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Courtney Waller

@policyservedrare

Policy guru specializing in Rare Disease Policy. Writer and Political Commentator Mom to Theodora, who lost her battle with Timothy Syndrome on 2/16/2024 courtneyexplainsitall.substack.com

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14.11.2024
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Latest posts by Courtney Waller @policyservedrare

If I could define my disdain for mainstream media in one way it would be this: no one gets smarter or more informed about policy/history/procedures from watching CNN. If you forced someone to watch CNN cover a bill for a month, 99% of viewers wouldn't be able to answer basic questions about the bill

30.06.2025 18:57 πŸ‘ 1262 πŸ” 251 πŸ’¬ 60 πŸ“Œ 10
Preview
The Reality Of Medicare Cuts (Even If You Don't Use It) Even if you aren't enrolled in Medicare or Medicaid, cutting those programs will lead to an increased financial burden for us all.

Every single American will pay more across several sectors if Medicare/Medicaid is cut. It won't just be healthcare. It will mean increased taxes, reduced property values and staggering unemployment.
open.substack.com/pub/courtney...

17.05.2025 21:29 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

And yet somehow they both will continue to be usurped by the insufferability of Chicago Catholics as a whole. 🀣

09.05.2025 00:08 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

A US judge to govt lawyers defending the NIH's grant terminations:

"I understand the administration is against DEI. Respectfully, I just don't know what you mean. This isn't a teasing question. There has to be some working definition.

This is research to advance healthcare for all our citizens."

08.05.2025 16:27 πŸ‘ 1011 πŸ” 270 πŸ’¬ 10 πŸ“Œ 17
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@kenmartin.bsky.social 🚨 You said we need to β€œland the right punch.”I am asking you to rally the troops and fight, now. We are losing crucial time.

01.05.2025 15:16 πŸ‘ 6 πŸ” 5 πŸ’¬ 0 πŸ“Œ 3
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The EO on policing is even worse than imagined.

courtneyexplainsitall.substack.com/p/is-this-th...

29.04.2025 19:12 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Lil' Marco Finally Gets His Chance Marco Rubio has long been at the forefront of rhetoric against both China and Maduro. Bukele offered him a chance to hurt both.

We need to take the focus off Trump and start looking at the people around him.
Rubio is more complicit and has been dreaming of what’s happening since 2018. He didn’t sell his soul. He saw an opening and took it.

open.substack.com/pub/courtney...

27.04.2025 18:05 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Scott Walker is the most embarrassing thing to ever happen to WI.

26.04.2025 03:37 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

The Wisconsin GOP tonight have already started talking about impeaching and removing Judge Hannah Dugan. Our piece of shit former governor Scott Walker is already asking for a special session of the legislature to take up the matter.

#Maddow

26.04.2025 01:39 πŸ‘ 43 πŸ” 17 πŸ’¬ 13 πŸ“Œ 4

Well if TSA is to believed: Terrorists and gang members. And since she has no ID proving she’s a citizen, when does she find herself on a flight to El Salvador?

21.04.2025 18:49 πŸ‘ 28 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0

When asked if there was dysfunction at the Pentagon, Trump said to β€œask the Houthis”

Why? Did Hegseth include them in a Signal chat of classified information too? It would not surprise me at the rate this is going

21.04.2025 18:48 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

It seems like Boasberg isn’t convinced he has jurisdiction to rule on the ACLU’s petition.

18.04.2025 23:02 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Currently waiting for the Boasberg hearing to start.

18.04.2025 22:16 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I know you aren't going to want to hear this but the reason the system can deport Mahmoud Khalil and send Kilmar Abrego Garcia to El Salvador is that for years we've been executing factually innocent people like Marcellus Williams and sending legally innocent people to places like Riker's Island.

15.04.2025 00:20 πŸ‘ 7570 πŸ” 1956 πŸ’¬ 119 πŸ“Œ 68

The delusion....

15.04.2025 20:31 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

I won't say I could have foreseen this. But now that its happening, I'm not actually in full shock over it. It makes sense. He's always had disdain for other countries.

13.04.2025 23:22 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Tariffs on pharmaceuticals does not just mean prescription medication. But it does mean that people who need prescription medication will be in life and death situations. Not all of them will survive.

13.04.2025 23:11 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Rubio has confirmed today that 10 more immigrants were sent to El Salvador last night per the NYT

13.04.2025 23:09 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Timothy Syndrome can cause autism. The mutation on the CAC1NAC gene is the cause for those kids. I know of at least 4 other mutations on other genes....all rare mutations. I'm sure that's not being considered at all

11.04.2025 21:48 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

This is absolutely ridiculous

11.04.2025 18:58 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Forcing people to pay $130 for a passport in order to vote is just a Jim Crow poll tax by another name.

It is blatantly unconstitutional.

10.04.2025 21:46 πŸ‘ 48263 πŸ” 12796 πŸ’¬ 1462 πŸ“Œ 431

They would be in 2011 with the National Defense Authorization Act.

09.04.2025 17:26 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Everyone is talking about the huge crowds in DC, Boston, NYC ect.

But you know what makes me heart sing….the videos of protests from small towns in really conservative areas.

It’s harder to get people to care in places like that. And to see even 100 people-200 peopleβ€”500 people is truly magical.

06.04.2025 16:49 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I am in the same boat. I just blocked a long time subscriber on Substack because she told me was this is ok,because Abbott is bad. No. It isn't. Her dismissing people,calling them MAGA is what I am really upset about. If she meant it another way, and didn't think it through I could offer grace.

25.03.2025 23:23 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I think we need to be way more concerned about the β€œin conjunction with DOGE” part of access to voter registrations. I don’t want DOGE anywhere near voter rolls

25.03.2025 22:13 πŸ‘ 4 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I’m more concerned it gives DOGE access to voter registrations.

25.03.2025 22:07 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I liked Jasmine Crockett. I did. I was horrified by the comment she made about Greg Abbott. Even if she did not mean it as a remark on disability, it was a gaffe all the same, and instead of apologizing, she got defensive, and attacked anyone who was offended was a "political rival" It's not ok

25.03.2025 21:55 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Exactly...even if she meant something else by it as she said here. It was a trash thing to say. I'm even more leery of the fact that many people feel the way we do, and she's decided that we are all just MAGA who are "freaking out" for no reason.

25.03.2025 21:50 πŸ‘ 1 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0

They tried to impeach Austin. So this is dead on.

24.03.2025 23:44 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

In Tempe waiting for @aoc.bsky.social and @sanders.senate.gov to take the stage!

21.03.2025 01:10 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0