Jane Green MBE FCCT

I’m very proud that @SEDSConnective
will soon publish a new survey of a project I’ve been associated in for the past 15 months.

Because neurodivergent people are embodied individuals.
And policy needs to start recognising that.
#Hypermobility
#EDS #neurodivergence

This is an important issue about disability right and autonomy. One of our members Lucinda in the @BBC news today.
👉 Read here: www.bbc.com/news/article...

New East Grinstead support Meeting! This Fri 27th Feb | 1:30pm - 3pm | The Old Dunning's Mill, E Grinstead, RH19 4AT
See details here: https://www.sedsconnective.org/event-details/east-grinstead-support-meeting

Delighted our Chair @jgjanegreenmbe.bsky.social is quoted in this article which was published ahead of the white paper Every child Achieving and Thriving 🙏
#SEND #Education

www.learningdisabilitytoday.co.uk/news/send-sc...

Hope it helps

Mcas can lead to this for sure in connection with other issues

Alice in wonderland syndrome: Down the rabbit hole of VigiBase® - PubMed Alice in Wonderland Syndrome (AIWS) is a neurological disorder involving visual and perceptual distortions, such as altered size perception, sensations of levitation, and time distortion. Initially linked to migraines and epileptic seizures, AIWS has been associated later with tumors, infections, an …

#AIW might be interesting?

pubmed.ncbi.nlm.nih.gov/41448101/

Seems very familiar symptoms our members have. Luckily Mcas is flare condition but you need to know more about BodyBrain interactions too @sedsconnective

Thanks @twillierod.bsky.social !

Bipolar Disorder, Hypermobility and Neurodivergence: The Missing Connection New research reveals surprising links between bipolar disorder, joint hypermobility, autism and ADHD. Learn why integrated healthcare matters.

If you have bipolar disorder, have you ever been assessed for autism or ADHD? www.sedsconnective.org/post/bipolar...

#ADHD SEDSConnective event London. Charity partner seed talks and a wonderful, very busy day!
Thanks to volunteers @jgjanegreenmbe.bsky.social Bonnie Southgate, Kelly and Lucy

Orthics And The Hypermobile Foot!
Join us for an online talk with Joshua Oguntade and our chair @jgjanegreenmbe.bsky.social
Date: Wednesday 4th February | 7:30 pm to 8:10pm GMT | Online
Register here: www.sedsconnective.org/event-detail...

Autistic ADHD or have children of any age with symptomatic hypermobility often means parents/carers are accused of bad parenting

I have known Josh for some years now, our advisers become our friends :)

New survey on the relationship between sexual health behaviour, mental wellbeing with 18-25 neurodivergent lgbtq+ people in UK
Scan survey or email to take part.
#neurodivergence

Yes and being disabled and a carer is hard, why I founded @sedsconnective.org

Dr Jessica Eccles bendybrain Youtube on brainbody neurodivergence/hypermobility connections ? out now .... find it here: https://www.youtube.com/watch?v=Pr2ZFJOYPYw

SNAP CRACKLE POP!
Have you ever noticed those cracking, snapping, and popping sounds in your joints? That's what we call crepitus. Read more here: https://www.sedsconnective.org/post/snap-crackle-pop

Thank you!

I’m having a very long awaited break with eldest
Malaga Pompidou centre & botanic gardens so far

@sedsconnective.org

History will be on our side After 8 years by SEDSConnective, many more by me and even more by leading researchers, we now need policy makers to connect and make the change or maybe those with… | J... History will be on our side After 8 years by SEDSConnective, many more by me and even more by leading researchers, we now need policy makers to connect and make the change or maybe those with even...

www.linkedin.com/posts/janegr...

Did the interoception Scientific American get posted ?

Thanks!

People chatting with bird sign

Have you been disbelieved or been told its diagnoses are all over blown or too trendy ?
Do you get lots of infections, #pots Dysautonomia gastro issues
Watch - comment subscribe we need to show hiw it matters now and for future generations
Neurodivergence hypermobility youtu.be/Pr2ZFJOYPYw?...

youtube.com/shorts/txdRc...
all things neurodivergent and hypermobility
illness injury connective tissues
with Bendybrain youtube episode 3!

Our Chair @jgjanegreenmbe.bsky.social at Westminster for the #IDPWD Celebration, 10th December. With speech by Rt. Hon Sir Stephen Timms MP Minister for Social Security and Disability, contributions by Co-Chair BSL Advisory Board Craig Crowley and Disability Charities Consortium co-chairs following!

Understanding the relationship between autism and hypermobility | Precision Medicine Doctoral Training Programme | Usher Institute Precision Medicine Project - Understanding the relationship between autism and hypermobility

We are recruiting a fully-funded 3.5yr PhD student to examine the potential genetic relationships between autism and hypermobility. Full details of the project and how to apply here ⬇️

usher.ed.ac.uk/precision-me...

Deadline Jan 12th! Within the Precision Medicine DTC at Edinburgh.

We hope so at @sedsconnective.org

Sneak Peek Episode 3 #hypermobility #neurodivergence #support YouTube video by BendyBrain: Dr Jessica Eccles

A sneak preview clip of our charity, Dr Eccles leading neuroscience researcher’s working daily life and chit chat with key others on YouTube! Pls share

Here with our chair/founder Jane Green MBE youtu.be/likmxzPpozw

@jgjanegreenmbe.bsky.social and @bendybrain.bsky.social