For anyone who would like the clip (including George).
06.03.2026 08:21
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For anyone who would like the clip (including George).
5) The BACME model and clinical care is still based on the same idea of rehabilitation as 30 years ago, only with the worst parts about GET and deconditioning cut out. And it's being justified by a unfounded dysregulation model.
ME/CFS patients deserve better than this.
In other words, I haven't produced the triumphant recovery narrative I'd intended, but nor is this some bitter exposé of the charlatanism of brain retraining. Brain retraining wasn't miraculous, as I'd longed for it to be; and it also wasn't the nonsense that in my grief and disappointment I've wanted to denounce it as being. There would have been a kind of comfort in either conclusion.
Brain retraining has done nothing for this woman‘s ME/CFS.
How she could come to the conclusion that brain retraining is not nonsense, I don’t even understand from that article.
What does she think it has done for her relapsing and remitting condition??
#ME
www.theguardian.com/society/2026...
Seen on the door of a house in Gorton🤣🤣🤣🤣
The report also looks at other forms of discrimination but there is nothing about disabled people. Disabled people are talked about w/o having a voice especially about benefit cuts where abled journalists actively push for cuts w/o opposing voices appearing
1) This year, there were reports of 7 autopsies of ME/CFS patients, showing a dramatic reduction in CRH-producing neurons. This info was shared at the IACFS/ME conference, but the results still haven’t been published yet.
Similar findings have been found in type 1 narcolepsy.
Das Bild zeigt das Logo der ME/CFS Research Foundation und den Hinweis, dass ab Januar 2026 ein neues Forschungsprojekt zur Entwicklung von Biomarkern für ME/CFS unterstützt wird.
We support another Charité Berlin biomarker project: fMRI analyses of brain changes in #mecfs (65 patients + 65 matched controls). Goal: more objective diagnosis & treatment monitoring. Start in January 🔗 https://mecfs-research.org/en/researchfunding-charite-biomarker2
Fascism always seems to be very aging.
5 stick images of people. In the first 4, the person has a disability aid but the fifth one does not. Text: some disabilities look like this some like this
On International Day of People with #Disabilities, please note some disabilities are invisible
#Disability #invisibleillness #disabled #disabledpeople #IDPD #IDPD2025 #IDPD25
Better late than never. #CleanTheAir
Tessa Munt MP highlights how Germany is taking post-infectious diseases seriously, committing €500m over 10 years to research #MECFS & #LongCOVID. She asks if the UK Government will make a comparable commitment, or wait a decade for the Germans’ conclusions before taking action?
Really good to hear Stella Creasy on @newsagents.bsky.social saying students should be removed from immigration figures. Of course they should! And they make up a huge chunk of the figures - around half. They’re part of the success story of global Britain - coming here to get a great education.
SUPERB and angrily unvarnished response, by former BBC chairman, Lord Patten.
"I don't think that we should allow ourselves to be bullied into thinking that the BBC is only any good, if it reflects the prejudice of the last person who shouted at it." ~AA
‘If you’re disabled, you’re not ill.’
Sir Charlie Mayfield (author of the Keep Britain Working review)
This is who’s shaping UK disability employment policy. Shocking, he doesn’t even understand the basics.
I’m disabled because I’m chronically ill with #MECFS.
He also champions the ‘biopsychosocial’ model - which has been discredited for ME/CFS and removed from NICE guidelines after causing harm.
Using this to shape work/welfare policy risks repeating the same devastating mistakes.
This case shows why the police shouldn't be releasing information precipitously. As well as the perpetrator an innocent man was mistakenly arrested. If they had their way his name & picture would be all over the press despite doing nothing wrong.
For the first time, Berkeley's Trial By Error crowdfunding campaign has reached 50% of the goal right at the 15-day half-way point. Most times, it's at about a third at this point. If you'd like to donate, here's the link:
crowdfund.berkeley.edu/project/47768
Stephen Bush on the extraordinary draft legislation which Shadow Home Secretary Chris Philp, Matt Vickers, Katie Lam and backbench colleagues have proposed in parliament
It is a proposal that would seek to deport around 5% of the resident population, including over a quarter of a million with ILR
Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis* commission. www.benefitsandwork.co.uk/news/controv...
Eligibility for an NHS Covid booster has been HUGELY restricted this Autumn.
Studies show that both acute & long-term impacts of Covid are substantially WORSE than flu on almost every measure.
www.thelancet.com/journals/lan...
So why are the government offering so much LESS protection for Covid?
WHAT THE FUCK!
Tory Mayor Ben Houchen: That jew is a "useful idiot"
Tommy Robinson: "Woke jews" are ruining the UK
Home Secretary Shabana Mahmood : (Jewish) Zack Polanski isn't acting "British".
THEY DON'T CARE ABOUT JEWISH PEOPLE!
Vicars, grannies, blind people, those in wheelchairs all being physically carried away by police, one at a time after their rights are read… All for holding a placard.
…instead of the police being used to stop rape, burglary, domestic violence and theft. This farce has to break, surely.
This is the time when these three truths need repeating over and over:
1. Racism is inexcusable.
2. Migrants are equal humans to non-migrants.
3. The right to protest is fundamental to democracy.
Life is too short to spend it in fear or worry but also meaningless if we just don’t care. It’s a tough balance so may be striving to achieve it is the point.
I know many people, particularly from London's diverse communities, are feeling extremely worried following the events this weekend. It takes me back to how I felt growing up in the ’70s and ’80s, when far-right political parties marched on our streets. The leaders of the far-right are once again attempting to hijack our flag, with minorities being intimidated and fear, hatred and division being sown. As Londoners, and as proud Brits, we must unite to reject the far-right – just as we have many times before. But it’s going to take a huge effort from us all – from people of all races and backgrounds, who are willing to stand up for our British values of equality, inclusion and mutual respect. As Mayor, I'll continue to do everything I can to challenge the far-right and all those who peddle the politics of fear and division. I urge other politicians and Londoners to do the same. MAYOR OF LONDON, SADIQ KHAN
We must unite against those who seek to divide us.
#CareNotCuts #TakingThePIP
Professor Catastrophe
from @longcovidadvoc.com
longcovidadvocacy.substack.com/p/professor-...
A man was arrested for causing a public nuisance at Heathrow Airport. He'd released tear gas causing several people to feel suddenly ill
IMO the *real* public nuisances were the psych academics who'd claimed the initial symptoms were just "mass psychogenic illness" 🤦
Via @davetuller1.bsky.social
So good to hear. Thanks, Brian.
Clip: Reporting Scotland previews tonight’s The Seven, where Prof Chris Ponting from Edinburgh University will discuss new findings from the DecodeME study into MECFS.
