Amber husain ‘tell me how you eat’ book cover event with saeed jones
Last chance! If you are in the Boston area and you eat, RSVP for this event w/ my awesome Harvard prof—@theferocity.bsky.social —who really taught me how to write about illness. It’s @portersqbooks.bsky.social #booksky
kids aren't immune to long covid. this research shows that some *lasting* fatigue in kids after covid infection is 2/3rds with consistent, unresolving chronic fatigue being 1 in 6 www.nature.com/articles/s41...
for your kids sakes, you should be demanding air filtration in schools
Amber husain ‘tell me how you eat’ book cover event with saeed jones
Last chance! If you are in the Boston area and you eat, RSVP for this event w/ my awesome Harvard prof—@theferocity.bsky.social —who really taught me how to write about illness. It’s @portersqbooks.bsky.social #booksky
One thing we don’t do well, societally or interpersonally, is digest harms when there really isn’t anyone to blame.
Being called a n*gger on international television in front of your peers is a harm.
Having a disability that creates that harm through no choice of your own is a harm.
Let's try this again 👋
Hi Bluesky - I'm Massachusetts' Attorney General. You might know me from suing President Trump nearly 50 times, beating Uber and Lyft in court, or being the first woman of color elected to statewide office in MA.
I officially left X today - help me find my MA people?
Welcome from a HMS grad student who congratulates you on leaving X!!!! What are the health issues you are most interested in? #longcovid #equity #medicalracism
Yeah, if you could experience what #MyalgicEncephalomyelitis or #LongCovid feels like and experience their lack of treatment or cure, you’d never let your kid go anywhere without air filtration.
We’re failing these kids in myriad ways:
ICYMI: Read my feature about #longcovid in fiction from a #covidconscious perspective! Looking at books by Patricia Lockwood, Kate Weinber, and Robin Ryle. If you like it, please subscribe! #booksky www.whoevenreads.com/canary-in-th...
CANADIAN LONG COVID COMMUNITY
Please join us by participating and sharing your story as patient and/or caregiver. All hearts will be displayed at our in-person events on March 15. Help us share far and wide! We all deserve to be seen.
#LongCovid #LongCovidHeartbeats #LongCovidAwarenessDay
Sharing an article from ScienceLine: “Long COVID clinics are quietly closing, leaving Millions (which we added in red and we crossed out “thousands” that’s part of the original headline) of patients without specialized care” | By Emma Smith Subhead: Patients, providers and advocates say they are worried about the future of treatment Quote: “Providers in Texas and New York who treat Long COVlD said that the closures may stem from funding cuts, provider burnout and the lack of approved treatments.” Visual: A doctor holding a stethoscope
The closing of ~80% of #LongCOVID clinics—which provided services that PCPs couldn’t—due to funding cuts, provider burnout and lack of approved treatments, is leaving ‘millions’ of LC patients to suffer without care. @scienceline.org 🧵 scienceline.org/2026/01/long...
Next up in our 'meet the editors' is Academic Editor Brooke Nichols (@brookeenichols.bsky.social), Associate Professor of Global Health at Boston University School of Public Health (@busph.bsky.social). Brooke specializes in infectious disease modeling and health economics. 🧪 #MedSky #PLOSMedicine
Worth a follow. There’s a lot to unpack about ‘old guard’ medicine and MUCH MORE (hint P Attia). Thanks @nicknorwitz substack.com/@nicknorwitz...
Shared this on insta & will share here too. If you’re not in the ME or Long Covid communities you’re likely unaware of just how often we have to watch young people die.
This is great news. The moral: never give up, never give in, and ffs, do not obey in advance.
www.nytimes.com/2026/02/02/u...
We really do all have the ability to curb spread.
We need your testimony on Long Covid. Thanks @chromatowski.bsky.social for putting this on my radar. #longcovid #medsky
I wonder whether rare disease organizations will start speaking up. Some disability orgs definitely have. www.wfaa.com/article/news...
Loving this growing list of Covid aware comedians lol
And yes that's a respirator under Judah's cloth mask 😷
Dr. Alice Mann, an ER doc and state lawmaker, said, "We want the rest of the country to know about what's happeningin Minnesota hospitals... It will happen in your state, too."
So cool!
Today we’re launching #ForThoseWhoCant, our new fundraising campaign.
It’s about making fundraising more accessible, with ideas and guidance for friends, family, and loved ones who want to support our work.
Email fundraise@longcovid.org or click here for more: www.longcovid.org/get-involved...
I have an opinion writing workshop tomorrow from 9 - 12pm ET (some of you have asked me for an earlier start time because you're in a different time zone, so I got ya.) Still time to register! www.elizabethspiers.com/workshops/
Can you write more on your thoughts on this study? I want to be optimistic, but the way the study reads is v confusing. Hence all the rats! It’s all in my head! comments. Thank you! #medsky
New @naturemedicine.bsky.social
The power of our mind to shape immune response, as seen in a randomized trial of trained neurofeedback for increased reward activity. More positive expectation-> more antibody response nature.com/articles/s41...
nature.com/articles/s41...
"Trump’s aides know if the changes they propose were actually turned into law, it'd be a political disaster. Which is how we get what we got: A plan that's not a plan, released so they can say they have a plan but not actually do anything. And that’s just fine with Trump." — @paulwaldman.bsky.social
What a deep and thoughtful review of the Invisible Illness. It’s so helpful to read what people agree & disagree with. Thoughtful and respectful dialogue is so critical to help us all work together to advocate for reimagining what medicine could do.
longcovidadvocacy.substack.com/p/these-are-...
Text excerpted from email from the People’s CDC. “As Flu, COVID, and RSV surge around the Us, remember, using multiple layers of protection is the most effective way to avoid an infection. For example, at your gatherings this winter, you could combine ventilation, vaccination requirements, and the required use of N95/KN95/KF94 masks. Vaccination with the most updated booster is essential because it helps reduce the chances of death and hospitalization. However, vaccination alone will not help avoid infection altogether. COVID can damage the entire body, and even non-severe and asymptomatic cases increase the risk for complications such as Long COVID down the line. Layers of protection are essential to protect you and the ones you love from developing chronic illness and disability.”
I'm not particularly Luther-ish, but man, with our annual winter Covid surge accelerating as we emerge from the holidays, how I want to nail this to the door of every church... and synagogue... and mosque... and hospital... and school... and apartment building....
Still we are being told COVID is mild.
Everyone is at risk from #Longcovid.
#CleantheAir
How could the United States save ~$184 billion per year on outpatient prescription medications?
Use international reference pricing
@pnas.org
www.pnas.org/doi/10.1073/...
