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Science for ME online forum

@scienceforme

We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.

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Latest posts by Science for ME online forum @scienceforme

Article Link

Progressively Widening Healthcare Costs in Long COVID Over Five Years β€” Jingya Cheng et al.

#MECFS

03.03.2026 12:34 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Symptom Patterns, Recovery, and Impact of Long COVID: Findings From a Longitudinal Survey β€” Ziauddeen et al.

"Data from a 1-year follow-up of an online Long COVID survey were used." "… Long COVID remains a debilitating illness, with only 5% (n = 54) of the study sample reporting recovery."

#MECFS

03.03.2026 08:34 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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Acute inflammation and fronto-striatal connectivity in the transition from acute to persistent fatigue after mild COVID-19: A longitudinal fMRI study β€” Zhu et al.

"patients with persistent fatigue exhibited elevated acute-phase CRP levels"

#MECFS

03.03.2026 04:34 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Article Link

Association of G-Protein-Coupled Receptors autoantibodies with vasoregulation in Post-COVIDβ€” Felix S. Seibert et al.

#MECFS

03.03.2026 00:34 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Article Link

Exploratory analyses of Immunologic Features in a Randomized, Placebo-Controlled Trial of Nirmatrelvir/Ritonavir for Long COVID β€” Bornali Bhattacharjee et al.

"no virological or immunological evidence supports [Paxlovid] as a treatment for Long COVID."

#MECFS

02.03.2026 20:34 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Article Link

CD169+ and HLA-DR+ extracellular vesicles are highly represented in human plasma and dynamically expressed in SARS-CoV-2 infection and long COVID-associated sequelae β€” Fanelli et al.

#MECFS

02.03.2026 16:34 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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ICD-10 Diagnoses prior to ME/CFS diagnosis in children and young people suggest potential early diagnostic indicators β€” Wirth et al.

#MECFS

02.03.2026 12:34 πŸ‘ 4 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
Article Link

Systematic Examination of Gene Expression and Proteomic Evidence Across Tissues Supports the Role of Mitochondrial Dysregulation in ME/CFS β€” Gregory R. Keele et al.

#MECFS

02.03.2026 08:34 πŸ‘ 3 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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Outcomes of ME/CFS following infectious mononucleosis: seven-year follow-up of a prospective study β€” Jason et al.

"Seventy-nine percent of those with Severe ME/CFS 7 years later continued to meet the criteria for ME/ CFS."

#MECFS

02.03.2026 04:34 πŸ‘ 3 πŸ” 2 πŸ’¬ 1 πŸ“Œ 0
Article Link

Single-cell analysis reveals immune remodeling of monocytes, NK cells, T cell exhaustion, and Galectin-9–associated depletion of gamma delta and mucosal-associated invariant T cells in Long COVID with ME/CFS β€” Shahbaz et al.

#MECFS

02.03.2026 00:34 πŸ‘ 3 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
News in Brief - February 2026 This thread has a Science for ME 'News in Brief' post for each week in Februray 2026 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Feb. 23 - Mar. 1:

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

01.03.2026 23:04 πŸ‘ 6 πŸ” 6 πŸ’¬ 0 πŸ“Œ 0
A thread on what people with ME/CFS need in the way of service I don't think trying to gather lots of signatories would be a good idea here. there are too many competing political interests. At this stage I am not sure that a signed letter is the way to go in fac...

Jonathan Edwards and other members of @scienceforme.bsky.social are drafting a document on what we want in terms of service provision for ME/CFS. Latest draft here: www.s4me.info/threads/a-th...

All welcome to comment and make suggestions before the document before it is finalised.

26.02.2026 14:46 πŸ‘ 16 πŸ” 13 πŸ’¬ 1 πŸ“Œ 0

🧡 of highlighted #MECFS and #LongCovid research papers being discussed this week on the Science for ME forum.

23 Feb - 1 Mar 2026

01.03.2026 20:34 πŸ‘ 19 πŸ” 3 πŸ’¬ 1 πŸ“Œ 0
Article Link

Association Between Post-COVID-19 Infection and Fibromyalgia: A Controlled Case–Control Study β€” Ayse Oz and Tulay Yildirim

#MECFS

23.02.2026 14:34 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Article Link

Single-cell transcriptomics reveal intrinsic and systemic T cell aging in COVID-19 and HIV β€” Alan Tomusiak et al.

#MECFS

23.02.2026 12:34 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Article Link

Persistent inflammatory cytokine signature in long Covid-19 patients: a meta-analysisβ€” Dornas et al.

Review. "Elevated cytokine levels in patients with PASC support the role of persistent inflammation in the pathophysiology of ongoing symptoms."

#MECFS

23.02.2026 08:34 πŸ‘ 3 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
Article Link

Early administration of neutralizing monoclonal antibodies and post-acute sequelae of COVID-19 β€” Jinghao Nicholas Ngiam et al.

"In our cohort, we found that early treatment with mAbs did not significantly alter the overall risk of PASC."

#MECFS

23.02.2026 04:34 πŸ‘ 3 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
Article Link

Pediatric long COVID is characterized by myeloid CCR6 suppression and immune dysregulation β€” Jon Izquierdo-Pujol et al.

#MECFS

23.02.2026 02:34 πŸ‘ 4 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Article Link

Assessment of dynamic cerebral blood flow changes during cognitive tasks in patients with post-COVID-19 syndrome β€” Kutz et al.

#MECFS

23.02.2026 01:05 πŸ‘ 3 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Article Link

Widespread ncaas Imprints in the Serum Proteome of COVID-19 Convalescents Uncovering Immune System Sequelae β€” Kun Liu et al.

#MECFS

22.02.2026 22:40 πŸ‘ 4 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

🧡 of highlighted #MECFS and #LongCovid research papers being discussed this week on the Science for ME forum.

16 - 22 Feb 2026

22.02.2026 22:34 πŸ‘ 15 πŸ” 6 πŸ’¬ 1 πŸ“Œ 0
News in Brief - February 2026 This thread has a Science for ME 'News in Brief' post for each week in Februray 2026 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Feb. 16 - 22.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

22.02.2026 22:09 πŸ‘ 7 πŸ” 5 πŸ’¬ 0 πŸ“Œ 0
Article Link

Circulating mitochondrial and cellular damage markers in long COVID: Links to cognitive function, psychological distress, and inflammation β€” Matits et al.

"general cognition correlated positively with the relative [circulating cell-free mitochondrial DNA]"

#MECFS

15.02.2026 22:34 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Article Link

Impaired brain intrinsic connectivity in long COVID during cognitive exertion revealed by independent component analysis β€” Barnden et al.

"The widespread nature of LCov connectivity abnormalities supports a hypothesis that long COVID derives from brain-wide deficits."

#MECFS

15.02.2026 20:34 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
News in Brief - February 2026 This thread has a Science for ME 'News in Brief' post for each week in Februray 2026 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Feb. 9 - 15.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

15.02.2026 19:02 πŸ‘ 8 πŸ” 5 πŸ’¬ 0 πŸ“Œ 0
Article Link

Multimodal imaging suggests potential immune-vascular contributions to altered regional brain perfusion and oxygen metabolism in Post-COVID-19 Syndrome β€” Martins et al.

#MECFS

15.02.2026 18:34 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Article Link

Genetic Insights into Circulating Complement Proteins in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Potential Inflammatory Subgroup β€” Jessica Maya et al.

#MECFS

15.02.2026 18:17 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

🧡 of highlighted #MECFS and #LongCovid research papers being discussed this week on the Science for ME forum.

9 - 15 Feb 2026

15.02.2026 14:34 πŸ‘ 16 πŸ” 4 πŸ’¬ 1 πŸ“Œ 0
Article Link

Long-term health outcomes and risk factors for low self-rated health in non-hospitalised adults with post-COVID-19 condition: a 2.5-year cohort study β€” TΓΆrnberg et al.

#MECFS

09.02.2026 21:00 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Article Link

SARS-CoV-2 reinfections and subsequent risk of hospital-diagnosed post-acute sequelae in Denmark (2020–2022): a nationwide cohort study β€” Khurana et al.

"Of 4,418,544 individuals, 6942 (0.16%) were diagnosed with long COVID."

#MECFS

09.02.2026 17:29 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0