This looks really interesting!
@maggiekeresteci
I care about improving lives of patients & caregivers | Author | Speaker | Advocate | Caregiver | Patient | co-design | Healthcare Policy | Health Services & Policy Research | Views are my own, influenced by many
This looks really interesting!
Canadians are often called "nice" but it isn't true - we're not nice, we're kind hearted & care for each other. That's different. We're tough. We don't tolerate bullies. We're not doormats. We fight for our values. We stick together. Most of us abhor Trump & will fight his lunacy
A reflection of how low our society has fallen - President Jimmy Carter died this weekend & in virtually every condolence posting by a politician on X, they all have comments that are crass, mean-spirited, foul views about the politics of the poster & unrelated to the goodness of Jimmy Carter
Sad, but true.
Iโm glad Iโm Canadian (you know, a sovereign nation and historically good neighbour)
Unbelievable
Vaccines save innumerable lives
Check out CAHSPR Connects to learn about our planning for
#CAHSPR25! We can't wait to welcome you to Ottawa where we'll explore "Charting the Course for Health System Transformation" together. Mark your calendar (May 27-29, 2025) and get your abstracts in!
cahspr.ca/cc-cahspr2025/
100%
The words โcareโ & โcureโ are differentiated by a single vowel, but differences for #patients & #caregivers are vast. Letโs put the โcareโ back in #healthcare instead of our singular focus on cure.
Care doesnโt always include cure but when cure is our only goal, care takes a backseat
I'm still in shock to be honest!
Thank you - I'm hopeful!
Life is nothing if not interesting (to say the least). As we've struggled to explain my "complicated" course with #LongCovid, I asked my doc to humour me & test for Lyme Disease - guess what? I'm positive & they think I've had it the entire time. Now, a flurry of specialists & treatment initiated ๐ฎ
Being a #patient & #caregiver, Iโve learned that pursuing connected, locally delivered care is the only answer to the issues many families face every day. Being a pt & caregiver has brought me more meaningful insights into how we deliver #healthcare, than more than 20 years of a career in healthcare
Peer support for #caregivers is a lifeline. With sharing, we support each other & we give each other hope; hope to believe anything is possible. Everything is possible. Talk to your patientโs caregivers to make sure they know about peer resources โ help connect them if they donโt
Murdered because they were women. #femicide
Geneviรจve Bergeron
Maryse Laganiรจre
Hรฉlรจne Colgan
Maryse Leclair
Nathalie Croteau
Anne-Marie Lemay
Barbara Daigneault
Sonia Pelletier
Anne-Marie Edward
Michรจle Richard
Maud Haviernick
Annie StArneault
Barbara Klucznik-Widajewicz
Annie Turcotte
Having #LongCovid has made it crystal clear that we do not have a robust, systematic way to support caregivers. We need a co-designed person-centred system where supports are built in
Q: What happens when a #caregiver becomes a #Patient in Canada?
A: Nothing....absolutely nothing
I believe that the only way to achieve a truly person centred #healthcare system is to dismantle power imbalances by shifting power to #community, which will advance the goal of health and care being equitably provided to all Canadians.
www.longwoods.com/publications...
Our health system is in peril. The future of Canadian #healthcare is in home & #communities, not institutions; but too many people in our #HealthSystem remain obsessed with protecting the past. They need to start clearing the way for the future, rather than continuing to obstruct it
The perception of #caregivers being unpleasant when they advocate for the people they are caring for means being labeled as bossy, obnoxious, unpleasant. I have been called all of these & more instead of being seen as decisive, persistent & committed member of the team. Still, we persevere
THE deEP STATE 0013
The MAGA Strikes Back 0008
BY Micahel de Adder
@deAdder
Substack link:
open.substack.com/pub/deadder/...
100% I keep saying weโve jerryrigged the system for so long that is no longer a system
Let's stop trying to fix symptoms of #HealthSystem problems; instead we should be carefully considering what exactly should be addressed at the root. Political expedience & 4 yr election cycles make us jump to inelegant policies that have unintended, often negative consequences.
Great to see so many friends here MJ!
I fold fitted sheets exactly how Iโd fight off a boa constrictor
I sure am in Canada and I would be delighted to be added Sabrina!
Great idea and terrific to see so many friends!!
As a #caregiver, itโs essential that you become an expert in setting boundaries. Boundaries are the flip side of asking for help. If you can do both; if you can learn to say โnoโ and โI need help,โ youโve found the secret sauce for surviving, or even thriving, in this experience
โWithout community, there is no liberation...but community must not mean a shedding of our differences, nor the pathetic pretense that these differences do not exist.โ
Audre Lorde