Amanda Drury

“If we ask, we must act”: co-designing the implementation of the EQ-5D-Y-5L as a Paediatric Patient Reported Outcome Measure in Routine hospital Outpatient Care for Kids to meaningfully impact clinica... Purpose To co-design use of the EQ-5D-Y-5L, a generic Paediatric Patient Reported Outcome Measure (P-PROM), in Routine Outpatient Care for Kids (ROCK), maximising its impact on patient-clinician visit...

Perspectives of service providers, caregivers and adolescent patients in this study suggest that if patients are asked to complete PROMs, there is a duty of care for this information to be reviewed and acted upon:
link.springer.com/article/10.1...

#HRQL #PatientCentered #EQ5D #FeedbackSystems

A great kick off to the EU Cancer Mission Conference focusing on health literacy and health-promoting habits. The discussion has focused on co-design, community leadership, positive messaging and responsible influencing in social media campaigns. #EUMissions #MissionCancer

ANPs or AMPs in Ireland www.tcd.ie/tcphi/resear...

@sjhdon.bsky.social @sjhdublin.bsky.social @hselive.bsky.social @bmcbrien.bsky.social @druryal.bsky.social

Are you delivering #PPI training? If you’d like to evaluate the effectiveness and impact of your training, the PPI Ignite Network WP1 team has developed a tool for evaluating PPI training, with survey bank, facilitator's guide and templates. You can find it here: ppinetwork.ie/resource/eva...

Hello!!!

My first post! I'm an associate professor in nursing with interests in cancer survivorship, patient-reported outcomes, quality of life, and mixed methods research. Look forward to connecting with like-minded folks! #CancerSurvivorship #PROMS #cancernurse #oncologynursing #cancercare