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CrunchME

@crunchme

CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid. πŸ“ https://crunchme.org/

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21.11.2024
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Latest posts by CrunchME @crunchme

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06.05.2025 10:17 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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This week we are highlighting 7 different clinical trials across Long COVID, ME/CFS and POTS that are ✨ recruiting participants ✨

These are happening across USA πŸ‡ΊπŸ‡Έ, UK πŸ‡¬πŸ‡§ and Australia πŸ‡¦πŸ‡Ί

If you'd like to find out more, the links are here πŸ‘‡

crunchme.notion.site/clinical-tri...

06.05.2025 10:16 πŸ‘ 17 πŸ” 17 πŸ’¬ 2 πŸ“Œ 1
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07.04.2025 11:45 πŸ‘ 4 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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As our Clinical Trials database continues to grow, we will be spotlighting some of the treatments being tested around the world, for Long COVID, ME/CFS & other IACCs πŸ’Š

Thank you to @mildtin.bsky.social, our clinical trials lead, for putting these together!

A visual thread 🧡

#MECFS #LongCovid

07.04.2025 11:44 πŸ‘ 14 πŸ” 6 πŸ’¬ 2 πŸ“Œ 0
Graph showing increase

Graph showing increase

ME/CFS Publications have steadily increased for a while.

Despite this, ME is still one of if not the most underfunded common disabling illness on earth.

Source: @crunchme.bsky.social

#MEAwarenessHour

25.12.2024 20:26 πŸ‘ 111 πŸ” 32 πŸ’¬ 1 πŸ“Œ 1

Currently writing a fundraising pitch for CrunchME πŸ˜€πŸ’™

@crunchme.bsky.social

#MECFS #LongCovid #IACC

30.11.2024 17:48 πŸ‘ 16 πŸ” 2 πŸ’¬ 0 πŸ“Œ 1

Absolutely delighted to welcome Elisa @mildtin.bsky.social to the volunteer team @ CrunchME πŸ€πŸ™Œ

#MECFS #LongCovid #IACC

24.11.2024 23:49 πŸ‘ 12 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

We've just added a new table to CrunchME, showing government funding and policy announcements πŸ›οΈ

(Follow @crunchme.bsky.social if you wanna)

Hopefully useful knowledge for helping to pressure governments slipping behind into action!

You can check it out here πŸ‘‡

crunchme.notion.site/1462a60c4996...

23.11.2024 13:10 πŸ‘ 12 πŸ” 4 πŸ’¬ 1 πŸ“Œ 0

We are now on Bluesky! πŸ¦‹

CrunchME is a patient-led project mapping the scientific, tech, advocacy and medical ecosystem around solving #MECFS, #LongCovid and other IACCs πŸ’™

21.11.2024 16:27 πŸ‘ 29 πŸ” 10 πŸ’¬ 2 πŸ“Œ 1