Superman wants to make the world better. So did Brian Borden. And he still is. pigeon605.com/beloved-libr...
27.01.2026 03:15
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Superman wants to make the world better. So did Brian Borden. And he still is. pigeon605.com/beloved-libr...
Text on image says 'Amplify Voices!'. The image has multi colors of pink, purple & blue speech bubbles surrounding a silver microphone.
Amplifying the voices of people with rare diseases & #disabilities isn’t charity—it’s change. Every voice shared helps shape more inclusive schools, workplaces & public spaces. When we listen, we learn. When we include, we grow.
How can you help amplify others this week?
#DisabilityInclusion
Text says ‘Visibility Creates Belonging!’ 3 females sitting in wheelchairs in the lobby of an event.
Representation matters!
When people with rare diseases and disabilities are seen and heard, communities grow stronger. Visibility changes perceptions—and opens doors to empathy, understanding and inclusion.
#RepresentationMatters #VisibilityCreatesChange #InclusionIsAlwaysIn
Thank you! Yes, make it so others can see themselves! Right lemonade is so refreshing.
Sometimes the best therapy is a pen and paper—or in this case, a keyboard. Took some time to write and reflect today.
See blog here: www.kendragottsleben.com/post/living-...
#RareDisease #Disability
So fun to share!
Did you know our Founder and Executive Director walked in a New York Fashion Show back in 2016 with Runway of Dreams? That experience inspired her to bring a similar event to Sioux Falls, South Dakota.
She had never seen anyone with her rare disease walk a runway…
So she became the first.
Take 30 Seconds to Make a Difference!
Please write in by Sept. 20 to speak out against proposed changes that will impact hundreds of children across our state who receive specialized services.
At end of article, there are 2 ways shared on how to share comments.
www.dakotanewsnow.com/2025/09/09/s...
My conscience tells me to do what's necessary to save lives and get vaccinated.
[Video Description] Clips of Kendra from the past few years.
My journey hasn’t been easy, but it’s mine—filled with moments of joy, connection & quiet strength. As I approach 41, I’m not just surviving; I’m living authentically—grateful for every chapter so far & hopeful for the ones still to come.
Turning 41 in a few months feels like both a milestone & a miracle. Living with a rare disease has taught me resilience, patience & how to celebrate the small victories most people never notice.
Dark teal background and at the top, there is a laurel with text that says ‘Rare by Design presents THE FILM FESTIVAL 2025.’ There is a white background with text says 'The Rare by Design Film Festival is a powerful reminder to me that every individual's uniqueness deserves to be seen, valued, and celebrated.' There is a small circle image of Sara next to text that says 'SARA TEBBEN Rare by Design Board Member'.
Meet Sara Tebben, one of our incredible committee members! Chances are you have already met, as Sara is heavily involved in the community, creating connections & spreading joy everywhere she goes! We’re so grateful to have her on our team. ☺️
#TheFilmFestival #RBDTheFilmFestival #InclusionIsAlwaysIn
For kids with ultra-rare diseases like #MPS and #ML, the biggest barrier isn’t a lack of treatments, it’s an outdated FDA process built for large populations. However, many kids will never see these results due to lengthy FDA approval timelines and delays. www.biocentury.com/article/6566...
So excited! Grab your ticket today!
Thank you to Sioux Falls Simplified
for sharing about the ADA Sioux Falls’ upcoming festival and events honor #DisabilityPrideMonth! www.sfsimplified.com/how-sioux-fa...
Thank you to KELOland Living
for having Tana Zwart & Vicki Stewart on this week to talk about the impact of the ADA and all of the ADA celebration activities happening this month! Check out the feature here. Your feature helps move the needle forward! www.keloland.com/video/ada-35...
“As a young person and wheelchair user in the 1970s, I was carried into restaurants, could not ride the public bus with friends, and was forced to crawl on the floor to use public restrooms because there wasn’t any meaningful accessibility.”
www.chicagobusiness.com/elevate/disa...
Grab your tickets today!
"In 1943, a study of 100 companies compared the productivity of disabled and non-disabled workers. The results were groundbreaking: Disabled employees performed as well as, or better than, their non-disabled peers across all evaluated categories." www.pbs.org/wgbh/america...
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For the past 2 yrs, we’ve celebrated Disability Empowerment Month with impactful outdoor billboard campaigns across Sioux Falls, SD, highlighting the power of disability visibility. This year, we’re proud to continue the tradition—with a fresh addition. Alongside our outdoor billboards, we’ve
As Disability Pride Month is underway while basic human rights continue to be dismantled, joy isn’t frivolous. It's essential.
emilyladau.substack.com/p/disability...
Act Now to Protect Medicaid - Take it to The House! nacdd.quorum.us/campaign/132...
As you scroll this month, I hope you come across images of the Disability Pride flag.
In 2022, The Accessible Stall (the podcast I co-host) got the scoop from its inventor, Ann Magill.
Learn more about the flag and the evolution of its design.
🩶❤️💛🤍🩵💚
www.theaccessiblestall.com/episode-106-...
URGENT: #Medicaid Cuts in the House-Passed Reconciliation Bill Put People with Disabilities at Risk!
The bill moves to the Senate, and we need your help to ensure that it doesn't become law!
nacdd.quorum.us/campaign/127...
The South Dakota Council on Developmental Disabilities (SDCDD) is in the process of creating their State Plan for 2027-2031, which will outline the direction of the Council's work for the next five years. Please consider sharing your input. www.surveymonkey.com/r/SDCDDSurve...
Only 2 weeks left to send us your films!
Committee member Max Hofer is here to answer questions on how to submit.
Still have questions? Comment below & we’ll answer. Follow us for more!
See submission link: filmfreeway.com/TheFilmFesti...
#TheFilmFestival #RBDTheFilmFestival #InclusionIsAlwaysIn
A hand holding a mug with text that says 'Inclusion Is Always In.' The person holding a mug is sitting in a lounger, and there is a dog in between the person's legs. Patio railing is in front of them with a swing set on the other side of patio railing.
One way we’re honoring the #AmericansWithDisabilitiesAct, which was signed into law in July of 1990, is by having a sale in our Bonfire Store! Shop until July 2 for your 15% discount. At checkout, use code ADA15.
The mug in the photo is from our store! Shop here: www.bonfire.com/store/rare-b...
Dark teal background with 5 white stars. Text says 'Having, Rarely Have You Seen A Fox Like This, screen at Rare by Design was such a great opportunity. They made me feel so connected even though I wasn't able to attend in person. They communicated with me through every turn and made a concerted effort to make me feel special. I would highly recommend this festival." -Claudia Parker, Filmmaker.’ A laurel with text that says ‘Rare by Design presents THE FILM FESTIVAL 2025.’
Thanks for the kind words, Claudia! 😊
Remember that submissions are OPEN! Tap the link to submit. filmfreeway.com/TheFilmFesti...
#TheFilmFestival #RBDTheFilmFestival #InclusionIsAlwaysIn
