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helephant

@helephant

πŸ‘‹ Illustrator-on-hold, #LongCovid (COVID-induced #POTS / #ME) London, UK

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14.10.2023
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Latest posts by helephant @helephant

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UK ME/CFS Biobank HHV-6 Study: Recruitment in its Final Phase - The ME Association TheΒ HHV6Β study, which is looking at the association between symptom exacerbation […]

London UK: CureME are still looking for people with Long Covid as well as healthy control volunteers πŸ‘‡

UK ME/CFS Biobank HHV-6 Study: Recruitment in its Final Phase

#LongCovid #MEcfs

02.03.2026 14:36 πŸ‘ 3 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Is the OMF's ME/CFS BioQuest Study the Study We've All Been Waiting For? - Health Rising The Open Medicine Foundation's huge Bioquest project has the potential to transform ME/CFS patients experience with doctors, dramatically enhance research and get drug companies finally interested in ...

Is the OMF’s ME/CFS BioQuest Study the Study We’ve All Been Waiting For? #MECFS

www.healthrising.org/blog/2026/02...

28.02.2026 22:03 πŸ‘ 16 πŸ” 7 πŸ’¬ 1 πŸ“Œ 0
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A Mother Cleaning Her Child's Hair, Known as 'Mother's Job', Pieter de Hooch, c. 1660 - c. 1661 (Rijksmuseum) The mother thoroughly examines her child for lice. In the front right is a "kakstoel", a high chair with built-in potty.

01.09.2025 20:01 πŸ‘ 13 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0

Anna is still short of her fundraising target and needs help to escape abuse and neglect

Please donate, share or offer help if you can

#MutualAid #MutualAidAustralia
#MEcfs #POTS #LongCovid

28.02.2026 12:05 πŸ‘ 2 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0
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Jacob van Ruisdael gave two-thirds of every canvas to sky

In Netherlands' Golden Age art market, where portraits and still lifes paid, this was a commercial gamble

John Constable studied him
William Turner copied him
The Barbizon School built on him

He never left the Netherlands

25.02.2026 19:02 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Endless Horizons Book Club | Join & Read on Fable Join Endless Horizons on Fable. Connect with readers, discuss books, and explore curated reading lists.

πŸ“šπŸ’™ A member of our book club on Fable has set up her own space, 'Endless Horizons' for teens living with disabilities to help build community and connection.

If you know a disabled teen who would be interested here is the link! πŸ‘‡

25.02.2026 12:26 πŸ‘ 8 πŸ” 8 πŸ’¬ 0 πŸ“Œ 0
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Covid Support Community Our Member Led Covid Support Community is a managed safe space for those affected by Covid-19, including those with Long Covid and suffering from trauma, loss and grief. We have a variety of Courses, ...

Covid Support Community is a managed safe space for those affected by the coronavirus pandemic. Including those with Long Covid and suffering from associated, loss and grief, with a variety of Courses, Live Events, Groups, and much more – all entirely free to access

#LongCovid #POTS #MEcfs

25.02.2026 07:00 πŸ‘ 3 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Sunlight falls through windows, adding to the geometric pattern on floor. A woman is playing music. And a man listens from the shadowed bed. Painted by Emanuel de Witte, whose day is today.

25.11.2024 21:14 πŸ‘ 80 πŸ” 19 πŸ’¬ 3 πŸ“Œ 2

Thanks for getting in touch. We are indeed particularly interested at present in people able to get to us for a blood test. Also, please bring your β€˜healthy control’ friends. Contact:
Altmannlongcovidstudy@imperial.ac.uk

24.02.2026 16:29 πŸ‘ 12 πŸ” 11 πŸ’¬ 2 πŸ“Œ 0
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Absolutely shattered even after an early night. I'm hoping a bacon roll will rejuvenate me.
Have a pleasant Sunday.

A favourite photo from 2023. Chapel in Brittany.
#stainedglasssunday

22.02.2026 10:21 πŸ‘ 151 πŸ” 10 πŸ’¬ 9 πŸ“Œ 1

#melbourne #australia #auspol #disability #accomodation #flatmate #housing #housingneeded #mutualaid #chronicillness #domesticviolence #disabilityaustralia #disabledvoice

@australia.theguardian.com @6newsau.bsky.social

22.02.2026 13:10 πŸ‘ 0 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Β© Saul Leiter

21.02.2026 21:02 πŸ‘ 50 πŸ” 10 πŸ’¬ 1 πŸ“Œ 0
An image titled "PROGRESS WORTH CELEBRATING" announcing that Phase 1 of SEQUENCE ME + Long Covid is now funded for two years. The text explains it is a bold study exploring root causes through large-scale, whole genome sequencing, building on the DecodeME study. It notes the proposed Β£20 million study is the largest for any disease and still needs funding. The bottom features a "LONG COVID ADVOCACY" logo with a purple and blue gradient hand icon.

An image titled "PROGRESS WORTH CELEBRATING" announcing that Phase 1 of SEQUENCE ME + Long Covid is now funded for two years. The text explains it is a bold study exploring root causes through large-scale, whole genome sequencing, building on the DecodeME study. It notes the proposed Β£20 million study is the largest for any disease and still needs funding. The bottom features a "LONG COVID ADVOCACY" logo with a purple and blue gradient hand icon.

πŸŽ‰ Some Good News with the launch of SEQUENCE ME & Long COVID.

Led by Ponting & Birney, this bold study is exactly the direction research needs to take.

More details & donation link on Action for ME website:

πŸ–‡οΈ tinyurl.com/mr96dxj4

22.02.2026 09:00 πŸ‘ 23 πŸ” 7 πŸ’¬ 0 πŸ“Œ 0

It’s Lunar New Year! πŸŽ‰πŸ₯³πŸ΄

Help me escape daily #abuse from dark triad #Narcissist (psychiatrist diagnosed)

#SignalBoost #MutualAid #HelpSky #FundSky #UrgentNeed #HelpFolksLive2026
#MutualAidAustralia
#MutualAidMonday

Basic need: safe house, friend to help. Paid. Negotiable. #Melbourne #Australia

16.02.2026 15:27 πŸ‘ 6 πŸ” 8 πŸ’¬ 3 πŸ“Œ 7
Large bright colored painting. Distorted and ugly people parading forward not noticing the second coming of the Christo.

Large bright colored painting. Distorted and ugly people parading forward not noticing the second coming of the Christo.

My first time seeing Ensor’s, β€œChrist's Entry into Brussels in 1889”. Getty collection.
I’ve studied this painting in art history classes and have taught this painting but to see it in person…the scale is shocking. What a stir this caused in his day. Christ as a Revolutionary. A socialist.

06.01.2025 17:11 πŸ‘ 11 πŸ” 1 πŸ’¬ 2 πŸ“Œ 0

Help me escape #abuse for #ValentinesDay πŸ₯€
#CoerciveControl #Neglect
Help me find a safe home.
#MutualAid

13.02.2026 14:50 πŸ‘ 0 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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I first read Mervyn Peake in my late teens and it completely rewired my brain. Revisiting it is always amazing.

12.02.2026 13:32 πŸ‘ 64 πŸ” 1 πŸ’¬ 10 πŸ“Œ 2

Noticed recently that elements of the second Gormenghast book must have been an inspiration for Susannah Clarke's Piranesi, which is also brilliant in its own right

15.02.2026 11:13 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

My consultants are talking with my MP today about #SevereME provision etc because many of our situations are so desperate, there is nothing on offer, no guidance for them, no treatments for us.

@wesstreeting It HAS to change.

Funding research, and funding a specialist service will save lives.

09.02.2026 13:31 πŸ‘ 17 πŸ” 6 πŸ’¬ 1 πŸ“Œ 0
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Savannah Victora-May has been in hospital for 11 months with severe ME; a dearth of specialist treatment has contributed to her situation.

The Govt’s Final Delivery Plan committed to exploring a specialised service for very severe ME. *What* is happening to prevent more cases such as Savannah’s?

05.02.2026 17:37 πŸ‘ 81 πŸ” 36 πŸ’¬ 8 πŸ“Œ 1
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### Urgent Appeal: Help Anna Escape Abuse – Time is Running Out! 🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect!

Urgent Appeal: Help Anna Escape Abuse – Time is Running Out!

πŸ‘‰Please continue to contribute to her crowdfundπŸ‘ˆ

What now?
- Anna needs a safe place in the Melbourne area. She can pay $250wk
- Someone to advocate for her and make phone calls and do admin

#MEcfs #SevereME #domesticabuse
#MutualAid

06.02.2026 20:50 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

The thing is, you didn't have to be Nostradamus to see it. You just had to be independent of the ultra-rich. Unfortunately, the great majority of the media is in the plutocrats' pockets. So the people pointing it out are shunned. In 2009 I tried and tried to get the BBC to pick this up. But ...β›”πŸ€

03.02.2026 09:28 πŸ‘ 947 πŸ” 342 πŸ’¬ 27 πŸ“Œ 15
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Donate to #SevereMErgency:Save Savannah from dying inside NHS hospital, organized by Sam Pearce Very Severe ME patient 23 year-old Savannah Victora-May is at … Sam Pearce needs your support for #SevereMErgency:Save Savannah from dying inside NHS hospital

A new go fund me for Savannah has been set up to cover medical costs and ME-literate nursing support. I have just donated.

www.gofundme.com/f/severemerg...

30.01.2026 18:29 πŸ‘ 11 πŸ” 15 πŸ’¬ 1 πŸ“Œ 1
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Sign the Petition Advocate for Maryland HB 0027 for Long COVID R&D

Long Covid friendsβ€”

A bill in the Maryland legislature would create an R&D fund for LCβ€”a big deal when new federal funding is stalled.

The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!

More info:

30.01.2026 20:21 πŸ‘ 161 πŸ” 109 πŸ’¬ 2 πŸ“Œ 9

New article on Savannah’s case.

Queen Elizabeth Hospital has declined to take up Sonya Chowdhury’s offer to advocate.

Savannah remains without nutrition. Fluids restored after pressure, pain meds reduced, and she is still at serious risk.

www.thecanary.co/uk/analysis/...

30.01.2026 18:24 πŸ‘ 35 πŸ” 25 πŸ’¬ 1 πŸ“Œ 4
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Untitled (Children’s Room), Private Rooms series

Menno Aden, fine art pigment print, 2017

mennoaden.com

#art #photography #architecture

26.01.2026 12:41 πŸ‘ 9 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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polaroids by andrei tarkovsky

17.11.2025 03:44 πŸ‘ 11 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Andrei Tarkovsky. Instant Light: Polaroids.

05.02.2016 02:58 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Jim Collins - Concepts - The Stockdale Paradox

9. Stockdale Paradox:
The optimal state of mind is neither optimism, which leaves you unprepared for adversity, nor pessimism, which destroys motivation, but optimistic pessimism: by preparing for the worst outcomes, you increase confidence in dealing with any outcome, and thus, you increase hope.

18.01.2025 20:02 πŸ‘ 0 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
An semi-abstract painting depicting two figures amidst a dark green landscape

An semi-abstract painting depicting two figures amidst a dark green landscape

Rabindranath Tagore
From Across the Dark (1937)
#painting #landscapepainting

26.01.2026 15:09 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0