Nigel Taylor's Avatar

Nigel Taylor

@silverlotheni

Calling for an NHS that’s there for Long COVID and ME

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16.12.2023
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Latest posts by Nigel Taylor @silverlotheni

Thank you so much for your inspiration, Lizzy.

04.03.2026 11:33 👍 2 🔁 0 💬 0 📌 0

Treasury plans depend on net migration being much higher than current policy will deliver or current Home Secretary willing to accept.

Something will have to give. Will Labour deliver tax rises and spending cuts just before an election to keep net imm close to zero? Or let imm rise to avert this?

01.03.2026 11:15 👍 136 🔁 61 💬 8 📌 2

🧵1/ Flu is surging again, & patterns look uncomfortably familiar. The lesson from covid remains unchanged: individual responsibility isn’t enough. We need systemic measures that make protective behaviours easy. @profstevegriffin.bsky.social Stephen Reicher & I offer some thoughts @bmj.com

16.12.2025 11:49 👍 317 🔁 124 💬 3 📌 17
Case Ref:

1 message

Beccy Cooper MP

@drbeccycooper.co.uk>

Mon, 6 Oct 2025 at 00:50

Dear

Thank you very much for contacting me about your concerns regarding access to Covid-19 vaccination for Clinically Vulnerable people. Please accept my apologies for the delay in responding to your email.

I am pleased to be able to confirm that the new Labour government is committed to strengthening our public health response and reducing health inequalities. Labour's recent commitments and statements have made clear that the principle of universal and fair access to vaccines particularly for those who are medically at-risk must be central to our national strategy.

In Parliament, Labour MPs have called for a rapid review of JCVI eligibility criteria and for the reinstatement of free Covid-19 vaccination for all Clinically Vulnerable people, in line with the existing approach to NHS flu vaccinations. Many have highlighted, as you do, that the logic and evidence for including all at-risk groups in annual booster rollouts are overwhelming, given the ongoing pandemic context and emergence of new variants.

Our party's manifesto commits to taking advice from clinicians and scientists and to working closely with NHS England to ensure that support for the most vulnerable is not withdrawn on cost grounds especially when this may lead to greater suffering and increased NHS pressure. There is widespread concern across Parliament about the risk of deepening health inequality and placing the cost burden of essential preventative care onto those least able to shoulder it.

Thank you again for taking the time to share your concerns so powerfully.

Best wishes,

Dr Beccy Cooper MP

Member of Parliament for Worth Parliamentary Office: House of C

Telephone: 01903 496390 betw

Clinically Vulnerable Families [LOGO]

Case Ref: 1 message Beccy Cooper MP @drbeccycooper.co.uk> Mon, 6 Oct 2025 at 00:50 Dear Thank you very much for contacting me about your concerns regarding access to Covid-19 vaccination for Clinically Vulnerable people. Please accept my apologies for the delay in responding to your email. I am pleased to be able to confirm that the new Labour government is committed to strengthening our public health response and reducing health inequalities. Labour's recent commitments and statements have made clear that the principle of universal and fair access to vaccines particularly for those who are medically at-risk must be central to our national strategy. In Parliament, Labour MPs have called for a rapid review of JCVI eligibility criteria and for the reinstatement of free Covid-19 vaccination for all Clinically Vulnerable people, in line with the existing approach to NHS flu vaccinations. Many have highlighted, as you do, that the logic and evidence for including all at-risk groups in annual booster rollouts are overwhelming, given the ongoing pandemic context and emergence of new variants. Our party's manifesto commits to taking advice from clinicians and scientists and to working closely with NHS England to ensure that support for the most vulnerable is not withdrawn on cost grounds especially when this may lead to greater suffering and increased NHS pressure. There is widespread concern across Parliament about the risk of deepening health inequality and placing the cost burden of essential preventative care onto those least able to shoulder it. Thank you again for taking the time to share your concerns so powerfully. Best wishes, Dr Beccy Cooper MP Member of Parliament for Worth Parliamentary Office: House of C Telephone: 01903 496390 betw Clinically Vulnerable Families [LOGO]

🚨 BREAKING: Labour MPs back calls to restore NHS Covid vaccines for all Clinically Vulnerable people!

After pressure from CVF members and supporters - a rapid U-turn appears to be underway.

WELL DONE!

#KeepCovidBoosters campaign a HUGE success!

08.10.2025 07:14 👍 237 🔁 98 💬 9 📌 10
Preview
Is it "Fit for the future"? The NHS 10-year plan and the social determinants of Health Labour released its 10-year NHS plan this week - in this post I have a look at whether and how it deals with the social determinants of health

A fairly upbeat message about the new NHS 10-year plan by @chrischirp.bsky.social

open.substack.com/pub/christin...

04.07.2025 17:55 👍 79 🔁 30 💬 6 📌 1
Preview
ACT NOW, CHANGE FOREVER On 9th July, thousands people from every corner of the UK will come to Westminster to tell our MPs: this is a moment for leadership that protects what matters most — our health, our nature, our commun...

ALERT‼️ Mass Lobby of Parliament on 9 July! Please come to ask your MP to
🌍 Fund communities hardest hit by climate crisis here & overseas
💸 Cut bills, back jobs, & secure greener, fairer future for all
🌳 Restore nature to create a safer, healthier future
@green-alliance.org.uk @oxfamgb.bsky.social

11.06.2025 16:16 👍 101 🔁 36 💬 1 📌 1
Preview
Trump administration to cut all USAID overseas roles and axe thousands of staff State department to take control of US foreign assistance programs in mass restructuring by 30 September

No room for supporting other countries with AID and medical infrastructure as Trump announces that all USAid international jobs to go - people already impacted by abrupt withdrawal of food aid, medicines incl HIV and TB medicine and vaccines.

10.06.2025 16:42 👍 23 🔁 21 💬 1 📌 0
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#pwME please help me with a brief anon survey.

DWP’s response to my FOI request👇🏽implied that v few #pwME access PIP DLA and many will lose this with the cuts. To act, I’d first like to understand what’s up… focussing on severe ME. Thank you!

forms.gle/tqnzRUAki1nU...

18.05.2025 12:03 👍 14 🔁 10 💬 10 📌 1
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And #pw LongCovid please also help me with a brief anon survey.

DWP’s response to my FOI request👇🏽implied that v few #pwLC access PIP DLA and many will lose this with the cuts. To act, I’d first like to understand what’s up… focussing on severe LC. 🙏🏽

forms.gle/YFoK9diPBBVf...

18.05.2025 12:10 👍 8 🔁 7 💬 0 📌 1
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Thank you @stephenctimms for meeting with #APPGME and #APPGLongCOVID and agreeing to my request to speak to @DHSCgovuk to fund research that would enable #pwME to get better, go to work, and come off benefits. Wins all round! #FundThePlan

16.05.2025 12:11 👍 19 🔁 8 💬 1 📌 1
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I used the opportunity of DWP questions on #WorldMEDay to ask that Liz Kendall talk to DHSC to make funds available for research so that #pwME could do what they want more than anything which is to live a normal life, go to work, and not have to try to survive on benefits. Win-win. #FundThePlan

13.05.2025 08:02 👍 49 🔁 22 💬 5 📌 2

An important message on #WorldMEDay.

We’re standing with 27 other orgs in solidarity with the UK’s ME community

#pwME: We stand with you in the face of indescribable loneliness, pain & suffering to deliver a simple message to the government

Now is the time for action

Link to statement ⬇️

#MECFS

12.05.2025 08:35 👍 13 🔁 9 💬 0 📌 1

Its effective and well-informed parliamentary engagement tells me that @spotlightcorruption.org punches above its weight. Recommended.

09.05.2025 08:38 👍 3 🔁 4 💬 1 📌 0
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So delighted that all 72 LibDem MPs signed this letter to @rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social asking the govt to back the ME/CFS Delivery Plan with the resources it deserves. May this be a huge encouragement to the ME community and the start of meaningful change. #WorldMEDay

08.05.2025 16:32 👍 147 🔁 57 💬 11 📌 17
Blue poster with white text reading “Survey: Have your say on welfare benefits reform. Calling people with Long Covid and ME/CFS.” Logos at the bottom: Long Covid Support, Action for ME, ME Local Groups Network, and #ThereForME.

Blue poster with white text reading “Survey: Have your say on welfare benefits reform. Calling people with Long Covid and ME/CFS.” Logos at the bottom: Long Covid Support, Action for ME, ME Local Groups Network, and #ThereForME.

1/ The UK government is proposing significant changes to welfare benefits.

These reforms could profoundly impact individuals with Long Covid and ME/CFS.

We've launched a survey to gather your insight 👇

16.04.2025 11:00 👍 7 🔁 5 💬 1 📌 1
Blossom growing in the hedgerows.

Blossom growing in the hedgerows.

Good morning ☕️
Beautiful spring blossom
Happy Friday everyone 🔆🌿

#BlossomWatch
#FlowersOnFriday
#FlowerPhotography
@thephotohour.bsky.social

11.04.2025 08:52 👍 47 🔁 2 💬 2 📌 1
Another sunny day with blossom lining either side of the pathway hedgerows.

Another sunny day with blossom lining either side of the pathway hedgerows.

Good morning ☕️

Such a fantastic view on another beautifully sunny day and the pathway was looking particularly summery with the blossom lining the way on either side. Have a wonderful weekend everyone!
🍃💙🌿🍃💙🌿🍃💙🍃

#Weekend #Wildflowers
#BlossomWatch #Nature
@thephotohour.bsky.social

12.04.2025 10:14 👍 50 🔁 2 💬 2 📌 0
🌿 Steve Reed MP on Climate and Nature Bill | Environmental Audit Committee, 24 March 2025
🌿 Steve Reed MP on Climate and Nature Bill | Environmental Audit Committee, 24 March 2025 YouTube video by Zero Hour: Climate and Nature Bill

🌍 Steve Reed wanted the Climate & Nature Bill to proceed. Ed Miliband promised to work on the #CANBill's objectives. Mary Creagh pledged to deliver “binding nature commitments”.

🚨 Labour Ministers are speaking out.

⏳ What’s the delay for new, joined-up, science-led climate and nature legislation?

25.03.2025 12:35 👍 111 🔁 133 💬 16 📌 12

Remember that there is nothing inevitable about this - it’s a political choice. And the fact that it’s a Labour government making that choice frankly beggars belief. Did Labour voters really vote for *this*?👇

26.03.2025 18:39 👍 454 🔁 150 💬 20 📌 6
Preview
Changes To Personal Independence Payment (PIP) A detailed analysis of how the Government's proposed changes to Personal Independence Payment (PIP) will affect disabled people

The Government have published a consultation paper about changes proposed to disability benefits, One change is to make it far more difficult to qualify for Personal Independence Payment (PIP). You can read our first analysis at the link, or in summary below. (1/5)

buds.org.uk/changes-to-p...

18.03.2025 18:07 👍 13 🔁 6 💬 2 📌 2
Preview
Changes To Personal Independence Payment (PIP) A detailed analysis of how the Government's proposed changes to Personal Independence Payment (PIP) will affect disabled people

We've published a detailed expert analysis of the disabled people who are likely to lose part of their disability benefit if the Government's plans go through. The scale of loss is brutal. Read more at the link.

buds.org.uk/changes-to-p...

18.03.2025 20:25 👍 10 🔁 4 💬 0 📌 1

On #LongCovidAwarenessDay thinking of all the families whose lives have been wrecked by covid. 🫂

A plea to those in power to reduce the prevalence of covid and long covid - clean air, airborne infection control in healthcare, stop encouraging mixing when contagious, investment in treatments.

15.03.2025 22:16 👍 8 🔁 3 💬 1 📌 0

The New York Times is the first to put out comprehensive estimates on the cost of a year without U.S.A.I.D. and they’re higher than I thought:
- 1.65 million deaths from AIDS
- 500,000 from lack of vaccines
- 550,000 from lack of food aid
- 290,000 from malaria
- 310,000 from TB

15.03.2025 16:42 👍 9556 🔁 5343 💬 232 📌 568
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Two steps forward, one step back. For #LongCOVID awareness day today I had the honor of joining thousands of other New Yorkers in a peaceful protest to stand against many of the current administration’s recent damaging and thoughtless policies and executive orders. Let there 1/

15.03.2025 21:56 👍 167 🔁 42 💬 7 📌 2
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🧵Censor, purge, defund - how Trump is following the authoritarian playbook on science & universities.

This isn't chaos - it's deliberate & well-established methods.

I've mapped 40 actions into 3 categories covering attacks on science, attacks on universities and international collaboration.

1/16

12.03.2025 18:17 👍 937 🔁 512 💬 28 📌 25

So excited to be launching this video today!

A big thanks to everyone starring in it - including @binitakane.bsky.social @oonaghcousins.bsky.social @tessamunt.bsky.social 👏👏👏

12.03.2025 09:09 👍 21 🔁 13 💬 1 📌 1
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We’ve been so moved seeing the #FundThePlan videos over the past few weeks.

Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.

We’d love your help making some noise with it 🙏

12.03.2025 09:04 👍 58 🔁 33 💬 2 📌 11

Thanks so much, Esther. And your points are so appropriate and timely. 👍🏾

08.03.2025 10:16 👍 1 🔁 0 💬 1 📌 0
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Great question from @JoPlatt.bsky.social Chair APPG ME on which I serve, highlighting how #ME disproportionately affects women. As we celebrate #InternationalWomensDay we’re looking to Dept Health Social Care for an ambitious and well funded Delivery Plan for ME. #ThereForME @actionforme.bsky.social

08.03.2025 09:44 👍 24 🔁 8 💬 3 📌 3

Thanks for sharing such important data. What is the source?

08.03.2025 09:51 👍 1 🔁 0 💬 1 📌 0