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kb

@katiesullivan

cyborging, phd-ing, and writing about disability cultures, patient-led science, connective tissue, and the stories we tell about genes.

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03.10.2023
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Latest posts by kb @katiesullivan

It seems clear Alex Pretti, a healthcare worker, was murdered for engaging in the exact kind of community care we hope all care workers to embody: the kind that doesn’t stop at the threshold of the hospital, the clinic, but that aims to care for and support the community where and how they can

24.01.2026 19:05 πŸ‘ 2187 πŸ” 553 πŸ’¬ 1 πŸ“Œ 9
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Crips for eSims for Gaza Crips for eSims for Gaza is a collaboration between Jane Shi, Leah Lakshmi Piepzna-Samarasinha, and Alice Wong.

PS WE ARE IN THE RED AGAIN AND WE KNOW EVERYTHING IS EVERYTHING BUT WE ARE STILL HERE AND KNOW SOME PEOPLE MAY NOT KNOW THIS, SO IF YOU WANNA DONATE, HIT THE CHUFFED chuffed.org/project/crip... we gotta reimb people particularly in the UK and Canada but any currency works.

26.01.2026 16:04 πŸ‘ 39 πŸ” 56 πŸ’¬ 1 πŸ“Œ 6

Alice Wong taught us that disabled people don’t just leave memories behindβ€”they leave infrastructure. Lineages of care. Methods of collectivity, survival. She named the connective tissue that holds our communities together, even across death, even across the losses that come too fast and too often.

16.11.2025 00:08 πŸ‘ 1890 πŸ” 537 πŸ’¬ 7 πŸ“Œ 19
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Alice Wong was Crips for eSims for Gaza, and Everything to Us by Jane Shi and Leah Lakshmi Piepzna-Samarasinha

llps.substack.com/p/alice-wong.... what is remembered lives. @pipagaopoetry.bsky.social and me wrote our assess off on our Crips for eSims memory song for our beloved @sfdirewolf.bsky.social . #AliceForever

17.11.2025 18:39 πŸ‘ 190 πŸ” 97 πŸ’¬ 3 πŸ“Œ 6
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Donate to Help finish Alice’s work, organized by yomi wrong Our comrade, friend, collaborator and fierce Tiger Mischief Maker, Alice Wong, needs us. As yo… yomi wrong needs your support for Help finish Alice’s work

www.gofundme.com/f/alice-wong...

here’s where to send funds to continue Alice’s legacy <3

16.11.2025 03:30 πŸ‘ 185 πŸ” 179 πŸ’¬ 0 πŸ“Œ 0

this is the only way for people to connect under conditions of a total internet blackout. please give.

17.09.2025 16:40 πŸ‘ 39 πŸ” 46 πŸ’¬ 0 πŸ“Œ 0

I think we've seen this one before... catalystjournal.org/index.php/ca...

09.09.2025 23:35 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Keep Hope Alive: a Gaza Giving Circle We are a team of volunteers in the US and UK, led by two sisters passionate about helping our friends on the ground keep their families and neighbors alive with food, water, & shelter. We saw that…

Offline for a health thing. Please share. Yall have helped six families with food and shelter for 18 straight weeks.

That’s pure hope. Don’t stop. & click β€œweekly.” 1425/2500 by Saturday chuffed.org/project/hope...

08.09.2025 15:02 πŸ‘ 7 πŸ” 11 πŸ’¬ 1 πŸ“Œ 0

thanks, ceros!

08.09.2025 14:56 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

this is important! I will revisit and reread. it also reminds me of the exclusions that happen in disability cultural work in/or adjacent to academic spaces

08.09.2025 14:55 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

I definitely read bursting forth, and I recall reading something earlier in the summer about capacity and academic exclusion by disabled scholars who are firmly seated in sociality

08.09.2025 14:47 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

this summer, yes! I'm subscribed to your substack

08.09.2025 14:40 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

i've been very off-of-the-internet and otherwise terrible at attending to messages lately! it is great to be connected, I agree (and thank you!). it is always delightful to see your writing in my email inbox

08.09.2025 14:20 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

ceros! fancy seeing you over here!

08.09.2025 13:34 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Call to action
Email the prison governor
Ralph.Lubkowski@sodexogov.co.uk
Call HMP Peterborough at 0173-217500 between 8am-5pm UK time, demanding the following: 
-That the prison release ALL of T Hoxha's mail
- That the electrolyte sachets requested by T are provided, as per the prison's duty of care

T and Casey's lives are on the line!!!

Call to action Email the prison governor Ralph.Lubkowski@sodexogov.co.uk Call HMP Peterborough at 0173-217500 between 8am-5pm UK time, demanding the following: -That the prison release ALL of T Hoxha's mail - That the electrolyte sachets requested by T are provided, as per the prison's duty of care T and Casey's lives are on the line!!!

It’s been over 24 hours since Casey Goonan started their hunger strike in solidarity w/pal action T Hoxa. They are diabetic and the situation is extremely urgent. Please call and email the contacts below and demand that T Hoxha have her mail released immediately.

28.08.2025 03:10 πŸ‘ 10 πŸ” 10 πŸ’¬ 1 πŸ“Œ 1

Seizure medication, wheelchairs, Social Security cards, dentures, urns of ashes, work uniforms β€” just some of what's been thrown away during cruel, degrading, utterly counterproductive homeless sweeps.

A good time to revisit this gutting @propublica.org story:

15.08.2025 02:52 πŸ‘ 1327 πŸ” 776 πŸ’¬ 26 πŸ“Œ 23

The people who roll up their sleeves and do the dirty work for the insurance mafia by denying claims and sentencing innocent people to a preventable death and/or bankruptcy are literally traitors to the United States

17.08.2025 06:52 πŸ‘ 232 πŸ” 38 πŸ’¬ 9 πŸ“Œ 2
Definition of "health communism" as a noun, described as a framework that separates healthcare from profit, productivity, and judgments of worthiness.

Definition of "health communism" as a noun, described as a framework that separates healthcare from profit, productivity, and judgments of worthiness.

Today, @leftiecowboy.bsky.social explains the necessity of "ending a system in which only those deemed ​'productive' or ​'deserving' are allowed to live well."

inthesetimes.com/article/heal...

18.08.2025 18:42 πŸ‘ 34 πŸ” 7 πŸ’¬ 1 πŸ“Œ 1

I'm being too generous. kuhn popularized it. but sts!

19.08.2025 02:31 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

delighted to find out that "paradigm shift," as a turn of phrase, was popularized by sts.

19.08.2025 02:31 πŸ‘ 4 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
The 504 Protests and the Black Panther Party – Disability Social History Project

In 1977, Disabled activists occupied the Federal Building in San Francisco to demand the passage of Section 504β€” legislation to protect against disability discrimination.When the building was cordoned off, in an effort to starve activists out, The Black Panthers *Broke In* to deliver them hot meals.

19.08.2025 01:43 πŸ‘ 2520 πŸ” 942 πŸ’¬ 26 πŸ“Œ 41
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The Rest Is History | Los Angeles Review of Books Mary Turfah writes on Gaza and the limits of the war photograph, in an essay from the upcoming issue of LARB Quarterly, no. 46: β€œAlien.”

Really good essay by Mary Turfah out today in @lareviewofbooks.bsky.social: β€œFrom this self-centering stems the logical outgrowth that a photo could so galvanize the American public as to stop a colonial war. That’s not how colonial wars work.”

12.08.2025 00:11 πŸ‘ 21 πŸ” 9 πŸ’¬ 0 πŸ“Œ 2
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Where is the site of struggle in healthcare? What the fight for health communism looks like under the current regime, and what strategies may help us move forward

blindarchive.substack.com/p/where-is-t...

08.07.2025 21:19 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Pay Naim Shakshak using PayPal.Me Go to paypal.me/naimshakshak97 and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.

Naim reached out seeking support from anyone who can share his story or who has anything to give. If you can, donate to his PayPal in order to help him feed his family and bring them to safety as soon as possible. His Instagram is naim_.shakshak.97, and his PayPal is naimshakshak97. 2/2

18.05.2025 18:57 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Naim Shakshak is a Palestinian seeking asylum in Northern Ireland. He has been separated from his family in Gaza since 2023. His brother, Ismail, was recently martyred. His family's home was destroyed by an occupation aircraft, leaving them displaced & trying to survive extreme conditions. 1/2

18.05.2025 18:57 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

getting in all of the visits with my nearest and dearest before moving someplace so strange and uncertain to me. crying a lot and writing a lot and feeling thrilled and devastated but also ready.

14.05.2025 22:18 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

disabled friendship is the glistening lodestar of my life

14.05.2025 22:15 πŸ‘ 3 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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Sick Sad World w/ Vicky Osterweil (04/28/25) | The Death Panel Get more from The Death Panel on Patreon

In our latest, @vickyacab.bsky.social joins us to discuss the kidnapping and detention of protesters, the administration’s proposed autism registry, and what Trump’s first 100 days tell us about his second term’s particular brand of fascism

www.patreon.com/posts/127684...

28.04.2025 22:54 πŸ‘ 57 πŸ” 28 πŸ’¬ 1 πŸ“Œ 7

having more poet friends means that i have more people to discuss my ridiculous ideas and they don’t seem that ridiculous because everyone else’s ideas are similarly ridiculous

05.05.2025 03:13 πŸ‘ 11 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
Crips for eSims for Gaza Bundle by Crips for eSims for Gaza and 176 others Crips for eSims for Gaza Bundle: 237 items for $16.00

Hi Crips for E Sims has an itch bundle of games, RPGs, zines and I don't even know what, where for a mere $16 USD you can get like 187 things! itch.io/b/2965/crips...

30.04.2025 21:01 πŸ‘ 24 πŸ” 26 πŸ’¬ 1 πŸ“Œ 0