Natalie

#WomensShutdown 💜

#GoodFriday #Prayer 🙏🏼

I’m severely debilitated with Long Covid. The symptoms and fatigue are relentless. Have tried so many things! I read 2 bad news research studies during this last week. I’m finding it hard to keep hope alive! Does anybody have a good news story about their LC journey? #LongCovid

BREAKING! Long COVID individuals found to have a disruption in the critical brain bridge linking the brainstem and cerebellum - Thailand Medical News

BREAKING! Long COVID individuals found to have a disruption in the critical brain bridge linking the brainstem and cerebellum - Thailand Medical News www.thailandmedical.news/news/breakin...

For those with #LongCovid for over 4 years is anything helping your fatigue? Any success with Nattokinase, Bromelain & Curcumin? Is LDN helping? What about Co-Enzyme Q10 (Ubiquinol)? I’ve tried so many things but only Ativan occasionally (once a wk) is touching this relentless fatigue!

Since my episode with the wonderful @longcovidanswer has been released highlighting viral persistence as a major driver of some #LongCOVID pathology, I’ve been asked repeatedly, “what should we do about it?” - totally fair question. Here is my proposed roadmap: 1/

Anybody with #LongCovid have any success with Lion’s Mane? If yes, what symptoms has it helped with?

I have severe #LongCovid going on 4 years! I wish I had a crystal ball! What do you think 2025 will bring for us on this Long Covid Roller-Coaster 🎢 ?

#LongCovid questions! Can we get rid of the spike protein? If so how? Reinfection is our biggest enemy. Without reinfection will the body eliminate the spike protein in time?

Our new study shows that SARS-CoV-2 spike protein accumulates & persists in the body for years after infection, especially in the skull-meninges-brain axis, potentially driving long COVID. mRNA vaccines help but cannot stop it🔬🧠🦠🧵Your weekend read👇
@cellpress.bsky.social
cell.com/cell-host-mi...

The SARS-CoV-2 spike protein can persist in the brain—in the skull bone marrow and meninges—to induce neurologic damage
www.cell.com/cell-host-mi... open-access

I didn’t think so but now I am not sure. I used to be sensitive to some foods but not any more. It’s specifically medication that sends me into a crash by day 3.

After having another HUGE #LongCovid flare as a result of trying another medication to possibly help my relentless fatigue, I have come to realise that no matter what the medication I have developed an EXTREME sensitivity and react even to medication I took before LC with no issues at all.

1/3 New Video: @GeorgeMonbiot describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". Watch the 27 minute explainer video about the scandal from reframing a recognised neurological illness to the withdrawal of harmful treatments.

Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane.
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Wow! I am so happy for you. I started with my first 500mg tablet today? What dosage are you on?

I leave Rome and LongCOVID children conference arranged by @buonsenso.bsky.social with a heart full of hope. Clinicians are getting it! Clotting IS a problem, together with many other issues: hormone imbalance/immunity. Great meeting old friends again!

Hi 👋 My #LongCovid journey began on 28/01/2021 the day after I turned 50! Image: “What I thought my journey would look like vs What my journey actually looks like!”