Long COVID Rise Up

The message from MaskTogetherAmerica invites everyone to sign a petition to Mayor Mamdani asking NYC to recognize Long COVID Awareness Day by lighting up the City Hall in teal on March 15th every year. NYCMayor Mamdani, please make our wish come true! Visual: The picture of New York City Hall was manipulated to show it lit up to honor the International Long COVID Awareness day on March 15th. Find the link to sign the petition in bio.Below the picture are logos of our cosponsors from left to right: First row: —Mask Together Colorado —Clean Air LA —Long COVID Foundation —Winslow Santé Publique —International Long Covid Awareness (ILCA) —COVID Action GSO —Long COVID Justice —Clean Air Club —Patient-Led Research Collaborative —Clear the Air ATX Second row: —World Health Network —Pan End It! —Marked By COVID —Asociación of Long COVID Aragón —Public Health Action Network —Long COVID Rise Up —Air Support Project —Care Not COVID Chicago —Clean Air Advocacy Ireland —COVID-19 Long Hauler Advocacy Project Third Row: MaskTogetherAmerica

On #LongCOVIDAwarenessDay (March 15), NYC should recognize #LongCOVID as a historic struggle and light up its City Hall in teal! Sign petition to @mayor.nyc.gov! actionnetwork.org/petitions/pe... Join Us! 💚

At the top, on a black background: aerosols. Text: The Covid virus, SARS-CoV-2, is transmitted through the air via viral particles suspended in the air. Ventilation, air purification, and the use of FFP2 masks and UVC are effective means of prevention. No public awareness campaign in France sufficiently highlights this mode of transmission. Yet it is essential to prevent acute COVID, as well as the delayed consequences of this virus, particularly long COVID. Bottom, in large print: Ignorance is not a public health policy.

When health communication remains outdated, the virus circulates freely and continues to cause damage. Millions of people are living with #LongCovid : they are a constant reminder of this.
There is an urgent need to evolve.
#Prevention
#LongCovidAwareness

Text: You can't manage public health with outdated knowledge... Health authorities, if By refusing to adapt SARS-CoV-2 prevention measures. Larger text at bottom: Covid is transmitted through the air and through ignorance Image: An administrator sitting behind a desk, looking bored, behind an old computer.

🔴 New poster diptych.
COVID is transmitted through the air, and through ignorance.
Ignorance of the data.
Ignorance of blind spots.

#PublicHealth
Link : winslow.fr/ressource...

En haut, sur fond noir : des aérosols. Texte : Le virus du Covid, SARS-CoV-2, se transmet par voie aérienne, via des particules virales En suspension dans l’air. La ventilation, purification de l’air, utilisation de Masques FFP2, d’UVC, sont des moyens efficaces de le prévenir. Aucune campagne, grand public en France ne sensibilise suffisamment sur ce mode de transmission. C’est pourtant essentiel pour éviter le COVID aigu, mais aussi les conséquences différés de ce virus, notamment le COVID long. En bas en gros : L’ignorance n’est pas une politique de santé publique

Affiche 2
Des millions de personnes vivent avec un #Covidlong . Urgence d’évoluer.

Texte : Vous ne feriez pas de santé publique avec des connaissances dépasséEs… Les Autorités sanitaires, si En refusant d’adapter la prévention du SARS-CoV-2. En plus gros en bas : le Covid se transmet par l’air et par l’ignorance Image: Une personne de l’administration derrière un bureau, l’air blasée, Derrière un ancien ordinateur.

Affiche 1
Quand la communication sanitaire reste figée, le virus, lui, circule librement et continue de faire des dégâts.

Texte : Vous ne feriez pas de santé publique avec des connaissances dépasséEs… Les Autorités sanitaires, si En refusant d’adapter la prévention du SARS-CoV-2. En plus gros en bas : le Covid se transmet par l’air et par l’ignorance Image: Une personne de l’administration derrière un bureau, l’air blasée, Derrière un ancien ordinateur.

En haut, sur fond noir : des aérosols. Texte : Le virus du Covid, SARS-CoV-2, se transmet par voie aérienne, via des particules virales En suspension dans l’air. La ventilation, purification de l’air, utilisation de Masques FFP2, d’UVC, sont des moyens efficaces de le prévenir. Aucune campagne, grand public en France ne sensibilise suffisamment sur ce mode de transmission. C’est pourtant essentiel pour éviter le COVID aigu, mais aussi les conséquences différés de ce virus, notamment le COVID long. En bas en gros : L’ignorance n’est pas une politique de santé publique

🔴 Nouveau dyptique d'affiches.

Le COVID se transmet par l’air,
Et par l’ignorance.

Ignorance des données.
Ignorance des angles morts.
Ignorance des retards.

Le #CovidLong en est le rappel permanent.

#LongCovidAwareness #SantePublique #Prévention

winslow.fr/ressource...

Today International Long Covid Awareness Month starts

#LongCovid

Les effets du Covid sur le système cardio-vasculaire humain - Winslow Santé Publique Douze études montrant l'impact du COVID et du COVID long sur le système cardiovasculaire humain

#EveryHeartbeatcounts

You can also consult some scientific papers on the subject, here :

winslow.fr/douze-etudes...

🎬 🗣️ Launch of #LongCOVIDAwarenessMonth and its theme of the cardiovascular effects of Covid and #LongCovid, with this video to share! #LongCovidHeartbeats
👉 Every patient counts, every heartbeat counts.
(Youtube channel with several languages : www.youtube.com/playlist?lis...)

2026 International Long Covid Awareness social media ring with 6 gray dots and International Long Covid Awareness ribbon featuring year: 2026 white font reads: #LongCovidAwareness Designed by: @haziethompson

2026--Six years. Still sick. Still raising awareness for prevention & treatments!
#LongCovidAwareness
#LongCovid
#LongCovidKids
#LongCovidHeartbeats
#LongCovidAwarenessDay
#LongCovidAwarenessWeek
#LongCovidAwarenessMonth
#LitForLongCovid
#OneInfectionAway
#TakeActionAgainstLC

📣 En el marco del Día Internacional de la #COVIDPersistente #LongCovidAwarenessDay,
convocamos una concentración:
📍 Plaza España, #Zaragoza
🕛 a las 12:00 horas
🩵 Os esperamos con familiares y amigos para que se nos visibilice 🫂
@lcawarenessint.bsky.social @longcovidriseup.bsky.social

LONG COVID AWARENESS DAY Rassemblement Vendredi 13 mars 2026 14h Devant l’Hôtel-Dieu (Paris, 75004) #LongCovidAwareness #EveryHeartbeatCounts

🔴🐘 Nous appelons au rassemblement avec la participation d'@actioncovidlong.bsky.social, le 13 mars prochain devant l'Hotel Dieu à 14h, à l'occasion du #LongCOVIDAwareness.
#EveryHeartbeatCounts
Chaque personne compte, chaque battement de coeur compte.
winslow.fr/long-covi...

Graphic Font reads: Help Define Long Covid! Provide your insights on the Community Long Covid Definition up until March 5th so that the patients, medical professionals, and others have an updated and more complete Long Covid Definition. Fill out the Google Form, see link, to provide your feedback. Long Covid is a novel heterogenous multisystem chronic disease caused by SARS-CoV-2 infection ... Black and white background with International Long Covid Awareness ribbon (teal, gray, & black) Upper right: Purple and white Google Form graphic Lower right: Purple megaphone graphic

Global #LongCovid community, doctors, & researchers:
We are working together to better define Long Covid.
➡️Please review the proposed definition & share your thoughts
➡️Share definition w/ Long Covid folks who aren't on social media

Form⬇️ www.longcovidawareness.life/community-long-covid-defintion

Honoured to join @longcovidriseup.bsky.social as a patient expert and researcher. We will continue to fight for more recognition of #LongCovid, for treatments, access to care, and prevention

Since then, she has been a relentless & courageous voice in LC advocacy.

We are privileged to have her expertise, vision, and unwavering commitment strengthening our collective mission to drive systemic change in pursuit of our goals :

#StopTheDiseaseProcess #BlockTheSpread

Picture of Elisa Perego, expert patient and researcher ; picture of a Women, black hair, smiling

⭐🎉 We are honored and proud to welcome Elisa Perego, researcher and expert patient (Italy), to our federation as a highly qualified member.

@elisaperego78.bsky.social coined the term #LongCovid, giving a name and global visibility to a condition that millions were experiencing in silence.

🗞️Article reprenant l'interview radio de notre présidente, pour la fédération #LongCOVIDRiseUp

L'audio est disponible à l'écoute en entier ici : winslow.fr/winslow-medi...

"On est invisibilisés : le cri d'alarme de la nouvelle Fédération COVID Long"
Extraits🧵

Winslow dans les médias Les participations ou apparitions de notre association dans la presse écrite, à la télévision ou à la radio.

If you speak French, you can listen to the full audio interview by following this link ("interview Maritima"), here, on @winslowsp.bsky.social 's webpage 👇

winslow.fr/winslow-medi...

"But the fight is also preventive. [...] “As long as the air quality is not adequate, it will continue. We still have patients arriving, and also, it harms patients who are already affected.”"

#StopTheDiseaseProcess #BlockTheSpread

"The objective of this new federation is clear: to demand resources for research into pathological mechanisms [...] and no longer just into symptom management."

"She cites the discrepancy between authorities: ”There is a European consensus among cardiology societies with tangible guidelines, but the French Society of Cardiology does not apply them at all.""

"The situation in terms of care is pretty dire in France. We are referred to physical therapists and psychologists, even though we have multidisciplinary needs. Long COVID affects the neurological, cardiovascular, and immune systems,“ she explains."

"We are been made invisible. The virus is circulating freely today, and there are no longer any systematic effective PCR tests, which are our primary means of recognizing Long COVID. "

"[She] did not mince her words. “We are in an absurd situation where there is no longer any COVID prevention, nor any approved treatment for Long COVID,” she lamented."

"In response to what it describes as “political negligence,” an international federation of patient associations has just been created.
Speaking on Maritima Radio, [the president of @winslowsp.bsky.social] denounced the “catastrophic” state of medical care and called for urgent action."

« On est invisibilisés » : le cri d’alarme de la nouvelle Fédération COVID Long Six ans après l’apparition du virus, plus de deux millions de Français souffrent encore de symptômes persistants. Face à ce qu'elle qualifie de « négligence politique », une fédération internationale ...

🗞️In this article, an interview with one of the co-presidents of our federation #LongCOVIDRiseUp

Title : "We are been made invisible : the wake-up call from the new #LongCOVID Federation"

Translated extracts🧵

maritima.fr/actualites/s...

“After six years of seeing that, instead of improving, it seems that we are being made invisible again, we had to take a step forward and escalate the issue through institutional channels"

🗣️ #StopTheDiseaseProcess #BlockTheSpread

"In addition to calling for investment in research and clinical trials, the group is demanding disease-modifying therapies, measures to protect against airborne transmission, and the direct involvement of affected individuals in decision-making."

[She] "warns of a setback in the recognition of the disease: “We feel that we are becoming invisible again, as if they wanted to lump us in with winter illnesses, when it is clear that COVID is not a seasonal disease.”"

"In this regard, she has insisted that reinfections can have serious consequences: “They can worsen the underlying condition of a patient with #LongCOVID and cause new cases in people who did not previously have the disease.”"