To be continued. 118/temporary end
07.03.2026 17:27
👍 0
🔁 0
💬 0
📌 0
To be continued. 118/temporary end
% p. 156: all the way back to the day of slavery. 117/
% p. 156: A 2016 study published in Proceedings of the National Academy of Sciences of the United States of America suggested that health care providers may underestimate black patients' pain in part due to a belief that they simply don't actually feel as much pain--a myth that dates 116/
% p. 156: that it's not just the assumption of drug seeking at work, though. A 2015 study found that white children with appendicitis were almost three times as likely as black children to receive opioids in the emergency room. 115/
p. 156: White Americans have the highest rates of prescription drug abuse, are most likely to die from drug overdoses, and, for that matter, use illegal drugs in general at the same or higher rates as people of color do. The fact that the racial pain-treatment gap extends to children suggests 114/
% p. 156: Imperative. "Their bias absolutely makes its way into the exam room." 113/
% p. 156: medical treatment based on many different factors, including gender, race/ethnicity, class and weight. "We want to think that physicians just view us as a patient, and they'll treat everyone the same, but they don't," says Linda Blount, president of the Black Women's Health 112/
p. 156: Like that of most women in the United States, Jackie's experience was impacted not solely by gender bias. A growing body of research explores how "implicit" bias--unconscious biases that are usually not linked to consciously held prejudiced attitudes--contributes to disparities in 111/
% p. 150: similar symptoms who comes into their exam room. 110/
% p. 150: doctors who said it's all in her head never learned that they were wrong." This leaves doctors without a accurate sense of their diagnostic errors, an the assumption that she really was the "chronic complainer" they viewed her as, in turn, affects how they view the next woman with 109/
p. 150: Instead, "If a woman goes to a doctor and the doctor says this is 'all in her head', she'll go to another doctor, and then another doctor." Three and a half years later, on average, she'll to a fifth doctor who makes the correct diagnosis of an autoimmune disease. "But the first four 108/
% p. 149: for women. A 2005 study of RA patients in Norway found the same pattern. 107/
% p. 149: For example, a 2001 study from the Netherlands, found no difference in how quickly men and women with RA saw a general practitioner once their symptoms began. However, men were referred to a specialty arthritis clinic in an average of fifty-eight days, compared to ninety-three days 106/
% p. 149: than men. Still, studies that have teased apart what part of the delay happens on the patients' end versus the physicians' end suggest that women often experience a longer delay than men once they enter the medical system. 105/
p. 149: Diagnostic delays can, of course, stem from delays in seeking care on the part of the patient in addition to delays in reaching the correct diagnosis on the part of the medical system. And as I've already discussed, it's a myth that women always seek medical attention more quickly 104/
% p. 148: professionals were often the first to make a correct diagnosis" of an autoimmune disease. 103/
% p. 148: pass off as psychogenic--even in the absence of any psychological symptoms--than those held by trained mental health professionals. Here's striking evidence of that: according to Stanley Finger, vice chairperson of the board of the AARDA, "even as late as 2000, mental health 102/
p. 148: "If you went to a psychiatrist or a psychologist and they diagnosed you with depression on the basis of those symptoms, that would be malpractice.", Katie says. Indeed, many general physicians seem to have more extreme ideas about the limitless range of physical symptoms that they can 101/
% p. 146: Most specialists are "boxologists", autoimmune expert Dr. Abid Khan has explained to Self. "As a patient, you have to meet their narrow criteria to be taken seriously, or you're dismissed." 100/
p. 146: Complicating matters further is the fact that some patients never fit cleanly into a particular autoimmune diagnosis. If you have a textbook case of a relatively common autoimmune disease (as I did), it's not actually very difficult to diagnose. [...] 99/
% p. 140/141: at making the diagnosis of MS. 98/
% p. 140/141: neurological diseases in the country. The shift, as researcher Colin L. Talley has shown, likely didn't reflect an actual increase in prevalence of the disease. Instead, between the twenties and the fifties, there were growing numbers of neurologists who were becoming more skilled 97/
% p. 140/141: deceased housekeeper. For the next half century, however, American neurologists believed the disease to be rare. In the early twentieth century, the perception started to change, first gradually, then very rapidly, and by 1950, neurologists considered MS among the most common 96/
p. 140/141: Perhaps one of the clearest examples of an autoimmune disease carved out of the wastebasket of hysteria is multiple sclerosis (MS). In 1868, Jean-Martin Charcot, the noted hysteria researcher, named the disease after finding distinctive lesions after cutting into the brain of his 95/
In 🇦🇹 leben schätzungsweise 44.000 arbeitsunfähige Personen im erwerbsfähigen Alter mit schweren PAIS inkl. ME/CFS (Schätzung bezogen auf internat. Prävalenzstudien mit Extrapolation auf 🇦🇹).
1/6
"Ich bin jeden Tag bei ihr zuhause - und habe sie seit einem Jahr nicht gesehen."
Im @diedunkelkammer.bsky.social Podcast schildert Regina Leimüller das bestürzende Schicksal ihrer Schwester Elke Asen -- die heue ihren 30er begeht.
#mecfs
Hört rein!
dunkelkammer.simplecast.com/episodes/297...
Schreibtafel mit schwer lesbarem Text
Mila hat eine Nachricht für alle geschrieben, die dafür Verantwortung tragen, dass es für #MECFS endlich Versorgung und Forschung gibt.
Schreiben ist für Mila extrem anstrengend, deshalb auf Englisch, das ist kürzer.
Ein Grundproblem bei #MECFS ist ja, dass nicht betroffenen Menschen (auch im medizinischen Bereich) oft jeglicher Vorstellungsrahmen bezüglich der Drastik fehlt.
Diese Folge der @diedunkelkammer.bsky.social trägt hoffentlich zum besseren Verstehen bei.
dunkelkammer.simplecast.com/episodes/297...
In conclusion, the serum proteome in ME/CFS reveals a distinct pattern characterized by reduced release of intracellular proteins and increased secretion of extracellular proteins, indicating widespread tissue involvement and disturbed systemic homeostasis. These changes point to altered metabolic and inflammatory regulation across multiple organs, including skeletal muscle, brain, and bone marrow. The accompanying immune dysregulation and attenuated neutrophil function, further supports the notion of a sustained, multisystem imbalance involving immune, vascular, and metabolic processes. Together, these findings offer molecular insight into ME/CFS pathophysiology and a foundation for future biomarker and therapeutic development.
www.cell.com/cell-reports...
#MECFS
