Lindsay (she/her/hers)'s Avatar

Lindsay (she/her/hers)

@spoonfuloflindsay

chronic illness life & disability lit πŸ“šπŸͺ΄πŸŒŠπŸ• honoring the hard & finding joy along the way migraine | SF neuropathy | POTS | ME/CFS | long COVID | MCAS | ambulatory β™Ώ

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12.01.2025
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Latest posts by Lindsay (she/her/hers) @spoonfuloflindsay

#ME is a violent, turbulent condition. Words like brain fog, tiredness, aching, mood disturbance, interrupted sleep patterns, do not begin to describe the turmoil of #MECFS bodies. It’s like being attacked by a malevolent being, often for decades and without help or understanding.

14.11.2024 12:39 πŸ‘ 187 πŸ” 40 πŸ’¬ 10 πŸ“Œ 3

Signed. Shared. β˜‘οΈ

20.01.2025 18:07 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
A screenshot of the first page of the petition showing Line, a 26-year-old white woman

A screenshot of the first page of the petition showing Line, a 26-year-old white woman

A screenshot of the text of this first page of the petition. Very Severe ME patient Line aged 26 from Denmark (@nebulow on IG) has appealed to the international ME and Long Covid community to help prevent her being involuntarily removed to a psychiatric hospital from the nursing home she has been living in for the past 10 months.
The core values page on their website states that "It is crucial that the residents are met
with:
Respect
Dignity
Empathy
Realistic Expectations"
Please sign the petition below in support of our letter asking them to recognise her energy-limiting chronic illness as a debilitating biological disease and to spare her suffering further deterioration or even death

A screenshot of the text of this first page of the petition. Very Severe ME patient Line aged 26 from Denmark (@nebulow on IG) has appealed to the international ME and Long Covid community to help prevent her being involuntarily removed to a psychiatric hospital from the nursing home she has been living in for the past 10 months. The core values page on their website states that "It is crucial that the residents are met with: Respect Dignity Empathy Realistic Expectations" Please sign the petition below in support of our letter asking them to recognise her energy-limiting chronic illness as a debilitating biological disease and to spare her suffering further deterioration or even death

Please sign and share the petition to stop a patient with Very Severe ME being forced to take inappropriate antipsychotic meds and detained because they can’t get out of bed.

bit.ly/linepetition

20.01.2025 13:15 πŸ‘ 80 πŸ” 49 πŸ’¬ 8 πŸ“Œ 9

go.bsky.app/VPRy2ML

Message me to be added if you are a #disabled voice or #pwME.

13.11.2024 13:31 πŸ‘ 71 πŸ” 26 πŸ’¬ 43 πŸ“Œ 2
Post image

Hi πŸ‘‹πŸ» It’s me, your friendly, chronically ill, confused elder millennial who has never had the other apps, so I am gaining my sea legs. I'm not used to making content without accompanying images, so please be patient with me as I figure this out.

19.01.2025 00:45 πŸ‘ 21 πŸ” 0 πŸ’¬ 3 πŸ“Œ 1

hi πŸ‘‹πŸ»

12.01.2025 19:10 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0