit: Credits will be emailed by March 1 from hello@libro.fm.
Need audiobooks to get started? New monthly members that sign up with code FORTHELOVE will get three audiobooks for the price of one, all in support of your bookshop.
For the love of audiobooks...it's time for a reading challenge! 😍
Between now and 2/15, if you read 10+ hours on audio, you'll earn a free Libro.fm audiobook credit! Plus, new members that sign up w/ code FORTHELOVE will get 3 audiobook credits for the price of 1.
Learn more: blog.libro.fm/love/
Light-skinned Indigenous woman in a dark brown winter coat, blue framed glasses and a reflex N95 mask. I have a surprise and somewhat pleasant look on my face. Behind me are hospital signs. I was happy that my Aranet4 was showing excellent indoor air quality, and that I could get a hospital wheelchair easily since I can’t walk more than five minutes.
A1 Tansi! Hi! I’m a disabled Indigenous keynote speaker/singer. I’m also a trauma-informed personal mentor and virtual event host for Covid-conscious women. 🔗 in my bio. Been using Visible app daily since April 2024 and love it. I’m a 4/5 today after a crash yesterday. Thx for this #VisibleAppChat!
Q2 has anything surprised you that can raise your heart rate? What sorts of things do, if you want to share?
#visibleappchat #visibleapp #mecfs #longcovid #pots #spoonie #chronicillness #chroniclife
Q1 introduce yourself however you feel comfortable (no dx or medical info needed, this is a public forum, unless you want to). Bonus points for pet pics!
#visibleappchat #visibleapp #mecfs #longcovid #pots #spoonie #chroniclife #chronicillness
Using #visibleapp to pace with #mecfs / #longcovid? Join #visibleappchat for daily-ish questions and conversation. #spoonie #chroniclife #chronicillness #pots
I probably should have used #visibleapp too. 😅 #visibleappchat
You can also just click on this account profile to see questions. That's why I made a separate one from my person one, so they won't get so lost #visibleappchat
You can search #visibleappchat and Q1, for instance to find it. It will help conversation if responses use the tag and A1, for instance, for answers, or reply to the original question post. If possible, but also I imagine we are all pretty tired! So don't worry about it if it's too much/forget
#visibleappchat will be a daily/ most days question that you can join at your leisure. The format will be the tag and the question number, like Q1.
