ALK Positive Lung Cancer UK's Avatar

ALK Positive Lung Cancer UK

@alkpositiveuk

πŸ’™ Supporting, empowering & advocating for those with ALK+ lung cancer in the UK 🧬 Advocacy | Awareness | Trusted resources 🫢 NICE-recognised, improving lives, driving change, and amplifying our community voices linktr.ee/alkpositivelungcanceruk

739
Followers
727
Following
278
Posts
20.11.2024
Joined
Posts Following

Latest posts by ALK Positive Lung Cancer UK @alkpositiveuk

Post image

Repeat chest infections can be an overlooked sign of #lungcancer.

Prof Robert Rintoul says slow clearing or repeat chest infections, should raise concern.

Finding lung cancer early is key to better outcomes, so awareness of less obvious symptoms is key. #LCSM

www.telegraph.co.uk/health-fitne...

08.03.2026 21:34 πŸ‘ 5 πŸ” 2 πŸ’¬ 2 πŸ“Œ 0
photo of the 1970 march showing a crowd of women and the banner β€˜women of the world unite’

photo of the 1970 march showing a crowd of women and the banner β€˜women of the world unite’

Giving thanks for all amazing and inspiring women around the world on International Women’s Day

We will never give up fighting for equality, for what is just and fair, and for each other πŸ’ͺ

#WomenOfTheWorldUnite
#WomenInScience πŸ§ͺ

08.03.2025 11:14 πŸ‘ 150 πŸ” 36 πŸ’¬ 0 πŸ“Œ 1
Preview
International Women’s Day Highlights 2026: Honoring Women in Oncology - OncoDaily International Women’s Day Highlights 2026: Honoring Women in Oncology / AACR, Alison Lang, Anita Akins, Anna Dumont, Annastasia (Aja) Hyde, cancer, Christie

International Women’s Day Highlights 2026: Honoring Women in Oncology

@erikahamilton9.bsky.social @elinardou.bsky.social @latinamd.bsky.social @lilliansiu.bsky.social

oncodaily.com/not-to-miss/...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #IWD2026

08.03.2026 20:55 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Video thumbnail

Lung cancer is rising in young, non-smoking women yet many face misdiagnosis & delays, because it isn’t expected in people their age.

This #InternationalWomensDay, let’s make #lungcancer in young, non-smoking women part of the conversation.

πŸ™ to our ALK+ UK commmunity for sharing their stories.

08.03.2026 10:44 πŸ‘ 6 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Post image

Call for Expressions of Interest for Clinical Oncology and Surgery Representation on the BTOG Steering Committee:

Learn more: https://www.btog.org/join-the-btog-steering-committee/

Deadline for submission of expression of interest is Monday 9th March 2026.

#LCSM #LungCancer

07.03.2026 17:00 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Post image

At @btog.bsky.social 2026 clinicians shared real world experience managing side effects from lorlatinib in ALK+ #lungcancer.

As people stay on targeted therapy for years, practical strategies like dose adjustment and careful monitoring are becoming central to long term care. #LCSM

06.03.2026 20:39 πŸ‘ 4 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Preview
State of the Nation 2026: progress in earlier diagnosis and the challenge of rising demand | UKLCC In February 2026, the National Lung Cancer Audit (NLCA) published its latest State of the Nation report, which provides a picture of how lung cancer care is delivered across England and Wales. The…

πŸš€New NLCA blog:Β State of the Nation 2026: progress in earlier diagnosis and the challenge of rising demand
By Dr Lauren Dixon, NLCA Clinical Fellow

πŸ“ŒMore people diagnosed earlier
πŸ“ŒGrowing demand and pressure on services

Read the blog hereπŸ‘‰ buff.ly/3qrBYu1

@btog.bsky.social @lcnuk.bsky.social

05.03.2026 09:32 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Post image

Day 2 at #BTOG26.

ALK Positive UK is in Edinburgh alongside EGFR+ UK & the Ruth Strauss Foundation.

A packed programme of #lungcancer science, trials & debate plus an important chance for charities to connect directly with the clinicians & researchers influencing care.

#LCSM

05.03.2026 21:48 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Post image

NEW PAPER: Our decision-modelling study showed specialist palliative care in England (home and hospital) saved Β£817M, freed 1.5M hospital bed days, helped 20,000+ people die outside hospital and improved quality of life. #palliativecare #palliativemedicine

05.03.2026 19:51 πŸ‘ 5 πŸ” 4 πŸ’¬ 1 πŸ“Œ 0
Post image Post image

At @btog.bsky.social 2026 we’re sharing an evaluation of the See Through the Symptoms #lungcancer awareness campaign.

It was developed by jointly by ALK+ UK, EGFR+ UK & the Ruth Strauss Foundation to encourage HCPs to consider lung cancer in people with persistent or unexplained symptoms. #LCSM

04.03.2026 21:56 πŸ‘ 5 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Preview
Creating The Conditions Where Care Can Thrive: Four Actions For Clinical Leaders | The King's Fund High responsibility and low control can lead to burnout. Sharon Nash shares reflections from clinical leaders on steps organisations can take to prioritise the health and wellbeing of staff.

Burnout isn’t about individual resilience. It’s about the conditions we create.

Our latest blog shares four practical actions from clinical leaders on how to rebuild control, trust and wellbeing across health and care.

Read the blog and join the movement – https://bit.ly/40zYhpM

01.03.2026 15:03 πŸ‘ 2 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
Preview
The Crick to co-lead the Equality, Diversity and Inclusion in Science and Health (EDIS) group The Crick will co-lead the Equality, Diversity and Inclusion in Science and Health (EDIS) group with hosts, the British Science Association, supported by a Β£10 million grant over seven years from Well...

We’re excited to be working with @britsciassoc.bsky.social to co-lead EDIS, a coalition working to improve equality, diversity and inclusion in science and health research.

Find out more about the plans for EDIS's next chapter ‡️ www.crick.ac.uk/news/2026-03...

04.03.2026 13:40 πŸ‘ 14 πŸ” 6 πŸ’¬ 0 πŸ“Œ 0
Post image

Hear more about the proposals for a bold and ambitious new approach to UK pharmacy professional leadership and have your say. Join one of the webinars from The UK Pharmacy Professional Leadership Advisory Board.

www.eventbrite.com/cc/next-step...

04.03.2026 08:16 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Post image

We’ll be in Edinburgh this week for #BTOG26. Debra Montague, our Chair, will be there following the latest discussions in thoracic oncology.

For people living with ALK+ #lungcancer, the conversation around brain mets, resistance, treatment sequencing & access to next-line options is critical. #LCSM

02.03.2026 22:56 πŸ‘ 4 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Post image

ALK+ #lungcancer often means staying on a TKI for years. If radiotherapy is needed for brain metastases or a growing spot, the big question is whether to continue the drug.

New ESMO–ESTRO guidance says combining them can increase side effects. #LCSM

www.sciencedirect.com/science/arti...

01.03.2026 19:20 πŸ‘ 7 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Post image Post image Post image Post image

3.5M people in the UK are living with a rare disease. ALK+ #lungcancer is one of them.

On #RareDiseaseDay, we stand with everyone living with ALK+ & with the wider rare disease community calling for earlier diagnosis, equitable access to testing & treatment, & consistent specialist care. #LCSM

28.02.2026 09:25 πŸ‘ 6 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Post image

1 in 10 adults in the UK have been affected by misinformation.

That rises to 2 in 10 for black and ethnic minority communities.

In our new video in partnership with
@england.nhs.uk, Dr Sylvia Kama-Kieghe talks about what you can do to find trusted health information.

youtube.com/shorts/A9b6O...

25.02.2026 09:16 πŸ‘ 3 πŸ” 6 πŸ’¬ 0 πŸ“Œ 1
A group of people engaged in conversation at a conference event. Visible in the background are banners featuring the logos of Bath Spa University and other sponsors. The setting is a modern indoor venue with large windows.

A group of people engaged in conversation at a conference event. Visible in the background are banners featuring the logos of Bath Spa University and other sponsors. The setting is a modern indoor venue with large windows.

Looking to connect with the people shaping health and care?
Find out more about our partnership packages and wider opportunities, contact partnerships@kingsfund.org.uk or book a call with our Corporate Sponsorships Manager, Donna Maher. https://bit.ly/4czt8Ki

26.02.2026 16:48 πŸ‘ 3 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Post image

When brain metastases are present at diagnosis in ALK+ #lungcancer, 1st treatment choice is critical.

New meta-analysis of 8 RCTs shows next-gen ALK TKIs, especially lorlatinib, give stronger control in the brain. In the UK lorlatinib is now first line.

www.tandfonline.com/doi/full/10.... #LCSM

24.02.2026 15:48 πŸ‘ 5 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Post image

The Guardian reports concerns about AI health summaries appearing at the top of search results without clear safety warnings.

When someone searches β€œCould it be lung cancer?” they need accurate, reviewed information.

We’re @pifonline.bsky.social certified - evidence-based & independently assessed.

23.02.2026 21:52 πŸ‘ 6 πŸ” 0 πŸ’¬ 0 πŸ“Œ 1
Post image

Being told you’re ALK+ can feel like another layer on top of an already overwhelming #lungcancer diagnosis.

ALK+ means the cancer has a specific gene change driving it. That can guide the right treatment path & can open up options like targeted therapy. #LCSM

15.02.2026 15:53 πŸ‘ 4 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Graph depicting confidence over ability to find trustworthy information about certain topics

Graph depicting confidence over ability to find trustworthy information about certain topics

Graph depicting top sources of medical information

Graph depicting top sources of medical information

Graph showing what makes people unlikely to trust a source of medical information

Graph showing what makes people unlikely to trust a source of medical information

1/2 - Confidence among UK adults in recognising accurate health information is not widespread.

Almost 6 in 10 people feel confident in their ability to identify trustworthy medical information.

But nearly half the population is uncertain about whether the advice they find is reliable.

12.02.2026 10:27 πŸ‘ 2 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
Preview
Charlie Swanton awarded SjΓΆberg Prize from the Royal Swedish Academy of Sciences Deputy Clinical Director at the Crick Charlie Swanton has been awarded this year’s SjΓΆberg Prize for discoveries concerning clonal evolution of cancer cells and its importance for tumour growth and me...

Congratulations to @charlesswanton.bsky.social on being awarded the SjΓΆberg Prize Laureate from @scienceacademyswe.bsky.social.

Read more about the award and Charlie’s work on the clonal evolution of cancer cells and its importance for tumour growth and metastasis:

www.crick.ac.uk/news/2026-02...

12.02.2026 14:14 πŸ‘ 13 πŸ” 1 πŸ’¬ 0 πŸ“Œ 1
Preview
Creating The Conditions Where Care Can Thrive: Four Actions For Clinical Leaders | The King's Fund High responsibility and low control can lead to burnout. Sharon Nash shares reflections from clinical leaders on steps organisations can take to prioritise the health and wellbeing of staff.

High responsibility and low control can lead to burnout. Sharon Nash shares some reflections from clinical leaders on how organisations can prioritise the health and wellbeing of staff in her new blog.

https://bit.ly/406OhEa

15.02.2026 15:05 πŸ‘ 3 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Preview
Urgent call for action on lung cancer in people who have never smoked In 2020, lung cancer in people who had never smoked was the fifth most common cause of cancer death worldwide

πŸ”— www.independent.co.uk/news/health/...

14.02.2026 09:07 πŸ‘ 5 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Post image

@caswelldrm.bsky.social is lead author of a recent opinion paper bringing tog evidence on how #lungcancer in never smokers differs in its biology & risk profile.

People with no smoking history now account for a growing share of diagnoses. UK data show cases in never-smokers doubling 2008-14. #LCSM

14.02.2026 09:06 πŸ‘ 7 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0

Feels nuts that this is even a standard!
Time critical...
24 hours...

13.02.2026 18:27 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Preview
African countries must take control of health policy Massive cuts to global health-care funding have had a huge impact on the continent, but a more resilient system can be built from within.

Massive cuts to global health-care funding have had a huge impact on Africa, but a more resilient system can be built from within

go.nature.com/46RnW0G

13.02.2026 19:00 πŸ‘ 21 πŸ” 7 πŸ’¬ 0 πŸ“Œ 0
Preview
Vaping in cars carrying children to be banned in England Rising evidence that secondhand vapour from e-cigarettes poses health risks, government says Vaping in cars carrying anyone under 18 will be banned in England under government plans to reduce the harm caused by smoking and e-cigarettes. The move is included in the tobacco and vapes bill, which will also outlaw smoking, vaping and using heated tobacco in playgrounds and outside schools and hospitals. Continue reading...

Vaping in cars carrying children to be banned in England

13.02.2026 19:01 πŸ‘ 106 πŸ” 26 πŸ’¬ 5 πŸ“Œ 8
Post image

πŸ†• 2024 data from the @nlca-natcan.bsky.social State of the Nation 2026 report shows women now account for > 1/2 of lung cancer diagnoses in England.

Around 1 in 10 diagnosed have never smoked. #Lungcancer is changing. National reporting must keep pace.

www.natcan.org.uk/wp-content/u...

#LCSM

12.02.2026 22:34 πŸ‘ 7 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0