For people with ME, energy must be carefully rationed and I am incredibly grateful to those who chose to spend some of this energy sharing their experiences with me by participating in my PhD research. I will continue to advocate for your stories to be heard.
#SevereME #SevereMEMonth #MEAwareness
Advocacy must continue to ensure that the debilitating and widespread impacts of ME are recognised in Australian healthcare policies. Importantly, vital services must be readily accessible for people with severe ME who are too unwell to present to healthcare centres.
#SevereME #SevereMEMonth #pwME
The profound, disabling impacts of living with ME are often invisible, both due to the illness’ symptoms and isolating nature. This is magnified for those living with severe forms of ME who are house- or bed-bound.
#SevereME #SevereMECFS #SevereMEMonth #MECFS #MECFSAwareness #MEMedia #MEAction
Although Severe Myalgic Encephalomyelitis (ME) Awareness Month is coming to a close, people living with this complex chronic illness will continue to be impacted by its challenges and burdens.
#SevereME #SevereMECFS #SevereMEMonth #MECFS #MyalgicEncephalomyelitis #pwMECFS #pwME #MEAwareness
The lived experiences of #MECFS consumers have directly informed my PhD research. I am sincerely thankful to all the people with ME/CFS from whom I have had the opportunity to learn throughout my PhD candidature and who have made this research possible.
#MEAwarenessDay #WorldMEDay #pwMECFS #pwME
Improved recognition of the lived experiences of people with #MECFS is imperative to meet their care needs and maximise health outcomes. This is an ongoing public health challenge and International #MECFSAwarenessDay, in particular, is an opportunity to advocate for these necessary changes.
#pwME
People with #MECFS have significantly poorer quality of life across all aspects of health compared with healthy people. Yet, the symptoms experienced by people with ME/CFS are often dismissed and the condition is poorly recognised in healthcare policies.
#MEAwarenessDay #WorldMEDay #pwMECFS #pwME
May 12th marks International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Day. #MECFS is a chronic, multi-systemic illness that imposes profound impairments on functioning, which restrict people with the condition from participating in typical daily life.
#MEAwarenessDay
These findings further validate the real and physically disabling nature of #LongCOVID and #MECFS. This reiterates the need for access to multidisciplinary care and support services for all people with Long COVID and people with ME/CFS to manage these debilitating conditions.
#pwLC #pwMECFS #pwME
In this review of 16 studies, people with Long COVID and people with ME/CFS similarly experienced a pronounced burden on physical health and the ability to participate in typical daily activities, including work.
#LongCOVID #pwLC #LongCOVIDAwareness #MECFS #pwMECFS #pwME #MECFSAwareness
Long COVID and ME/CFS were associated with significant reductions in all aspects of quality of life in our recent systematic review at the National Centre for Neuroimmunology and Emerging Diseases.
Read the full article here: doi.org/10.1186/s129...
#LongCOVID #MECFS #pwLC #pwMECFS #pwME
People with ME/CFS and people with PCC are often precluded from accessing necessary disability and social support services. These unmet care needs exacerbate the existing illness burdens
translational-medicine.biomedcentral.com/articles/10....
Source:
link.springer.com/article/10.1...
Illness presentation and quality of life in myalgic encephalomyelitis/chronic fatigue syndrome and post COVID-19 condition: a pilot Australian cross-sectional study
ME/CFS and Long COVID severely reduce quality of life, affecting pain, physical health, and daily function.
A review of 16 studies urges better disability support to address these chronic, disabling conditions.
translational-medicine.biomedcentral.com/articles/10....
Screenshot of abstract
Health-related quality of life in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome & Post COVID-19 Condition: a systematic review
translational-medicine.biomedcentral.com/articles/10....
"ME/CFS and PCC have similar, profound impacts on HRQoL [health-related quality of life]"
#LongCovid #MEcfs
I am incredibly grateful to have been able to learn directly from people with Long COVID throughout my PhD. Thank you to all those who have been a part of my PhD studies for sharing your stories with me and for making this research possible.
#LongCOVID #LongCOVIDAwarenessDay #pwLC
March 15th marks International Long COVID Awareness Day. Today is a reminder of the ongoing need for the profound impacts of Long COVID on health and quality of life to be recognised in healthcare policy and practice.
#LongCOVID #LongCOVIDAwarenessDay #pwLC
