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NativeBio Data Consortium

@nativebio

First Indigenous and independent genomic biodata repository, health research, education, and training center on sovereign land. 501 (C)(3) non-profit. www.nativebio.org / Tribal Data Repository d4itdr.org @Indigidata @SENAHD

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11.10.2023
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Latest posts by NativeBio Data Consortium @nativebio

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Trump Administration Considers Exercising March-In Rights on Harvard Patents Amid Concerns Over Federally Funded Research Obligations In a rare move, the Trump Administration has taken steps to possibly invoke march-in rights on patents held by Harvard University, citing unmet obligations related to federally funded research. The…

Tribal leaders, Tribal attorneys, and Indian Country Journalists in the lower 48, Alaska, Pacific and Caribbean islands need to read and understand that your individual and collective data is under severe threat. legalnewsfeed.com/2025/08/08/t...

05.03.2026 16:52 πŸ‘ 3 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Newsroom

We have a new webpage and new features (lots and lots) please go check out our Newsroom page. We will have regular updates to what we are doing at NativeBio nativebio.org/newsroom

04.03.2026 22:35 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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IDSOV | Bonfire Buy IDSOV merchandise that supports Native Biodata Consortium. Featuring Athletic Heather Premium Unisex Tees, professionally printed in the USA.

There's also this one www.bonfire.com/idsov/?produ...

04.03.2026 21:02 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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The IDSov movement is becoming increasingly well known. Here I present a world renowned chemist and pharma lawyer wearing my face as evidence!

03.03.2026 19:09 πŸ‘ 5 πŸ” 3 πŸ’¬ 5 πŸ“Œ 1

remember, if its free, it means your data is for sale.

what implications does this mean for communities fighting mining projects, pipeline projects, etc. when LLMs can perform attacks that would not have previously been possible, due to the lack of structured data or features.

04.03.2026 17:14 πŸ‘ 6 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Large-scale online deanonymization with LLMs

Important for Tribal sovereignty in so many areas. But especially data collected with "altruistic intent" such as health research data and environmental monitoring data. These "soft" policy venues are also "soft targets" for bad actors. arxiv.org/html/2602.16...

04.03.2026 06:42 πŸ‘ 5 πŸ” 2 πŸ’¬ 0 πŸ“Œ 1

Tribes need to read these documents and ensure skimming by companies like Epic aren't happening, for any reason (and they can craft many). www.hhs.gov/programs/top...

04.03.2026 06:32 πŸ‘ 6 πŸ” 2 πŸ’¬ 1 πŸ“Œ 0
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If you are Tribal Nation or Tribal Leader, please watch this. It has never been a more important time to know about National & International law/policy over data and intellectual property. Listen to this Spotify about the International IEEE Indigenous Data Standard. open.spotify.com/episode/0ugg...

24.02.2026 19:08 πŸ‘ 5 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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Hey All, Check this out if you can. In addition to the Keynotes, Dr. Tuck and WashPo journalist Dana Hedgpeth, NativeBio will also be presenting! Sounds like it's gonna be a hot time in the old town, that night!

23.02.2026 23:36 πŸ‘ 3 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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What is the Five Safes framework? β€” UK Data Service A comprehensive resource funded by the ESRC to support researchers, teachers and policymakers who depend on high-quality social and economic data.

US Tribes should begin looking outside the USA for frameworks that will protect data and resources in today's dangerous economic landscape that has been enhanced with weaponized AI. ukdataservice.ac.uk/help/secure-...

23.02.2026 17:54 πŸ‘ 3 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Open Tools and Visitation Frameworks for Global Research Assessment Reform (OT-ViRARe) - CODATA, Committee on Data of the ISC Mission and objectivesΒ  The OT-ViRARe Task Group aims to co-develop a new generation of open, FAIR-aligned, and visitation-enabled tools for responsible research assessment, with particular emphasis o...

Look up CODATA approaches for Data Visitation and higher protections of DATA SHARING under the multipolar world and AI platforms weaponized against the common person. codata.org/initiatives/...

23.02.2026 17:48 πŸ‘ 3 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
Native BidaskΓ© with Joseph Yracheta, M.S. on Improving Health in Indian Country
Native BidaskΓ© with Joseph Yracheta, M.S. on Improving Health in Indian Country YouTube video by Native News Online

Here's an oldie but a goodie. NativeBio was honored to be on @nativenewsonline.bsky.social with Levi Rickert. Here we talked about the importance of Indigenous Data Sovereignty & planning for the next pandemic and functional Public Health departments in Indian Country www.youtube.com/watch?v=79fA...

21.02.2026 22:16 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
The Political Uses of Semiotic Indeterminacy | Signs and Society | Cambridge Core The Political Uses of Semiotic Indeterminacy - Volume 13 Issue 1

www.cambridge.org/core/journal...

20.02.2026 15:17 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
October 2024 ELSI Friday Forum: The Summer internship for INdigenous peoples in Genomics – Beyond Settler Science | ELSIhub Scientists from dominant genomic institutions are beginning to recognize the ways in which they have been and continue to be non-inclusive and harmful to marginalized communities, especially to Indige...

Please watch, learn and enjoy this three member panel presentation about β€œGettin’ free!” ELSI research is a poor proxy for freedom or equity (as you will see in these presentations). I am honored and proud to be on stage with @Kim TallBear and Elizabeth β€˜Betsy’ Nelson. elsihub.org/video/octobe...

20.02.2026 20:01 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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From Pandora to the Amazon, Indigenous Leadership Is Protecting Life on Earth More than a decade after Avatar brought global attention to the destruction of Indigenous lands, Amazon Watch has released a new short video that brings that story into the real world. Narrated by Avatar: Fire and Ash actor Oona Chaplin and featuring filmmaker James Cameron, KayapΓ³ leader Chief Raoni Metuktire, and Munduruku leader and Goldman Prize winner Alessandra Korap Munduruku, the video highlights the urgent reality facing Indigenous peoples defending the Amazon today. In the film, Chaplin draws a direct line between fiction and reality. In Avatar, the Na’vi fight to protect their home. In the Amazon, that fight is happening now, with consequences for all of us. The Amazon rainforest is nearing a dangerous ecological tipping point after decades of deforestation, mining, oil extraction, and agribusiness expansion. Scientists warn that continued destruction could trigger irreversible collapse, accelerating climate breakdown worldwide. Indigenous territories remain some of the most intact forests in the region, and Indigenous leadership is one of the strongest defenses against destruction. Indigenous peoples are working to end this destruction and protect the Amazon today. Simultaneously with the release of this video, more than 1,000 Indigenous leaders and community members from Brazil’s TapajΓ³s River region have blockaded commodity...

From Pandora to the Amazon, Indigenous Leadership Is Protecting Life on Earth
->Amazon Watch | More on "Indigenous leadership protecting the Amazon" at BigEarthData.ai | #Earth #Indigenous

20.02.2026 20:35 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
Towards the outbreak tail, what is the public opinion about wastewater surveillance in the United States? | Journal of Water and Health | IWA Publishing HIGHLIGHTS. National opinions on public health topics can change over time.Online survey conducted in the metropolitan United States during the winter of 2

3/3 Here is a brief history, but lots of pieces are missing, especially the "Data Theft" that had happened before the first shovel of dirt was hoisted. In our current Big Data & Artificial Intelligence environment, your resources are at even greater risk! Look at this article about Sewer Water risks

17.02.2026 20:22 πŸ‘ 4 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
12th August 1990: Sue the Tyrannosaurus rex discovered by Susan Hendrickson
12th August 1990: Sue the Tyrannosaurus rex discovered by Susan Hendrickson YouTube video by HistoryPod

2/3 Traditional Knowledge without you even being aware. There are companies and groups that have lived on your reservations for 30 years eroding your sovereignty and giving your data to others. Look at the T-Rex case in the Cheyenne River Sioux Nation. www.youtube.com/watch?v=zkP-...

17.02.2026 20:22 πŸ‘ 4 πŸ” 4 πŸ’¬ 1 πŸ“Œ 0
12th August 1990: Sue the Tyrannosaurus rex discovered by Susan Hendrickson
12th August 1990: Sue the Tyrannosaurus rex discovered by Susan Hendrickson YouTube video by HistoryPod

1/3 Dear Tribal Leaders, data is so important. It is the new oil, gold, cattle, corn/soybeans. But now its personal. It has the ability to cast you in a badlight, sue you for not being "American", declassify you as Indigenous, & take your Intellectual Property www.youtube.com/watch?v=zkP-...

17.02.2026 20:22 πŸ‘ 4 πŸ” 3 πŸ’¬ 1 πŸ“Œ 0
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Thanks so much to the @pjmfdn.bsky.social McGovern Foundation We are grateful for their help and ongoing partnership for all the important things we have to do in Indian Country! Read their blog on how they are helping people become empowered by AI here: medium.com/patrick-j-mc...

13.02.2026 19:12 πŸ‘ 4 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0
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Honestly, though NativeBio is internationally known, we've had trouble getting the message out on the Northern Plains. Bad Actors know this & this makes them ripe for data exploitation (see Sue T Rex vs CRST story). This young Oglala scholar says it all the correct way. Read, listen, investigate!

11.02.2026 20:11 πŸ‘ 5 πŸ” 4 πŸ’¬ 1 πŸ“Œ 0
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Big Data, Precision Medicine, Research & Resilience in Southeast Indian Country Southeast Native American Health Data (SENAHD) is an initiative to bring information and programming to Southeast tribal communities, researchers, and health professionals about the ethical use of Ind...

Hello #NCAI, NativeBio, in May 2022, sponsored SENAHD at University of North Carolina. The information sorely needed and provided to SouthEast Tribal Nations is and was part of the Indigenous Data Sovereignty Movement. #IDSov. Please take a look. uncch.hosted.panopto.com/Panopto/Page...

11.02.2026 19:41 πŸ‘ 6 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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Dear Tribal Leaders and tribal associates at #NationalCongressOfAmericanIndians given all the legal changes around data, it’s in our interests to speak to each other while in DC

10.02.2026 23:55 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

Hello National Congress of American Indians. @nativebio.bsky.social are with you in DC to explain the project below and the dangers around your data made possible by the Wild West of Artificial Intelligence

09.02.2026 16:20 πŸ‘ 4 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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@nytimes.com shut the Comments section down to soon. Here's a sample. Smart people defended us. Others wanted to know how to support. Look up Donor-Advised Funds (DAFs). We have that and other ways to financially support us! Tell your favorite Philanthropist about us! We are righteous and visionary!

09.02.2026 05:25 πŸ‘ 9 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0
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Native BioData Consortium | Official Merchandise | Bonfire Check out Native BioData Consortium on Bonfire and shop official merchandise today! Featuring limited edition custom apparel, printed with care in the USA just for you.

The NYTs comment section for our feature yesterday got so heated, they shut it down immediately. However, people want to donate to #IDSov. Here’s ours: www.bonfire.com/store/native... donorbox.org/help-to-empo... www.bonfire.com/store/native... Here’s the movement’s indigenousdata.org nativegov.org

06.02.2026 20:52 πŸ‘ 3 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0
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Native BioData Consortium | Official Merchandise | Bonfire Check out Native BioData Consortium on Bonfire and shop official merchandise today! Featuring limited edition custom apparel, printed with care in the USA just for you.

The NYTs comment section for our feature yesterday got so heated, they shut it down immediately. However, people want to donate to #IDSov. Here’s ours: www.bonfire.com/store/native... donorbox.org/help-to-empo... www.bonfire.com/store/native... Here’s the movement’s indigenousdata.org nativegov.org

06.02.2026 20:51 πŸ‘ 5 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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D4I TDR The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American and Alaskan Native participants while protecting the rights of t...

Our current funding stream for the D4I Tribal Data Repository project has ended. The last two years have been momentous as our multi-site collaboration has created the first federally funded repository framework and cyberinfrastructure for Indigenous communities by Indigenous teams. (1/4)

18.12.2025 00:29 πŸ‘ 3 πŸ” 2 πŸ’¬ 1 πŸ“Œ 0
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D4I TDR The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American and Alaskan Native participants while protecting the rights of t...

As part of our mission to build educational capacity for Tribal communities, we will not deactivate our social media accounts as we hope our YouTube videos, SEEDs database, and website will continue to educate. These are linked below:
(3/4)

18.12.2025 00:29 πŸ‘ 1 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
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D4I TDR The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American and Alaskan Native participants while protecting the rights of t...

Youtube: youtube.com/@D4ITDR
SEEDS: d4itdr.org/seeds/
D4I website: d4itdr.org
Email: info@d4itdr.org
We are actively applying for funding to continue this impactful work (4/4)

18.12.2025 00:29 πŸ‘ 4 πŸ” 3 πŸ’¬ 0 πŸ“Œ 1
GIVING TUESDAY with MASS DESIGN Group
GIVING TUESDAY with MASS DESIGN Group YouTube video by Native BioData Consortium

See our YouTube content and this short teaser about who and what we are about. (Thanks to MASS Design) www.youtube.com/watch?v=c21y...

05.02.2026 20:00 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0