Sarah's Avatar

Sarah

@sarahlizzylou

She/her, Physio student on hold since Oct 2021 LongCovid/ME πŸ‡¬πŸ‡§ Learning to live with Cognitive Dysfunction 🧠 #FBLC #pwME My Twitter handle was @SarahLizzyLou

818
Followers
869
Following
155
Posts
04.10.2023
Joined
Posts Following

Latest posts by Sarah @sarahlizzylou

Preview
Scrap the Barriers Everyone deserves a secure future, no matter where we're from. But right now, thousands of migrants like us are being held back, forced to wait over 10 years for the right to stay permanently in the p...

(UK)
Everyone wants a life that can move forward. But right now, thousands of people up and down the country are forced to wait 10 years for the right to permanently stay in the place they already call home. Scrap the Barriers. Join me and sign the petition now.

act.praxis.org.uk/scrap-the-ba...

04.02.2026 18:50 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Post image

Amazing! Way to go Minneapolis!

23.01.2026 23:53 πŸ‘ 18408 πŸ” 3836 πŸ’¬ 260 πŸ“Œ 164

Thank you πŸ’™

13.12.2025 02:59 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Post image

Made it through my first term as a part-time student with LC/ME. Happy to report no major crashes and I’m pretty sure I passed my exams πŸŽ‰πŸ₯°
#FBLC

13.12.2025 00:58 πŸ‘ 3 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Preview
BREAKING: Spain joins the Hague Group to hold Israel accountable over Gaza Comprising 34 countries, Spain has announced its intention to join the Hague Group to hold Israeli occupation accountable for genocide

BREAKING: Spain joins the Hague Group to hold Israel accountable over Gaza

In an unprecedented move, Spain has announced its intention to join the Hague Group to hold Israeli occupation accountable for genocide
www.thecanary.co/global/world...

28.09.2025 16:56 πŸ‘ 109 πŸ” 42 πŸ’¬ 0 πŸ“Œ 1

Try both and see which one you like :)

22.09.2025 16:26 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I am overall. There are a few things I don’t like, for example it struggles on sideways sloping pavements and I’ve skidded a few times there. Also the tires are hard plastic and not the grippiest.
But cost for function, it’s ok xx

22.09.2025 09:27 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

They are really helpful. Good luck ❀️

22.09.2025 09:26 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

I contacted the charity called Access Your Life to ask about recs. After some discussion, they recommended Celtic Therapies & Rehab who bring chairs to your home to try out.
Mine is a Quickie Q50 and it’s 16kg. It does fit in a car boot. Xx

22.09.2025 06:58 πŸ‘ 1 πŸ” 0 πŸ’¬ 2 πŸ“Œ 0

Disability equity should be Iron Clad πŸ’ͺ: Treating everyone appropriately, fairly and giving them the same rights and opportunities for πŸ₯ healthy outcomes.
#NoToDogma #NoToStigma

#pwME
I’m exited about πŸ’™πŸ™:
#Justice4ME
Donate to legal campaign: Justice4ME.uk

16.09.2025 00:03 πŸ‘ 4 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Post image

Yesterday was my first day back at uni after 4yrs off sick.

I felt good after, but still took the evening off to rest up.

Everyone in class was lovely and the lecturers all gave me a hug, welcoming me back.

Partner sent me to bed early and made dinner. No PEM so far πŸ™Œ

#LongCovidDiaries #FBLC

16.09.2025 09:31 πŸ‘ 11 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

This is far worse than I ever imagined. Crimes against humanity 😒

14.09.2025 20:50 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Sorry for the late reply. I’ve been resting after the big move to uni.
The electric wheelchair is an absolute game changer.

I’m sorry to hear you’ve plateaued in terms of severity. I really hope you see some improvements soon. It’s so unfair. β€οΈβ€πŸ©Ή

14.09.2025 20:44 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Brain stuff was my worst set of symptoms. LDN really improved a lot of them for me. I’m very lucky, I know it doesn’t work for everyone. And tbh when I was severe I didn’t tolerate it at all. I’m not sure what changed. I feel like so much of this is down to luck and it’s so unfair.

14.09.2025 20:41 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Sorry for the late reply. Been saving spoons while resting after the big move to uni.

Sorry to hear about those big crashes and the plateau. Facial pain sounds really sucky.

I hope you see some improvement soon β€οΈβ€πŸ©Ή

14.09.2025 20:39 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

πŸ’™

11.09.2025 22:06 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Thank Gary! How you doing mate? It’s been a while since I’ve seen your tweets. Hope you’re ok

11.09.2025 22:06 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Thanks Fran πŸ’•
Not spoken to you on Twitter for a while. Have you migrated here now?
Hope you are doing well x

11.09.2025 22:05 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Preview
Cops urged to investigate Israeli president Isaac Herzog for war crimes on his visit to the UK Diplomatic immunity should not stop police from interviewing Isaac Herzog and otherwise investigating him over war crimes

Cops urged to investigate Israeli president Isaac Herzog for war crimes on his visit to the UK

Diplomatic immunity should not stop police from interviewing Isaac Herzog and otherwise investigating him over war crimes, the @icjp.bsky.social said
www.thecanary.co/uk/news/2025...

09.09.2025 09:16 πŸ‘ 80 πŸ” 39 πŸ’¬ 5 πŸ“Œ 2

Thank you Nele πŸ’™πŸ’™πŸ’™

09.09.2025 12:10 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Thank you πŸ₯°

09.09.2025 12:10 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Super excited. After almost four years of Long Covid, I’m returning to university in three days time to finish my degree.

On a part-time basis as I’m still very ill, but it’s a huge milestone.

Wish me luck

09.09.2025 10:14 πŸ‘ 64 πŸ” 1 πŸ’¬ 5 πŸ“Œ 0
Preview
Israel is robbing disabled people in Gaza of their most basic rights The health sector in Gaza is now unable to meet anything more than 1% of the needs of disabled people, thanks to Israel

Israel is robbing disabled people in Gaza of their most basic rights

The health sector in Gaza is now unable to meet anything more than 1% of the needs of disabled people, thanks to Israel
www.thecanary.co/global/world...

03.09.2025 09:47 πŸ‘ 19 πŸ” 15 πŸ’¬ 0 πŸ“Œ 1

Glad the DeCode ME study found some useful stuff

06.08.2025 20:31 πŸ‘ 4 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
ME linked to your genetics - early study indicates
ME linked to your genetics - early study indicates YouTube video by Channel 4 News

The Channel 4 News TV article:

youtu.be/DWCF1_-0yP0

#pwME

06.08.2025 20:28 πŸ‘ 9 πŸ” 2 πŸ’¬ 1 πŸ“Œ 0
Post image

3 episodes in and I don’t think I’m gonna make it πŸ˜‚

12.06.2025 17:26 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Such good news!

11.06.2025 23:47 πŸ‘ 23 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

But go on Labour, keep messing around with immigration and cutting disability welfare to appease a fascist minority and keep pretending all this doesn’t equate to shooting yourselves and British people in the foot.

4/4

11.06.2025 12:44 πŸ‘ 3 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

new jobs for the uni disability service have been advertised.

The team was already stretched and now I fear the service won’t be in a fit state to properly support disabled students.

This is just one example of how the rise of right-wing xenophobia in the UK is harmful. 3/4

11.06.2025 12:44 πŸ‘ 2 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0

…of international students able to study here. This shortfall means the uni has much less money and therefore has to layoff staff in every department.
It’s unclear what the new disability team will look like. But so far, only one staff member is remaining and no 2/4

11.06.2025 12:44 πŸ‘ 2 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0