Kristen Honey

Open-Government Nonprofits Are Dying Off Just When They’re Needed Most Why it’s happening and what can be done about it.

OpenSecrets is the latest in a series of open-government groups to decline or die off over the last decade—a trend that bodes ill for the health of our politics. ICYMI Daniel Schuman counts the bodies, and looks at revival methods: www.thebulwark.com/p/open-gover...

Palisades and Eaton Fires Are Fully Contained The Palisades and Eaton fires, two of the deadliest and most destructive wildfires in California history, reached 100 percent containment more than three weeks after they began.

A little good news. Three weeks later.
The Los Angeles Wildfires Are Fully Contained www.nytimes.com/2025/02/01/u...

Count me in if Exec Branch govies can make the cut. Thx! #OpenGov

Lyme arthritis: linking infection, inflammation and autoimmunity - Nature Reviews Rheumatology Lyme arthritis, a manifestation of Lyme disease, can sometimes persist in a chronic post-infectious disease. In this Review, the authors argue that post-infectious Lyme arthritis could act as a model ...

First post: our review on Lyme arthritis lays out how we think autoimmunity is triggered by Borrelia burgdorferi infection.

www.nature.com/articles/s41...

Hey @julierehmeyer.bsky.social we’re hosting a town hall Tuesday for trapped patient communities on Twitter and FB.

If there are more invite codes lmk if you can join us. Thank you so much for the work you have done 🙏

I’d love to talk.

The Light Collective Virtual Town Hall event invitation. "Advancing the rights of online patient communities." Being held October 17th from 3:30pm to 5pm PST. Artwork shows logos from organizations focused on patient advocacy including GRASP, Breast Cancer Hawaii, Well Beyond Ordinary, Everylife Foundation, For the Breast of Us, People With Empathy, Tigerlily Foundation, Patient Advocate Foundation, Open Notes, Health Hats, Project Life, Looms for Lupus, Alive and Kick'n, Labalaba Foundation, Generation Patient, YSC, BISA, A Fresh Chapter, Here for the Girls, and ACE.

My 'what I did with my summer' 2023...joined other #advocates to advance awareness of the importance of digital rights for online #patient communities through @lightcollective.bsky.social Register for the October 17th Virtual Town Hall 330-5pm PST today to learn more us02web.zoom.us/webinar/regi...

Amazing ❤️

Shoutout backatcha #BeLikeLight❣️ @downing.bsky.social @lightcollective.bsky.social

Care about data privacy, patient rights, and data ethics? Then follow Andrea & the Light Collective #BeLikeLight #OpenData #OpenScience #HIPAA #PatientAsCEO #PatientPower

👋🤗👋

finally our manuscript describing the weird and wonderful binding mode of a bacterial histone is online. www.nature.com/articles/s41...

You nailed it: Power in numbers. Power in purpose.

This review article provides an overview on diagnosis, evaluation, and management strategies for ME/CFS. Physicians can earn CME credits by reading the article and completing an online test and evaluation afterwards.

www.mayoclinicproceedings.org/article/S002...

#MEcfs #CFS #MyalgicE #PwME

Thanks for the shoutout, Julie, and thank *YOU* for uniting folks here for chronic illness, disability, and invisible illness. Power in numbers. Power in purpose. Much work remains, onward! #AllOne

A circular diagram listing PEM symptoms

A diagram of the human body listing symptoms of Me

We’re particularly proud of the diagrams featured in this paper, which include a review of common symptoms of #MECFS and of PEM, its pathognomonic symptom. (4/)

Concise clinical reviews are also a way to offer CME credit. Medical providers can take the free CME by reading the paper carefully and then answering the case-based questions that follow. #MedEd (3/) www.mayoclinicproceedings.org/article/S002...

This is excellent 🙌and will help many❣️

Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...

Wow!

It’s in the top✨< 1%✨ most shared of all Mayo Clinic publications.

It’s the ✨most shared paper✨ amongst its contemporaries at Mayo Clinic Proceedings.

It’s in the ✨top 0.2%✨ most shared research products of all time.

It’s been live less than a week.

tinyurl.com/ywd3kmjs

One for all and all for one #AllOne

I’m looking forward to connecting with the long covid and chronic illness communities here!

Over the last few weeks we have had many newbies from the Chronic Illness community join us through Julie's invite code distribution site. This is now opened up for the disability community.

♿️ If you know someone in the #disability community who needs an invite code or if you have spare codes: