We’re delighted to share that the Sickle Cell Society Exhibition — Our Journey, Our Story is now open.
📅 11 Mar – 11 Apr 2026
📍 Royal London Hospital, Inclusion Hub (Level 14)
🕐 Mon–Fri, 1–4pm
We look forward to welcoming you.
#SickleCell #SickleCellSociety #Exhibition
We’re hiring a Part-time Assistant Finance Officer (14 hrs/week) to support our Finance & Admin Manager.
📅 Apply by 21 April 2026
📧 applications@sicklecellsociety.org
🔗 buff.ly/i7Wp3i5
#SickleCellSociety #CharityJobs #FinanceJobs #Hiring
Please see our official statement regarding the Same Day Emergency Care Unit at The Royal London Hospital and the latest update following discussions with commissioners.
#SickleCellSociety #SickleCell #PatientVoice #HealthEquity
Breaking news: We have been in discussions with commissioners regarding the Same Day Emergency Care Unit at The Royal London Hospital, and as a result, it will reopen.
Full statement to follow.
#SickleCell #SickleCellSociety #PatientVoice #HealthEquity #NHS
Thank you to the Women’s Fellowship of the Anglican Igbo Church of the Holy Trinity for their generous £250 donation, kindly delivered to our office on 25 Feb.
We’re grateful for your support of the sickle cell community.
#SickleCellSociety #ThankYou #CommunitySupport
Last year we asked families and volunteers what they thought of our Sickle Cell Family Retreat — here’s what they said.
Registration for 2026 is now open. Secure your place today:
www.sicklecellsociety.org/childrens-ac...
#SickleCell #FamilySupport #ApplyNow
Happy #RareDiseaseDay. Sickle cell is one of the fastest growing genetic conditions in the UK— yet it remains under-resourced. We’re joining Genetic Alliance UK to call for equity in rare diseases. See powerful artwork by Rose Matheson capturing what equity means. #SickleCell
We’re honoured to bring back Our Journey, Our Story: History & Memory of Sickle Cell Anaemia in Britain 1950–2020.11 Mar–11 Apr 2026 at The Royal London Hospital Mon–Fri, 1–4pm With thanks to Barts Health, Black Cultural Archives & Wellcome Collection. #SickleCell
Thank you to Core Sports UK for hosting a charity football match in Nottingham on 1 March 2026 (4pm KO) in support of the Sickle Cell Society. Donations from the event will help support people living with sickle cell. Fundraiser linked here 🔗 buff.ly/6kAbrXC
#SickleCellSociety #CharityFootball
Registration is now OPEN for our 2026 Sickle Cell Family Retreat 🎉A FREE weekend away for families with a child (6–15) living with sickle cell — full of learning, adventure and connection. 📅 31 Jul–2 Aug 2026.
Apply now: buff.ly/D8v5PUe
#SickleCell #FamilySupport
Thank you to the Human Race Foundation for inviting our CEO John James to their fundraising charity ball on Saturday. We’re grateful for over a decade of continued support — and for a brilliant evening of community, entertainment and fundraising.
#SickleCellSociety #Community
Ramadan Mubarak to all who observe 🌙
From the Sickle Cell Society team, we wish you a peaceful and blessed month filled with reflection, strength and togetherness.
#RamadanMubarak #Ramadan2026 #SickleCellSociety #Community #Wellbeing
📢 Launching today (17 Feb): our Welfare & Benefits Support Service with Citizens Advice. Free support for people with sickle cell in East London & Essex. Self-refer by phone, email or QR.
#SickleCellSupport #EastLondon #Essex
Valentine’s Day is coming—let’s talk love, health & the future 💗Hosted by Kesewaa Browne, our latest podcast explores screening & pregnancy planning for sickle cell and thalassaemia, with NHS, UKTS & lived experience voices. Listen now: www.sicklecellsociety.org/the-sickle-c... #SickleCellPodcast
The HALO study exploring long-term health and wellbeing for people with sickle cell — was recently featured by BBC Yorkshire, highlighting the power of lived experience research. If you live in the North of England, you may be invited to take part. Read more: buff.ly/31r8M6h Scan the QR for more.
📢 Last week to apply!
We’re hiring a Community Support Worker Lead in North East London to support people living with sickle cell and their families.
📅 Apply by 11 Feb 2026
🔗 Link in bio
#SickleCellSociety #Hiring #CharityJobs
We’re recruiting a North West Programme Manager. After extending our Children & Young People’s Peer Mentoring Programme to Manchester, Liverpool & Sheffield a year ago, we’re looking for someone to lead delivery across the region. Apply here:
buff.ly/joA8oIR #SickleCell
Aged 13–24 with sickle cell (or parent/carer)? Join a Healthcare Transition Advisory Group with Manchester & Nottingham researchers + Sickle Cell Society.
Compensation provided. Contact: rachele.salvatelli@manchester.ac.uk
#SickleCell #YouthVoice
Barts Health has shared an update on the SDEC pilot for sickle cell patients at The Royal London Hospital. We know concerns remain and will continue to listen.
Read via our website:
www.sicklecellsociety.org/royal-london...
#SickleCell #NHS
In Dec 2025, our mentors took our mentees to Spider-Man in Concert 🕷️🎶 An unforgettable night with a stunning live orchestra — and we even met some Spider-Verse Spider-Men! Huge thanks to Hammersmith Apollo for helping make it so magical ✨#SickleCellSociety #PeerToPeerMentoring
Living with sickle cell in the North East of England?
You may be invited to take part in the HALO survey, sharing your lived experience to help shape better care and support services. Find out more: buff.ly/spOtCqJ
#SickleCell #PatientVoice #NorthEastEngland #HealthEquity
We welcome the SMC decision to recommend exa-cel (Casgevy) for severe sickle cell disorder in Scotland.
For more information and to submit your expression of interest for our gene therapy webinars, visit:
www.sicklecellsociety.org/gene-therapy...
#SickleCell #Casgevy #GeneTherapy #Scotland
Legacies of Sickle Cell takes place at the Wellcome Collection on 24 Jan 2026 (1–2pm). Guest speakers include Alinta Sara and Laurel Brumant-Palmer. The venue is fully accessible. Info/tickets + SCS archive: buff.ly/pFG3Nko
buff.ly/u4MS227
#SickleCell #WellcomeCollection #SickleCellSociety
📢 We’re now hiring: Community Support Worker Lead (deadline extended) North East London. Lead delivery of our Home from Hospital project supporting people living with sickle cell and their families. 📅 Apply by 11th Feb 2026 buff.ly/EG3LNJj #SickleCellSociety #Hiring
BBC One’s Sort Your Life Out is back in 2026 and looking for households across the UK where clutter has taken over.
Stacey Solomon and the team help families declutter and transform their homes in just one week.
Apply now: buff.ly/xbq1YHm 🏠🧼✨
Children’s Sickle Cell Education & Play Session - Mon 16 Feb ⏰ 10am–1pm📍 Mary Sheridan Centre, SE11 For children aged 5–10 with sickle cell living in Lambeth, Lewisham or Southwark. Spaces are limited. 📧 Register: gstt.selcommunitysicklemdt@nhs.net #SickleCell #ChildrensHealth
Happy New Year! 🎉
In our new video, CEO John James breaks down what sickle cell is as we start 2026 with renewed awareness.
A reminder: blood donation remains vital for people living with sickle cell.
For updates, follow our GBSL page. ❤️🩸
#SickleCellSociety #GBSL
Happy New Year from the Sickle Cell Society ✨
Thank you to everyone who supports and stands with our community. We look forward to continuing this work together in the year ahead.
#SickleCellSociety #HappyNewYear #SickleCellCommunity
Our Helpline hours will be limited over the Christmas and New Year period. Please check the image for full details on opening times.
Thank you for your patience during this time. For urgent support, contact us at info@sicklecellsociety.org
#SickleCellSociety #SupportServices #CommunitySupport
Happy Holidays from our CEO and the whole SCS team! ❤️
Thank you to all staff, volunteers & supporters for your hard work in 2025. We’re excited for everything coming in 2026… 👀
#SickleCellSociety #HappyHolidays
