Courtzilla

STABLE!!!

Returned to baseline on both creatinine & cystatin-c.

(Also, thank goodness for his nephrologist placing the lab order on a rush!)

The relief is indescribable! I will now breathe, thank you very much.

#CKD
#PediatricCKD

And… the (repeat) creatinine and cystatin-c wait begins.

#CKD
#PediatricCKD

New YouGov poll finds that for the first time, a majority of Americans disapprove of Trump *strongly.* His overall approval is down to 38%, a new second-term low.

When is the last time a majority has disapproved strongly of a president?

A red moon with little white at the bottom

Tonight's lunar eclipse at 3:33AM and 33 seconds on March 3rd.

Today, my 9yo told me “You and I have a special connection, Mommy” and I couldn’t agree more. I told her we always will.

I miss my dad.
Worried about 7yo’s kidney labs next week.

Privileged AF.
(Also exhausted AF.)

Whiny vent: husband still testing very positive on day 7 & is isolating in my home office. I’m solo parenting. We’re getting a blizzard with potential power outages. And I still have to work & care for kids & manage ongoing quarantine & snow & generator AT THE SAME TIME & AHHHHHHHHHHH! 😱😱😱😱😱😱😱😱😱😱😱

You know… it’s truly insane, this life.

Does anyone else walk around… stunned by it all?

The tragedy, the triumphs?

The hard lessons? The fall-down-pick-me-ups, over & over?

These remarkable souls I get to share it with.

In all space & time…what are the odds?

I am so lucky.
To be right here.

Sleeping in separate rooms (Covid) means my husband and I are texting each other funny memes, new Lego sets we want to buy, plans for a long awaited Spring… and it’s reminding me just how lucky I am to have this silly best friend of mine.

U.S. passports | USAGov Find out how to apply for or renew a passport for an adult or a minor under 18. Know what to do if a passport is lost or stolen.

It's voting season plus with ICE out there...

I highly recommend that everyone that can, get a US Passport plus the Passport CARD that fits into a wallet or purse...

How's how via the US State department....

(Don't forget that you can also apply at many US post offices.)

www.usa.gov/passport

Paxlovid, my love, you have been SO GOOD to me.

I am sure we will meet again.

Until then…

THANK YOU.

(Taking my last dose tonight… and hoping the rest of the family gets through the rest of this ok, too.)
(Eff Covid!)
(Rar!)

Treatments for childhood cancer, Alzheimer’s, and sickle cell are at risk.

Donald Trump slashed funds, and Massachusetts’s world-class researchers were hit hard.

It's terrifying — and every family holding out hope for lifesaving treatments will hurt from this.

I don’t know who needs to hear Jesse Jackson leading the kids on Sesame Street in this beautiful call-and-response reminding them that every child is somebody, but here it is

A humidifier on the sink in front of a bathroom mirror. The combination of small "on" and "full" lights above a wide curved vent make a pleasant smiling face and on the back of the humidifier, which can be seen in the mirror, another wide curved air vent and the two screws holding it together above it make a horrified face.

Me whenever I have to communicate with other human beings #anxiety

Moderna’s president weighs in on FDA’s decision not to review its flu vaccine In an interview, Moderna President Stephen Hoge took questions on an FDA decision on the biotech's mRNA flu vaccine, as well as the impact on the company and others in the industry.

From @statnews.com , a Pharma leader finally says out loud what we have been repeating since Kennedy was confirmed: The policies of HHS are putting it all at risk: innovative therapies, American Biotech, & most importantly American lives.
@drsforamerica.bsky.social

AAAAAAAAAAAAAAAHHH

Husband tested positive - his first known infection - today.

Guessing kids are next. Hoping everyone, including my #CKD kiddo, does ok.

Husband’s long-awaited surgery will be rescheduled.

Retreating back into my cave for all time. 👋

AAAAAAAAAAAAAAHHHHHHHHHHHHHHH

More & more I’m realizing just how much I love my weird, quiet, “boring” (to others), contemplative, silly, sober (it’s amazing how much this bothers people…) life.

That’s with insurance. $6K deductible, $12k OOP max after deductible (considering coinsurance). Good Rx had it for $1480 so I’d rather it count towards deductible.

Party in the USA! 😜

And thanks. Don’t love having it twice in less than a year despite precautions. I just give up.

Ugh! So sorry to hear. (Also, that’s an insane cost to carry!) Wishing everyone a speedy and uneventful recovery. The mental toll alone is huge.

Taking recommendations for what to watch next.

Assuming anyone sees me screaming into the void…

AAAAAAAAAAAAAAAAAAAAAAHHHHHHHH

Covid+ again.

Despite just being vaccinated in mid-January, working from home, and masking. It’s seriously futile.

Got Paxlovid this time; cost $1500. That’s not a typo.

Doing our best to limit in-household transmission. It’s not at all easy.

This sucks. Watching PBS & missing my valentine.

Living through this time, in what I used to think was my *unique* position as a survivor, is so disorienting.

It was easier when I thought my experiences were uncommon; that most people cared about protecting kids.

Knowing how utterly common it is? The power involved?

I can’t.

AAAAAAAAAAAAAAAAAAAAAAAHHHHH

Donate to Support for James Van Der Beek's Family, organized by Jason K James Van Der Beek was a beloved husband, father, and friend who touched the lives of … Jason K needs your support for Support for James Van Der Beek's Family

Yet another indictment of the United States health system that James Van Der Beek’s wife and six kids need a gofundme because his unsuccessful cancer treatment destroyed them financially

www.gofundme.com/f/support-fo...

Hi! Courtney B. Mom of 6yo (“6 & three-quarters!” as he’d say…) pediatric CKD kiddo (reflux nephropathy). No COI. Lurking as usual. #NephJC

Just need to shout it into the universe…

I am so grateful for my husband.

A million fits & starts and still, this man remains my biggest advocate, best friend, true North Star & partner in this wild life.

I don’t deserve him.