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Patient Experience Library

@patientlibrary

Open access evidence base for patient experience, lived experience, patient/public involvement. www.patientlibrary.net

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Latest posts by Patient Experience Library @patientlibrary

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Patient and public involvement (PPI) reporting in maternal and neonatal clinical trials: an exploratory review - PubMed The review was not registered.

Patient and public involvement (PPI) reporting in maternal and neonatal clinical trials: an exploratory review - PubMed pubmed.ncbi.nlm.nih.gov/41792805/

10.03.2026 15:57 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Donna Ockenden made Leeds Hospitals Trust maternity inquiry chair Donna Ockenden is appointed to lead the maternity services inquiry at Leeds hospitals.

Donna Ockenden has been named as chair of an investigation into maternity services in Leeds, following a campaign by families: www.bbc.co.uk/news/article...

10.03.2026 13:11 πŸ‘ 1 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Co-production Webinar Series - Co-production in Practice
Co-production Webinar Series - Co-production in Practice YouTube video by Disability Rights UK

πŸ“Ί The latest in our Co-production Webinar Series has now been uploaded!

Our third webinar focused on β€˜Co-production in Practice’ - an opportunity for organisations to share how they have embedded co-production into their work.

Watch it back πŸ‘‡
www.youtube.com/watch?v=csD0...

10.03.2026 14:18 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Three people, their arms around each other and heads bowed, stand close to the wall by their loved one's heart.

Three people, their arms around each other and heads bowed, stand close to the wall by their loved one's heart.

We are honoured to provide a place of comfort and remembrance for the covid bereaved. ❀️

10.03.2026 10:39 πŸ‘ 20 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0
Elderly woman smiling in a wheelchair, being pushed by a man outdoors on a path surrounded by greenery. Text overlay reads, "Try a new activity with the person you care for." Carers Active Hub logo in the corner.

Elderly woman smiling in a wheelchair, being pushed by a man outdoors on a path surrounded by greenery. Text overlay reads, "Try a new activity with the person you care for." Carers Active Hub logo in the corner.

Our Carers Active Hub has lots of ways for unpaid carers to look after their own wellbeing and build physical activity into their routines.


πŸ’ͺ Find out more and get involved: https://www.carersuk.org/help-and-advice/your-health-and-wellbeing/carers-active-hub/

09.03.2026 16:00 πŸ‘ 0 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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Across the UK, millions provide unpaid care for family and friendsβ€”often alongside work, family life, and their own health needs.

New analysis from the Health Foundation talks about the growing pressures on carers and why better recognition and support are so important: tinyurl.com/79nvhnb4

10.03.2026 09:28 πŸ‘ 3 πŸ” 3 πŸ’¬ 0 πŸ“Œ 1
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KFF Tracking Poll on Health Information and Trust: Trust in the CDC and Views of Federal Childhood Vaccine Schedule Changes | KFF Weeks after the Trump administration reduced the number of childhood vaccine recommended for routine use, public trust in the CDC is at its lowest since the COVID-19 pandemic, and less than half are c...

@kff.org released a new poll on the public’s trust and confidence in CDC and vaccines following changes to the federal recommended childhood vaccine schedule.
#vaccines #vaccinescedule

10.03.2026 09:29 πŸ‘ 9 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
Focus group invite with QR code.

Focus group invite with QR code.

Are you 16-25 years old, with experience of being detained under the Mental Health Act within CAMHS, and with experience using community mental health services?

Or are you a carer/supporter of someone with this experience?

Get in touch or sign up here: tr.ee/zzFSak

24.02.2026 12:24 πŸ‘ 2 πŸ” 5 πŸ’¬ 0 πŸ“Œ 0
Woman with mouth open having a dental examination

Woman with mouth open having a dental examination

Have you recently had an experience visiting or registering with a dentist or hygienist in #Oxfordshire?

We want to hear your views.
Please tell us what it was like, good or bad, leaving a short, anonymous review in our Feedback Centre: healthwatchoxfordshire.co.uk/feedback-on-...

09.03.2026 14:25 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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AI Monitoring: From Model Metrics to Patient Outcomes As AI becomes more widespread, health systems face a practical question that governance structures alone cannot answer: how do you know if it’s actually working? This blog addresses the practical work...

As AI becomes more widespread, health systems face a practical question that governance structures alone cannot answer: how do you know if it’s actually working?

Read the blog: go.ihi.org/4bdwgsX

09.03.2026 14:32 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
β€œI can’t get an NHS dentist since mine left the practice. Now it costs me nearly Β£70 for a 5 minute check up. I’ve used my inheritance money to pay.”

β€œI can’t get an NHS dentist since mine left the practice. Now it costs me nearly Β£70 for a 5 minute check up. I’ve used my inheritance money to pay.”

Our new research finds more people are going private due to NHS dental access issues. But it’s the poorest households that are hit hardest - https://www.healthwatch.co.uk/news/2026-03-09/people-struggling-financially-are-hardest-hit-shortage-nhs-dental-appointments

09.03.2026 14:39 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Do you want to be part of a movement on citizen and community involvement?

Are you thinking about how you can support your team to champion the practice of co-production in your work or a new project?

Get in touch for a chat: members@copronet.wales

More info here: buff.ly/ozm7veY

06.03.2026 09:01 πŸ‘ 1 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Bar chart of responses to the question, 'Which of these new tasks would you be happy to do through the NHS App?' showing that the public supports most of the proposed new uses of the NHS App in England.

Bar chart of responses to the question, 'Which of these new tasks would you be happy to do through the NHS App?' showing that the public supports most of the proposed new uses of the NHS App in England.

Our survey of attitudes to tech and AI in health care reveals three quarters of the public would be happy to use the NHS App for booking hospital appointments (76%), choosing a preferred hospital (73%) and accessing information about procedures (73%).

Explore more findings πŸ‘‡
https://bit.ly/407xoJG

06.03.2026 09:01 πŸ‘ 3 πŸ” 6 πŸ’¬ 0 πŸ“Œ 0

"How well or sick you are depends on how rich you are. The NHS provides free healthcare, but it can’t pay your bills, free your flat of mould or keep your kids fed."

06.03.2026 08:01 πŸ‘ 17 πŸ” 8 πŸ’¬ 1 πŸ“Œ 0
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Just three minutes of your time can make a huge difference to improving services in your area. Let us know what is or isn’t working in our short, confidential survey. https://www.healthwatch.co.uk/have-your-say

06.03.2026 09:09 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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β€˜Miracle baby’ examines emotional scars of life under the medical lens Liza Morton was the youngest child in the world to have a pacemaker. Now a psychologist, her book will resonate with anyone who feels challenged by the NHS

Thank you Helen Puttick for interviewing me for @thetimes about the deeply personal motivation behind my new book β€˜Beyond the Medical Gaze: Practicing Psychologically Informed Healthcare’ β€οΈβ€πŸ©Ή

www.thetimes.com/uk/scotland/...

05.03.2026 09:12 πŸ‘ 6 πŸ” 5 πŸ’¬ 0 πŸ“Œ 0
Amier and Katharine outside, beside the sign for Katharine House Hospice

Amier and Katharine outside, beside the sign for Katharine House Hospice

Today Amier and Katharine are making an Enter and View visit to Katharine House Hospice.

You can find reports for previous visits on our website: healthwatchoxfordshire.co.uk/enter-and-vi...

Could you become an Enter and View volunteer? Find out more: healthwatchoxfordshire.co.uk/volunteer-fo...

03.03.2026 11:12 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Call for Evidence - Committees - UK Parliament Air Pollution In England

Closes 5pm Tuesday 3 March 2026 | @commonseac.parliament.uk’s inquiry into #AirPollution in England << Please read their call for evidence and submit responses to one or more questions committees.parliament.uk/call-for-evi...

01.03.2026 14:32 πŸ‘ 7 πŸ” 7 πŸ’¬ 1 πŸ“Œ 2
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Patients lost in NHS β€˜maze’ as doctors demand simpler access to care Health leaders say the current system is β€˜confusing, frustrating and demoralising’

A new report from the Royal College of #GPs & the Patients Association highlights an urgent need for the Government to simplify access to health service. They describe #NHS as a complex web of organisations, making it difficult for individuals to receive #care
www.independent.co.uk/news/health/...

03.03.2026 09:34 πŸ‘ 4 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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Our engagement team are out and about this month to speak to Stockton residents about their health and care queries.Β 

You can chat with Lynn and Janet in confidence at the following drop-ins/events:

3/3 - Warm Welcome, Thornaby Pavillion, 10am - 12pm

03.03.2026 09:55 πŸ‘ 0 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
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🚨Calling #LondonMumsπŸš¨β€‹

Had a baby since Dec 2024 or currently pregnant? @ImperialCollege researchers want to hear your thoughts on the RSV vaccine, whether you had it or not.

β€‹πŸ’¬ 30-45 min interview (phone/online)
🎁 £25 Lovetoshop voucher
πŸ“§ Email: matimms@imperial.ac.uk

26.02.2026 17:42 πŸ‘ 1 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0
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It's not only paint brushes that we use! The volunteers are working hard to spruce up the wall for the Day of Reflection on Sunday. ❀️ #DayOfReflection

02.03.2026 09:48 πŸ‘ 17 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0
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Unseen and unheard: why healthcare must listen to neurodivergent south Asian women Patient advocate Mala shares how bias and misunderstanding shape healthcare for neurodivergent South Asian women, and why empathy, inclusion, and small adjustments can transform patient trust and…

Too often, neurodivergent south Asian women are dismissed or misunderstood in healthcare. Patient advocate Mala shares why inclusion, empathy, and small changes can transform trust and outcomes.
πŸ‘‰ Read her blog: buff.ly/4F0sx8a

24.02.2026 07:56 πŸ‘ 1 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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On 29 Jan 2026, we published our first State of #PersonCentredCare report, bringing together findings from 9 national surveys delivered for the CQC and NHS England. It maps insights against our 8 Principles, showing how person centred care is experienced across #England today.

[1/2]

25.02.2026 13:30 πŸ‘ 0 πŸ” 2 πŸ’¬ 1 πŸ“Œ 0
This shows a photo of someone putting a voting slip into a box with The People's Vote Healthwatch Somerset

This shows a photo of someone putting a voting slip into a box with The People's Vote Healthwatch Somerset

You’ve only got just over a week to help shape our independent work in #somerset by voting on the health & care issues that affect you in our People’s Vote. It is quick & easy to vote.

All the details are on our website: www.healthwatchsomerset.co.uk/post/help-de... or call free 0800 999 1286.

25.02.2026 09:42 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Steering group members with Jenni Minto MSP in the middle, standing in front of a screen with the words 'National Summit on Young People's Sexual Health and Wellbeing'

Steering group members with Jenni Minto MSP in the middle, standing in front of a screen with the words 'National Summit on Young People's Sexual Health and Wellbeing'

We were delighted to welcome @jennimintomsp.bsky.social to the National Summit on Young People's Sexual Health and Wellbeing, held on Monday at the University of Glasgow.

@drruthlewis.bsky.social @glasgow.ac.uk @uofgmvls.bsky.social @nspcc.bsky.social @nhsggc.bsky.social

25.02.2026 09:03 πŸ‘ 1 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Our latest survey completed with @ipsosintheuk.bsky.social​ tracking the UK public’s views on the NHS and social care shows nearly half of the public (48%) delayed or avoided contacting their GP practice about a health concern in the previous 12 months.

Read more findings πŸ‘‡
https://bit.ly/4tTv1ru

25.02.2026 09:00 πŸ‘ 5 πŸ” 11 πŸ’¬ 0 πŸ“Œ 2
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.@natalie-fleet-mp.bsky.social is right to highlight the real world impact of the cuts to NHS dental services.

βœ‚οΈSlashing budgets by 1/3 led to a dramatic decline in adult oral health under the last Government.

πŸ“ˆWithout adequate investment, oral health inequalities will keep widening.

24.02.2026 14:43 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Banner with NIHR logo and the text β€œApplied Research Collaboration South London” at the top. Large heading reads β€œTogether in Research:” with a red underline flourish beneath it. Below, text states: β€œThe patient, service user, carer and public involvement newsletter from ARC South London (Winter, 2026).” Background is light teal with dark blue text.

Banner with NIHR logo and the text β€œApplied Research Collaboration South London” at the top. Large heading reads β€œTogether in Research:” with a red underline flourish beneath it. Below, text states: β€œThe patient, service user, carer and public involvement newsletter from ARC South London (Winter, 2026).” Background is light teal with dark blue text.

πŸ“’Out now - our final involvement newsletter, 'Together in Research' - includes:
πŸ”ΈBlog: beyond tokenism - lived experience in mental health research
πŸ”ΈThanks and farewell from our involvement coordinator
πŸ”ΈEvents, news, blogs, resources + more

mailchi.mp/3a5f644e7d1d...

23.02.2026 16:43 πŸ‘ 5 πŸ” 5 πŸ’¬ 1 πŸ“Œ 0
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πŸŽ™οΈHow do researchers recruit participants and keep them involved?

Neil Humphrey joins #NIHRBridgeTheGap to talk about best practice for recruitment, retaining participants, and making research more inclusive.

🎧 Listen now: bit.ly/4aqd6zP

@manchester.ac.uk, @nihrarcs.bsky.social, @nihr.bsky.social

24.02.2026 09:58 πŸ‘ 4 πŸ” 5 πŸ’¬ 0 πŸ“Œ 0