Please consider reading my latest (and brief) article <3
open.substack.com/pub/homeboun...
20.05.2025 01:07
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Please consider reading my latest (and brief) article <3
open.substack.com/pub/homeboun...
I had the most wonderful flight home from Denver. I met the nicest young man who sat next to me. He offered to put my bag in the overhead compartment and helped me with my tray. He was always polite, saying "yes ma’am" or "no ma’am." Anyone would be proud to have him as a son or grandson—so polite. People walking by were saying congratulations, great job, or even taking pictures. I turned and asked him, “Who am I sitting next to?” I looked at his Jaguar pants, smiled, and asked, “Are you an athlete?” He smiled and said, “I’m Travis. Yes, I was drafted by the Jags.” I already told my sons I want his jersey. He’s so humble and down-to-earth—I would have never guessed he was a professional athlete. JACKSONVILLE JAGS, you did good! I will be buying tickets. United Airlines, thank you for my seat assignment!
This is too wholesome
Question for chronic illness/pain friends:
I'm waking up in pretty significant pain! Esp. neck and shoulders.
What are your favorite pain relief tips and resources?
#pwME
a spectacular crescent of golden-brown wrinkles is laying atop a soft, lime green blanket. each of the precious rolls from one end to the other no doubt came from an elaborate and precise lamination process and not just a casual plop. some might see what they believe is a shar pei puppy, but that can’t be it.
We only rate dogs. This is a very cuddly croissant. We understand the confusion between puppies and pastries, but please only send dogs. Thank you... 12/10
Food sensitivity test results were helpful, though didn't show as much improvement as hoped. It's taken awhile to process this news and come up with a new plan. 🥲🙏🏻🫂
CW: IBS
Next step: comprehensive stool test, especially since I've been dealing with bad diarrhea almost daily for over a year. 😢🫂🙏🏻
Picture of me wearing a blue shirt and a red kn95 respirator
Testing out a new mask, for lower risk environments. So far I'm a fan! ❤️
The unrefreshing sleep part of #MECFS is hitting me particularly hard this week 😐
😔🙏🏻🫂
When lockdowns started, people said: “this is what your life is like all the time? I had no idea!”
They seemed to understand how hard it is to be disabled & housebound. I found support & empathy.
Then they got bored. Wanted their “normal” back. Support vanished & disabled people were left behind.
"If we were to see immune damage manifesting at a population level, it would look like what we’re seeing today: big waves of common illnesses. Unusual spikes of uncommon illnesses. Course reversal for previously declining and eliminated illnesses. An unexplained, global wave of sickness."
Wrong again
That's not true. It seems like you don't care, though, and I accept that 🤷♀️
Hitler deserved to die, preferably at the hands of an international court.
My approach to evil dictators is: call them out, don't lie about them, don't wish harm on them, work to bring them to justice, rejoice when they are brought down. AND never lose sight of their value rooted in their humanity.
How ought we to approach our own privileges?
With honesty, humility, and thankfulness.
With stewardship and generosity.
Measles outbreak worsens in Texas. Please pray, stay informed, and take precautions
I'm still steadfastly a "the ends don't justify the means" person. Even evil people do not deserve to be murdered.
Oh, haha! That's great 😅😊🙌🏻
Such good advice. So important to give yourself grace, and expect care from those who wish to be your friends. If they cannot accept that I have limitations, and offer me kindness, they aren't worth the inordinate amount of time and effort it takes me to deeply engage.
Absolutely! ❤️☝🏻
This book looks so cool! I wanted to shout it out, for my fellow TCKs, as well as for those who are interested in better understanding and caring for TCKs 🥲💕🙏🏻🗺️
When you are chronically ill, my advice is to maintain as many relationships as you can, even if in a limited way. However, do prioritize relationships that are safe, kind, accepting, and characterized by mutual effort. 🫂🙏🏻🥲💕 #spoonies #community
I'm looking forward to reading this!
LOVE this. 👇
What brings you #JOY these days? (Pics/gifs welcome)
For me: sincere compliments, the sound of rain on a tin roof, fresh coffee, cuddles with my husband, funny YouTube videos or TV shows, going on little outings that include beautiful views & fun snacks, and remembering/imagining peaceful times 😍❣️
😁😁
It's okay to be single and fulfilled on Valentine's Day.
It's okay to be part of a happy couple on Valentine's Day.
It's okay to be at home, three cell phones in front of you, fielding desperate calls from people who want to buy one of the 50 restaurant reservations you made over six months ago.
Gross! That's the behavior of a husband who uses his wife! 🤮
(Sexual arousal is just part of life. It happens. It's not a problem that needs to be "solved".)