London UK: CureME are still looking for people with Long Covid as well as healthy control volunteers π
UK ME/CFS Biobank HHV-6 Study: Recruitment in its Final Phase
#LongCovid #MEcfs
London UK: CureME are still looking for people with Long Covid as well as healthy control volunteers π
UK ME/CFS Biobank HHV-6 Study: Recruitment in its Final Phase
#LongCovid #MEcfs
Is the OMFβs ME/CFS BioQuest Study the Study Weβve All Been Waiting For? #MECFS
www.healthrising.org/blog/2026/02...
A Mother Cleaning Her Child's Hair, Known as 'Mother's Job', Pieter de Hooch, c. 1660 - c. 1661 (Rijksmuseum) The mother thoroughly examines her child for lice. In the front right is a "kakstoel", a high chair with built-in potty.
Anna is still short of her fundraising target and needs help to escape abuse and neglect
Please donate, share or offer help if you can
#MutualAid #MutualAidAustralia
#MEcfs #POTS #LongCovid
Jacob van Ruisdael gave two-thirds of every canvas to sky
In Netherlands' Golden Age art market, where portraits and still lifes paid, this was a commercial gamble
John Constable studied him
William Turner copied him
The Barbizon School built on him
He never left the Netherlands
ππ A member of our book club on Fable has set up her own space, 'Endless Horizons' for teens living with disabilities to help build community and connection.
If you know a disabled teen who would be interested here is the link! π
Covid Support Community is a managed safe space for those affected by the coronavirus pandemic. Including those with Long Covid and suffering from associated, loss and grief, with a variety of Courses, Live Events, Groups, and much more β all entirely free to access
#LongCovid #POTS #MEcfs
Sunlight falls through windows, adding to the geometric pattern on floor. A woman is playing music. And a man listens from the shadowed bed. Painted by Emanuel de Witte, whose day is today.
Thanks for getting in touch. We are indeed particularly interested at present in people able to get to us for a blood test. Also, please bring your βhealthy controlβ friends. Contact:
Altmannlongcovidstudy@imperial.ac.uk
Absolutely shattered even after an early night. I'm hoping a bacon roll will rejuvenate me.
Have a pleasant Sunday.
A favourite photo from 2023. Chapel in Brittany.
#stainedglasssunday
#melbourne #australia #auspol #disability #accomodation #flatmate #housing #housingneeded #mutualaid #chronicillness #domesticviolence #disabilityaustralia #disabledvoice
@australia.theguardian.com @6newsau.bsky.social
Β© Saul Leiter
An image titled "PROGRESS WORTH CELEBRATING" announcing that Phase 1 of SEQUENCE ME + Long Covid is now funded for two years. The text explains it is a bold study exploring root causes through large-scale, whole genome sequencing, building on the DecodeME study. It notes the proposed Β£20 million study is the largest for any disease and still needs funding. The bottom features a "LONG COVID ADVOCACY" logo with a purple and blue gradient hand icon.
π Some Good News with the launch of SEQUENCE ME & Long COVID.
Led by Ponting & Birney, this bold study is exactly the direction research needs to take.
More details & donation link on Action for ME website:
ποΈ tinyurl.com/mr96dxj4
Itβs Lunar New Year! ππ₯³π΄
Help me escape daily #abuse from dark triad #Narcissist (psychiatrist diagnosed)
#SignalBoost #MutualAid #HelpSky #FundSky #UrgentNeed #HelpFolksLive2026
#MutualAidAustralia
#MutualAidMonday
Basic need: safe house, friend to help. Paid. Negotiable. #Melbourne #Australia
Large bright colored painting. Distorted and ugly people parading forward not noticing the second coming of the Christo.
My first time seeing Ensorβs, βChrist's Entry into Brussels in 1889β. Getty collection.
Iβve studied this painting in art history classes and have taught this painting but to see it in personβ¦the scale is shocking. What a stir this caused in his day. Christ as a Revolutionary. A socialist.
Help me escape #abuse for #ValentinesDay π₯
#CoerciveControl #Neglect
Help me find a safe home.
#MutualAid
I first read Mervyn Peake in my late teens and it completely rewired my brain. Revisiting it is always amazing.
Noticed recently that elements of the second Gormenghast book must have been an inspiration for Susannah Clarke's Piranesi, which is also brilliant in its own right
My consultants are talking with my MP today about #SevereME provision etc because many of our situations are so desperate, there is nothing on offer, no guidance for them, no treatments for us.
@wesstreeting It HAS to change.
Funding research, and funding a specialist service will save lives.
Savannah Victora-May has been in hospital for 11 months with severe ME; a dearth of specialist treatment has contributed to her situation.
The Govtβs Final Delivery Plan committed to exploring a specialised service for very severe ME. *What* is happening to prevent more cases such as Savannahβs?
Urgent Appeal: Help Anna Escape Abuse β Time is Running Out!
πPlease continue to contribute to her crowdfundπ
What now?
- Anna needs a safe place in the Melbourne area. She can pay $250wk
- Someone to advocate for her and make phone calls and do admin
#MEcfs #SevereME #domesticabuse
#MutualAid
The thing is, you didn't have to be Nostradamus to see it. You just had to be independent of the ultra-rich. Unfortunately, the great majority of the media is in the plutocrats' pockets. So the people pointing it out are shunned. In 2009 I tried and tried to get the BBC to pick this up. But ...βπ€
A new go fund me for Savannah has been set up to cover medical costs and ME-literate nursing support. I have just donated.
www.gofundme.com/f/severemerg...
Long Covid friendsβ
A bill in the Maryland legislature would create an R&D fund for LCβa big deal when new federal funding is stalled.
The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!
More info:
New article on Savannahβs case.
Queen Elizabeth Hospital has declined to take up Sonya Chowdhuryβs offer to advocate.
Savannah remains without nutrition. Fluids restored after pressure, pain meds reduced, and she is still at serious risk.
www.thecanary.co/uk/analysis/...
Untitled (Childrenβs Room), Private Rooms series
Menno Aden, fine art pigment print, 2017
mennoaden.com
#art #photography #architecture
polaroids by andrei tarkovsky
Andrei Tarkovsky. Instant Light: Polaroids.
9. Stockdale Paradox:
The optimal state of mind is neither optimism, which leaves you unprepared for adversity, nor pessimism, which destroys motivation, but optimistic pessimism: by preparing for the worst outcomes, you increase confidence in dealing with any outcome, and thus, you increase hope.
An semi-abstract painting depicting two figures amidst a dark green landscape
Rabindranath Tagore
From Across the Dark (1937)
#painting #landscapepainting