Rachel Jones

NEW: To encourage accurate, nuanced and in-depth reporting on mental health issues, treatments and advances at work, NPF will host a fellowship in Washington, D.C., May 13-14, 2026. Apply by April 7.
https://nationalpress.org/training/covering-workplace-mental-health-fellowship-apply-by-april-7/

How CRISPR Gene Editing Saved Baby KJ - National Press Foundation CHOP researchers Rebecca Ahrens-Nicklas and Kiran Musunuru harnessed CRISPR gene editing to save baby KJ Muldoon.

Musunuru and Ahrens-Nicklas briefed @national_press Rare Diseases Reporting fellows about their work last November. Watch that session below:
#rarediseaes #geneediting #genomicmedicine

nationalpress.org/topic/how-cr...

Congratulations to Kiran Musunuru and Rebecca Ahrens-Nicklas of @childrensphila.bsky.social and @pennmedicine.bsky.social on being named to the TIME 100 list for their historic personalized genetic therapy for K.J. Muldoon. #genomicmedicine #rarediseases

time.com/collections/...

And meeting Agnes Binagwaho, former Rwandan Minister of Health and ex-vice chancellor of the University of Global Health Equity in 2019 helped cement my passion for global health issues. Agnes Binagwaho paved a path for other women leaders to follow.

Meeting legendary midwife, stateswoman and reproductive health advocate EdnaAdan Ismail in Somaliland in 2018 revamped my career vision and goals. She's a beacon of leadership, mentoring and selfless actions on behalf of others. I hope to have a fraction of her energy in my golden years.

For #WomensHistoryMonth2026, I'm recalling some of the great African women leaders I've been honored to meet.
In November 2008, the only thing more thrilling than President Obama's election was meeting Nobel Prize-winning environmental justice warrior Wangari Mathaai. #WomensHistoryMonth

Ellis–Van Creveld and the Challenges in Rare Disease Care | VIPnews.tv One family’s experience with Ellis–Van Creveld syndrome shows how genes, health systems, and geography together shape survival.

As #WorldRareDiseaseDay2026 draws to a close, I'm sharing one more terrific feature about a family battline Ellis-van Creveld Syndrome, from 2025 @nationalpress.bsky.social Rare Diseases Reporting fellow Linord Moudou!
#RareDiseaseDay #RareButNotAlone
vipnews.tv/ellis-van-cr...

MUTANTE - Los hijos del Huntington: la enfermedad huérfana del Caribe En Venezuela y Colombia habitan las dos poblaciones más grandes del mundo afectadas por esta enfermedad neurodegenerativa. Es una mutación genética transmitida de padres a hijos. Esta es una historia ...

Documentary photographer Charlie Cordero of Colombia, another 2025 @nationalpress.bsky.social Fellow, published the first in a series of features about families grappling with Huntington's Disease for Mutante. #WorldRareDiseaseDay2026 #RareDiseaseDay mutante.org/contenidos/l...

Pain and Hope: A Firsthand Account of Rare Disease Policy within the SUS Care for rare diseases is advancing, but challenges remain in the world's largest universal public healthcare system

Another 2025 @nationalpress.bsky.social fellow, freelancer Marcia Dementshuk of Brazil, shared her personal journey of living with immune-mediated axonal polyneuropathy for @apublica.org. #WorldRareDiseaseDay2026 #RareButNotAlone #RareDiseaseDay apublica.org/2026/02/pain...

Nigeria struggles with essential care for bleeding disorders as global medicine moves to gene therapy Inside the living room of a home in Nigeria’s up-north city of Kaduna, a newlywed couple looked at their third-born son and named him Onwuzueike, “death must cease.”

For #WorldRareDiseaseDay2026, powerful stories were published today, produced by 2025 @nationalpress.bsky.social Rare Disease Reporting fellows!

Stephen Kenechi of Nigeria's TheCable wrote this gripping feature about families battling rare bleeding disorders. www.thecable.ng/nigeria-stru...

Veteran Journalist Richard Prince: DEI Backlash is No Accident - National Press Foundation As a member of the Washington Post Metro Seven in 1972, Richard Prince helped elevate equity and diversity in newsrooms. He's never stopped.

During @BlackHistoryMonth, we honor voices like veteran journalist Richard Prince, who has spent decades championing diversity and equity in newsrooms — long before “DEI” was a buzzword. https://nationalpress.org/topic/veteran-journalist-richard-prince-dei-backlash-is-no-accident/

Storytelling Impacts Disease Research, Policy and Perception - National Press Foundation Sarita Edwards' son Elijah is a Trisomy 18 survivor and in starting the E.WE Foundation she knows storytelling changes policy and lives.

Ahead of #RareDiseaseDay Feb. 28, Sarita Edwards who founded E.WE Foundation after her son was diagnosed with Trisomy 18, reminds journalists that storytelling influences policy – and funding. #RareDC2026 https://nationalpress.org/topic/storytelling-impacts-disease-research-policy-and-perception/

How the Black Catholic Messenger Tells the Full Story - National Press Foundation Nate Tinner-Williams launched the Black Catholic Messenger during America's racial reckoning. Now he aims to extend that reckoning to elevate the history and modern-day role of American Americans in the church.

This #BlackHistoryMonth, we highlight the Black Catholic Messenger. Under Nate Tinner-Williams, it combines historical research and modern journalism to ensure these voices are represented. 🙏🏾https://nationalpress.org/topic/how-the-black-catholic-messenger-tells-the-full-story/

Tackling the 'Race Problem' of Inaccurate Data for Black Californians - National Press Foundation Candice Mays of Mapping Black California tells journalists to pay attention to provenance when it comes to data.

Data journalism isn’t just numbers — it’s a way to preserve history, recognize people and uncover inequity. Candice Mays of Mapping Black California explains. 📊🖤 #BlackHistoryMonth https://nationalpress.org/topic/tackling-the-race-problem-of-inaccurate-data-for-black-californians/

Are you covering #RareDiseaseDay? NPF has curated reporting guidelines based on interviews with journalists and those directly affected to help. https://nationalpress.org/wp-content/uploads/2026/01/Rare-Disease-Reporting-Guide-1.pdf

Ahead of the February 28 #RareDiseaseDay, I'm sharing this feature from journalist Soon Li Wei, who was a 2025 @nationalpress.bsky.social Rare Diseases Reporting fellow. She explored the impact of Malaysia's new rare disease policy. #rarediseases #RareButNotAlone
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Yamina's Life Hello! I’m from France but you can always activate the English subtitles ^~^ Living with too misunderstanding/rare health conditions and being a complex case with a particular experience, since 2014, ...

Check out the award-winning "Yamina's Life" blog, which helps audiences understand what it's like living with gastroparesis, a chronic disorder causes delayed stomach emptying, often due to nerve damage. #RareDiseaseWeek #RareDiseaseDay #RareButNotAlone #youthadvocacy www.youtube.com/yaminahsaini

The Power of Youth Advocacy for Rare Disease Patients and Families YouTube video by National Press Foundation

On Day 2 of #RareDiseaseWeek, I'm remembering how Ida Mirković Knaus and Yamina Hsaini taught @nationalpress.bsky.social Rare Diseases Reporting fellows about the power of youth advocacy. #RareDiseaseDay #RareButNotAlone. www.youtube.com/watch?v=8VIn...

APPLY: Local Business Journalism Fellowship - National Press Foundation Apply to NPF’s Local Business Journalism Fellowship, scheduled for April 26-29, 2026 in Washington, D.C., by March 23.

APPLY NOW; Excited to announce that applications are open for the 2026 @nationalpress.bsky.social - @uschamber.bsky.social Local Business Journalism training, scheduled for April 26-29 in DC. The deadline is March 23. nationalpress.org/training/app...

Health: Data gaps leave Uganda’s motor neuron disease patients undiagnosed MND is a rare progressive disease that affects the nerves controlling voluntary movement leading to weakness and stiffness in the muscles of both arms and legs. This also leads to paralysis, mobility ...

I'm starting my #RareDiseaseWeek2026 by sharing this feature about motor neuron disease in Uganda, produced by 2025
@nationalpress.bsky.social Rare Diseases Reporting fellow Davis Buyondo of The New Vision newspaper. #RareDiseaseDay #RareButNotAlone www.newvision.co.ug/category/new...

On the 158th anniversary of W.E.B. Du Bois's birth, I'm remembering my first journey to the African continent in 2003, to Accra, Ghana. This photo taken near his final resting place captured the astonishment I felt, and instantly connected me to my ancestors. #BlackHistoryMonth2026

With mighty ancestors like these, I know we’ll persist.I know I AM SOMEBODY.And not only will I bring the folding chair, I’ll sit at the head of the table. #BlackHistoryMonth2026 #RIPRevJesseLJackson #RestInPowerShirleyChisholm

Journalist Safety Guides: Physical, Digital, Legal Resources - National Press Foundation The National Press Foundation has catalogued vital information for journalists that will continue to be updated with new resources and opportunities provided by us as well as other journalism support ...

The National Press Foundation @nationalpress.bsky.social has has compiled this list of physical, digital and legal safety resources and opportunities for journalists. Please share widely, and keep watch as we update it with new information.

nationalpress.org/topic/journa...

Engaging Younger Audiences in Political Coverage YouTube video by National Press Foundation

Watch this video of @washingtonpost.com politics reporter Brianna Tucker speaking to @nationalpress.bsky.social Widening the Pipeline fellows to understand what’s lost when brilliant journalists are silenced during this turbulent moment in America. www.youtube.com/watch?v=EkwX...

Washington Post Begins Sweeping Layoffs The layoffs are slated to shrink the newsroom by hundreds of journalists, cutting into The Post’s local, international and sports coverage.

Breaking News: The Washington Post began sweeping layoffs that were slated to shrink the scope of the publication.

Save the post. Hundreds of workers at the Washington Post stand to lose their jobs in layoffs, which could render The Post unrecognizable amid some of the most severe staff cuts the newspaper has ever seen. If you value The Post and care about its future, we ask that you join us in person in our call to #SaveThePost. Feb 5, 2026 @ 1301 K St. NW 12:00-1:00pm

Jeff Bezos, one of the richest people on Earth, just eliminated hundreds of union jobs at the Washington Post.

Solidarity with @postguild.bsky.social. Join them tomorrow, February 5 at 12:00 p.m. for a rally to #SaveThePost.

Washington Post begins sweeping layoffs amid cost-cutting Sports coverage and the paper's podcast are among the hardest hit as the storied newspaper struggles with declining revenue.

Washington Post begins sweeping layoffs amid cost-cutting.

Join @nabjofficial.bsky.social on Feb 2, 2026 for the "Not On Our Watch: A National Town Hall On Press Freedom" hosted by @errinhaines.bsky.social and @rolandsmartin.bsky.social in partnership with the Black Star Network. Streaming LIVE on NABJ Youtube and Facebook.

100 years of #BlackHistoryMonth .... And this year, it's more important than ever. Thanks to the @nabjofficial.bsky.social for this reminder that Black history is American history.

#NABJ #BlackHistoryMonth2026 #100YearsofBlackHistoryMonth #BlackPress #PressFreedom #AmericanHistory

Catherine O'Hara was fearlessly funny. I've loved her work since SCTV, and on Schitt's Creek she was insanely funny.
And in this moment, her passing reminds me to try and keep finding reasons to laugh, no matter how hard it gets.

#RIPCatherineOHara