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Patricia MacDowell (Human Being)

@actually-autistic

Autistic Advocate Filmmaker | Memoirist AI = Autistic Intelligence #Autistic #Neurodivergent #ADHD

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Latest posts by Patricia MacDowell (Human Being) @actually-autistic

Good analogy.

08.03.2026 03:02 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

The internal life of an AuDHD person is often described as driving a Ferrari with bicycle brakes.

08.03.2026 02:07 πŸ‘ 4 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Autistic perception can make ordinary moments feel unusually detailed.

08.03.2026 01:50 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Autism often isn’t a lack of awareness.
Sometimes it’s an excess of it.

08.03.2026 01:47 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Being late-diagnosed autistic can mean spending a lifetime wondering why things that seem effortless to others feel like advanced calculus.

08.03.2026 01:43 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

For many autistic individuals, silence isn’t awkward.
It’s breathable air.

08.03.2026 01:35 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Autism isn’t the absence of empathy.
It’s often empathy without the social choreography people expect it to follow.

08.03.2026 01:35 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

The cost of this is heavy: Autistic burnout. When you spend all your energy managing other people’s feelings, there’s nothing left for your own.

Breaking the cycle starts with realizing that your boundaries aren't an "inconvenience."

They are necessary.

08.03.2026 01:30 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

It might look like:
Saying "yes" when your sensory tank is at 0%

Apologizing for simply existing in a space

Smiling through physical or emotional discomfort

Shrinking your needs so you don't "inconvenience" others

08.03.2026 01:30 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Fawning is a way of "masking" to stay safe. If you’ve spent years being told your natural reactions are "too much" or "wrong," you learn to monitor everyone else’s emotions to pre-empt conflict.
It’s hyper-vigilance disguised as politeness.

08.03.2026 01:30 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

When you’re autistic, "people-pleasing" isn't just a personality trait. Often, it’s a trauma response called fawning.
It’s a survival strategy that develops when you learn that being yourself creates conflict.

08.03.2026 01:30 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Being autistic can mean growing up researching the world instead of simply living in it.

06.03.2026 01:48 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Being autistic often means spending years translating yourself
so other people can understand.

06.03.2026 01:35 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

A late autism diagnosis can make decades of life tilt into focus.

06.03.2026 01:32 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Being diagnosed autistic later in life feels like finding the missing page of your own story.

06.03.2026 01:30 πŸ‘ 3 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

So true. A late diagnosis can really reframe a lot of things in life.

06.03.2026 01:23 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

But the moment my words
earn something

the system that keeps me alive
tightens its grip.

Write.
Create.

But your penance
is rationed.

Earn.
But not enough

to stand

between survival
and permission.
_

06.03.2026 00:19 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Trying something different. A poem.

Red Tape

Two years ago
everything collapsed.

Now I write again.

Words returning
like breath
after being underwater too long.

Writing
is the only way
I know how to feel
like myself again.

And now
the work is being seen.

Published.
Paid.

06.03.2026 00:19 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

One of the most puzzling things about being diagnosed autistic in midlife isn’t the diagnosis.

It’s realizing the clues were there all along.

The real mystery is how something that fundamental can remain invisible for decades.

05.03.2026 23:44 πŸ‘ 3 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Late-diagnosed autism can reframe years of severe anxiety.

04.03.2026 01:25 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Many late-diagnosed autistic individuals were labeled β€œanxious.”

But what many of us experienced was not everyday anxiety.

It was a nervous system living in prolonged alarm.

04.03.2026 01:23 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

And when the reaction becomes extreme, when we are shaking, frozen, and terrified, this isn’t protection.
It is the alarm system overshooting massively.

04.03.2026 01:02 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Panic attacks are similar. The body is releasing the same chemistry it would release if there were a real life-threatening threat, but there isn’t one.

04.03.2026 01:02 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

That’s very different from saying it’s successfully protecting you.

Think about a smoke alarm that suddenly goes off at full volume when you make toast. The alarm isn’t protecting you from fire in that moment. It’s malfunctioning because it’s too sensitive.

04.03.2026 01:02 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

The alarm system that’s meant to react to real danger gets triggered when there isn’t any danger, and then it escalates far beyond what’s useful.

So the more honest way to say it would be something like:

The system that evolved to detect danger is firing when no danger is present.

04.03.2026 01:02 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

The phrase β€œprotecting you” is really a simplified way psychologists talk about it, but it doesn’t mean the system is doing something helpful in that moment. What it really means is that the system is misfiring.

04.03.2026 01:02 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

That doesn’t feel protective. It feels like your system has completely turned against you.

04.03.2026 01:02 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

When people say β€œyour nervous system is trying to protect you,” it can sound almost insulting when you’ve lived through severe panic. Because from the inside it feels like:

you’re frozen

you’re overwhelmed

you can’t think clearly

you can’t move

you feel like something terrible is happening

04.03.2026 01:02 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

When life becomes more complex, especially during adolescence, that sensitivity can sometimes evolve into anxiety or panic disorders.

04.03.2026 00:27 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

The larger picture

Autism does not mean that anxiety or panic were β€œcaused” by autism.

But it can help explain why some of us have always had nervous systems that are more sensitive, more reactive, and more easily overwhelmed.

04.03.2026 00:27 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0