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@karineauxusa

πŸ‡«πŸ‡·πŸ‡ΊπŸ‡Έ Disabled by Covid since 2020

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04.12.2023
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Report: #COVID survivors at nearly 5 times the risk for kidney failure

SARS-CoV-2 infection was also implicated in new-onset chronic kidney disease, acute kidney injury, and end-stage renal disease.

www.cidrap.umn.edu/c...

03.03.2026 19:56 πŸ‘ 81 πŸ” 54 πŸ’¬ 1 πŸ“Œ 10
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Long COVID β€” Here’s What To Know And The Challenges Ahead Six years after the start of the COVID-19 pandemic, the virus still exists. A public health expert explains what Long COVID is, and the challenges associated with it.

Explicitly capitalist media again shares a new piece that Long COVID is concerning, has no cure and again, embarrassingly, is doing better public health comms about this than most public health orgs. www.forbes.com/sites/omeraw...

03.03.2026 21:52 πŸ‘ 333 πŸ” 135 πŸ’¬ 7 πŸ“Œ 10
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'Mini hearts' show COVID-19 virus directly infects heart tissue Researchers from the Centenary Institute and the University of Technology Sydney (UTS) have developed a human heart cell model demonstrating that the virus that causes COVID-19 (SARS-CoV-2) can directly infect heart tissue, providing new insight into why some people experience serious heart complications during and after infection.

A 3D human heart cell model demonstrates that SARS-CoV-2 can directly infect heart tissue, offering insight into how COVID-19 may cause heart complications during and after infection. doi.org/hbq9gw

03.03.2026 09:20 πŸ‘ 25 πŸ” 20 πŸ’¬ 0 πŸ“Œ 4
Screenshot of a Daily Mail article titled β€œCatching Covid significantly raises the risk of developing kidney disease, researchers find,” published 1 March 2026. Below the headline is a medical illustration of a semi-transparent human torso showing internal organs, with both kidneys highlighted in bright red. A caption notes kidney disease affects about 7.2 million Britons and occurs when the kidneys, which filter toxins, stop working properly.

Screenshot of a Daily Mail article titled β€œCatching Covid significantly raises the risk of developing kidney disease, researchers find,” published 1 March 2026. Below the headline is a medical illustration of a semi-transparent human torso showing internal organs, with both kidneys highlighted in bright red. A caption notes kidney disease affects about 7.2 million Britons and occurs when the kidneys, which filter toxins, stop working properly.

"Catching COVID significantly raises the risk of developing kidney disease, researchers find"

"The virus was found to increase the chances that patients will develop the incurable condition by around 50 per cent."

Source: archive.md/Z87bA

03.03.2026 01:55 πŸ‘ 140 πŸ” 61 πŸ’¬ 2 πŸ“Œ 1
text says "There’s no way to know which COVID-19 infection will cause long-term illness. Each new COVID-19 infection increases your risk of organ damage, Long COVID, and disability, even if you have no other health conditions that you know of, and even if your previous COVID-19 infections were mild or had no symptoms. Protect your lifelong health by protecting yourself from COVID-19, no matter your age or health history. Wear masks. get vaccinated. keep indoor air clean.” Graphics on the side illustrate people getting sick repeatedly until eventually they end up with long-term illness.

text says "There’s no way to know which COVID-19 infection will cause long-term illness. Each new COVID-19 infection increases your risk of organ damage, Long COVID, and disability, even if you have no other health conditions that you know of, and even if your previous COVID-19 infections were mild or had no symptoms. Protect your lifelong health by protecting yourself from COVID-19, no matter your age or health history. Wear masks. get vaccinated. keep indoor air clean.” Graphics on the side illustrate people getting sick repeatedly until eventually they end up with long-term illness.

Every time you get COVID-19, your risk increases for Long COVID, organ damage, disability, & more, & there’s no way to know which infection will be the one to cause it! Protect your lifelong health by protecting yourself from COVID-19. Learn more about Long COVID: www.cdc.gov/long-covid/a...

24.02.2026 17:30 πŸ‘ 244 πŸ” 117 πŸ’¬ 3 πŸ“Œ 25
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Huge win for California mountain lions: Today they were granted protection under the state #EndangeredSpeciesAct πŸ™ŒπŸΎ

Now, six populations within Southern #California and the Central Coast will receive much-needed protections under the Act.

More info on this win for the wild ➑️ bit.ly/4tzC4FI

12.02.2026 21:57 πŸ‘ 200 πŸ” 61 πŸ’¬ 6 πŸ“Œ 3

I seem to see a little red under the wing, so Northern Flicker?

09.02.2026 17:42 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
U.S. Olympic men’s cross-country ski team member Ben Ogden, second from left, speaks at a news conference Thursday, Feb. 5 at the competition venue in Tesero, Italy. From left, Ogden’s teammates are Zak Ketterson, JC Schoonmaker and Zanden McMullen. (Nathaniel Herz for FasterSkier)

U.S. Olympic men’s cross-country ski team member Ben Ogden, second from left, speaks at a news conference Thursday, Feb. 5 at the competition venue in Tesero, Italy. From left, Ogden’s teammates are Zak Ketterson, JC Schoonmaker and Zanden McMullen. (Nathaniel Herz for FasterSkier)

Masked members of the U.S. women’s Olympic cross-country ski team pose for a photo Thursday, Feb. 5 after a news conference at their competition venue in Tesero, Italy. From left , Jessie Diggins, Hailey Swirbul, Sammy Smith, Julia Kern, Novie McCabe and Rosie Brennan. (Nathaniel Herz for FasterSkier)

Masked members of the U.S. women’s Olympic cross-country ski team pose for a photo Thursday, Feb. 5 after a news conference at their competition venue in Tesero, Italy. From left , Jessie Diggins, Hailey Swirbul, Sammy Smith, Julia Kern, Novie McCabe and Rosie Brennan. (Nathaniel Herz for FasterSkier)

Encouraging to see some members of the US Olympic team wearing masks to protect their health ahead of competition.

06.02.2026 19:49 πŸ‘ 1643 πŸ” 355 πŸ’¬ 21 πŸ“Œ 23
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An airborne virus is a virus that can infect other people through unseen particles in the air, sometimes for hours after the sick person has left the area! Masks and clean, ventilated air can reduce the risk of getting sick from airborne viruses or infecting others.

05.02.2026 16:48 πŸ‘ 382 πŸ” 200 πŸ’¬ 14 πŸ“Œ 45
Why I Can’t Just Meet You for Dinner
The Reality of Post-Exertional Malaise
Fred Rossi
Nov 07, 2025
The conversation always goes the same way. Someone asks if I want to join them for a meal, grab a drink, go to the movies, or some perfectly reasonable social activity that healthy people do without thinking. And when I hesitate, or decline, or try to explain why a Tuesday evening gathering might not work when I’m working Wednesday morning, I can see it in their faces and hear it in their voices: they think I’m making excuses.

I’m not making excuses. I’m doing accounting.

What PEM Actually Is (And Why β€œTired” Doesn’t Cut It)

Post-exertional malaise (PEM for those of us who live with it intimately) is not tiredness. It’s not even exhaustion. It’s a systemic crash that occurs after physical, cognitive, or emotional exertion that exceeds your body’s brutally reduced energy envelope.

Why I Can’t Just Meet You for Dinner The Reality of Post-Exertional Malaise Fred Rossi Nov 07, 2025 The conversation always goes the same way. Someone asks if I want to join them for a meal, grab a drink, go to the movies, or some perfectly reasonable social activity that healthy people do without thinking. And when I hesitate, or decline, or try to explain why a Tuesday evening gathering might not work when I’m working Wednesday morning, I can see it in their faces and hear it in their voices: they think I’m making excuses. I’m not making excuses. I’m doing accounting. What PEM Actually Is (And Why β€œTired” Doesn’t Cut It) Post-exertional malaise (PEM for those of us who live with it intimately) is not tiredness. It’s not even exhaustion. It’s a systemic crash that occurs after physical, cognitive, or emotional exertion that exceeds your body’s brutally reduced energy envelope.

🧡
"Why I Can’t Just Meet You for Dinner: The Reality of Post-Exertional Malaise"

substack.com/home/post/p-...

Thoughtful blog post which tries to explain postexertional malaise & how those who suffer from it need to be very careful with which activities they take on

#LongCovid #PwME #MEcfs

1/

26.01.2026 21:20 πŸ‘ 92 πŸ” 28 πŸ’¬ 3 πŸ“Œ 3
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Taekwondoin Tina Sugandh and her black belt kids, who always compete in their masks, warn about #LongCOVIDβ€” why they support #MaskTogetherAmerica and @publichealthaction.bsky.social. β€œThis is for all that say you can't compete to your fullest potential at athletic events with a mask on.”

26.01.2026 01:06 πŸ‘ 370 πŸ” 140 πŸ’¬ 16 πŸ“Œ 31
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Alt text 101 for Bluesky | Digital Philosophy by Manning Krull Hi! You may be here because I or someone else sent you this link in response to a conversation about alt text on Bluesky. Welcome! Here's some basic info about alt text, its importance, and how to wri...

I know things are moving fast, but here's your regular reminder to use alt text on Bluesky:

manningkrull.com/digital-phil...

25.01.2026 21:43 πŸ‘ 126 πŸ” 74 πŸ’¬ 4 πŸ“Œ 0

1. Very important study - and the primary reason I avoid infection.

'The long-term impact of COVID-19 may be consequential years after the infection and give rise to long-term illnesses including neurocognitive problems similar to what is seen in Alzheimer's disease'.

14.01.2026 18:15 πŸ‘ 343 πŸ” 137 πŸ’¬ 14 πŸ“Œ 3
FRED

Population - With a Disability, 16 Years and over

Chart hovers around 30 million from 2015 to 2020, dips in 2020, then climbs steeply for the next five years to around 35 million.

FRED Population - With a Disability, 16 Years and over Chart hovers around 30 million from 2015 to 2020, dips in 2020, then climbs steeply for the next five years to around 35 million.

Whew.

21.12.2025 21:08 πŸ‘ 147 πŸ” 45 πŸ’¬ 4 πŸ“Œ 22
thisaliennerd: 
chronic pain diagnoses are all like yeah. we don't know what this is or why it happens. we also dont' know how to treat it. good luck out there solider.

girl-mercury:
you got symptoms syndrome. yeah it's permanent. what is it? like... what, is it? well it's a thing where this set of symptoms usually comes in a variety twelve-pack, what do you want. symptoms syndrome. don't overuse the ibuprofen

aralintheobsessive:
you should probably also get checked out for Overlapping Symptoms Syndrome, they often come as a two-for-one kinda deal. what can we do if you've got that too? well we can tell you to exercise. it'll probably make some of the symptoms better but others worse. yeah, worse. it's all we've got so take it or leave it.

slivergyrphonart:
alright fine if you really want a recommendation, we can at least tell you to ignore all the advice your well-meaning friends and family give you. healthy people advice will make most of your symptoms worse. you need advice from other people with symptoms syndrome. lower your standards about peer review because actual data doesn't exist yet.

thisaliennerd: chronic pain diagnoses are all like yeah. we don't know what this is or why it happens. we also dont' know how to treat it. good luck out there solider. girl-mercury: you got symptoms syndrome. yeah it's permanent. what is it? like... what, is it? well it's a thing where this set of symptoms usually comes in a variety twelve-pack, what do you want. symptoms syndrome. don't overuse the ibuprofen aralintheobsessive: you should probably also get checked out for Overlapping Symptoms Syndrome, they often come as a two-for-one kinda deal. what can we do if you've got that too? well we can tell you to exercise. it'll probably make some of the symptoms better but others worse. yeah, worse. it's all we've got so take it or leave it. slivergyrphonart: alright fine if you really want a recommendation, we can at least tell you to ignore all the advice your well-meaning friends and family give you. healthy people advice will make most of your symptoms worse. you need advice from other people with symptoms syndrome. lower your standards about peer review because actual data doesn't exist yet.

This is one of the best synopses of Symptoms Syndrome I've ever read 😭

11.12.2025 20:44 πŸ‘ 319 πŸ” 105 πŸ’¬ 14 πŸ“Œ 16
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Octopuses use their arms to sense and respond to microbiomes on the seafloor From the beginning of life on Earth, microbes, small but influential single-celled organisms, have shaped the environment that animals must adapt to in order to survive. Distinct microbial…

Octopuses use their arms to sense and respond to microbiomes on the seafloor news.mongabay.com/2025/12/octo... πŸ¦‘πŸ§ͺ🌎

01.12.2025 17:57 πŸ‘ 86 πŸ” 25 πŸ’¬ 1 πŸ“Œ 4
Abstract landscape painting: Blue green mothership storm with heavy rain at bottom with a green field in foreground.

Abstract landscape painting: Blue green mothership storm with heavy rain at bottom with a green field in foreground.

Let's get #ArtAdventCalendar rolling!

It's December 1 somewhere right now.

Saskatchewan Supercell 32x40in 81x102cm
Oil on Canvas
2019

#Art #Painting

01.12.2025 04:30 πŸ‘ 692 πŸ” 182 πŸ’¬ 10 πŸ“Œ 6
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Long COVID takes $1 trillion global economic toll each year, analysis suggests

Doing nothing is expensive. #LongCovid

www.cidrap.umn.edu/covid-19/lon...

27.11.2025 00:27 πŸ‘ 98 πŸ” 39 πŸ’¬ 1 πŸ“Œ 0
Artistic depiction of ME symptoms by a woman who has the disease, showing a woman slumped over with exhaustion in a river of blue and orange. The text reads, β€œThe Sick Times. Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise. By Simon Spichak.”

Artistic depiction of ME symptoms by a woman who has the disease, showing a woman slumped over with exhaustion in a river of blue and orange. The text reads, β€œThe Sick Times. Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise. By Simon Spichak.”

"People who are performing these studies are extraordinarily ignorant, and their ignorance is dangerous." - Jaime Seltzer
Scientific director of the advocacy group #MEAction

"People who are performing these studies are extraordinarily ignorant, and their ignorance is dangerous." - Jaime Seltzer Scientific director of the advocacy group #MEAction

For up to half of people with #LongCOVID, activities like exercise can trigger post-exertional malaise (PEM).Β Yet Long COVID clinics around the world are offering exercise as treatment while dismissing its serious harms.

Read more from @spichaksimon.bsky.social: bit.ly/4aaDRJW

24.11.2025 16:48 πŸ‘ 64 πŸ” 32 πŸ’¬ 0 πŸ“Œ 3

The fact that asymptomatic Covid cases can lead to Long Covid IMO probably leads to more people attributing illness to vaccine complications than what could actually occurring, when the underlying problem could be a Covid infection.

21.11.2025 18:53 πŸ‘ 577 πŸ” 128 πŸ’¬ 4 πŸ“Œ 11
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"Pluribus" captures the isolation of COVID-awareness in a COVID denialist world For years I've described having Long COVID as living in a horror movie. Now that horror movie (well, prestige Apple TV show) is here.

Living with Long COVID often feels like living in a horror movie. Along with your disease comes a creepy Hive Mind refusal to acknowledge the dangers of COVID infection. In Vince Gilligan's new Apple TV show Pluribus, the Hive Mind comes to life:

www.thegauntlet.news/p/pluribus-c...

10.11.2025 18:41 πŸ‘ 401 πŸ” 159 πŸ’¬ 15 πŸ“Œ 44
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Why I Can’t Just Meet You for Dinner The Reality of Post-Exertional Malaise

My recent piece on the impact of post-exertional malaise. #PEM #LongCovid #MECFS #Disability #ChronicIllness

substack.com/home/post/p-...

07.11.2025 19:04 πŸ‘ 26 πŸ” 9 πŸ’¬ 0 πŸ“Œ 0
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"I DON'T NEED YOU TO FUCKING REWRITE WHAT I'VE JUST WRITTEN!"

28.10.2025 10:46 πŸ‘ 20067 πŸ” 7699 πŸ’¬ 270 πŸ“Œ 1334
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Data c/o @1goodtern.bsky.social

Kaposi sarcoma in adults <45!!

Hospital episodes of tuberculosis (TB) of lymph nodes in the thoracic cavity in 10-18 year-olds.

These are AIDS-defining conditions.

β€œThere are no parallels between Covid and AIDS.”

Suuuuuure πŸ‘Œ

26.10.2025 15:14 πŸ‘ 205 πŸ” 92 πŸ’¬ 9 πŸ“Œ 11
https://www.ajpmfocus.org/article/S2773-0654(25)00146-4/fulltext

This paper was published last week about #COVID, #LongCOVID and its parallels. First, despite the provocative title, I urge people to read the paper the whole way through, rather than making assumptions about what you presume the paper will conclude.

t.co/Mqf822zWJV

1/

20.10.2025 12:35 πŸ‘ 111 πŸ” 43 πŸ’¬ 4 πŸ“Œ 5
Confocal microscopy photo showing astrocytes and amyloid-B

Confocal microscopy photo showing astrocytes and amyloid-B

Viral trigger in Alzheimer’s disease is the real scary spooky #FluorescenceFriday.
Amyloid-β🟣 is an antimicrobial peptide that can be produced to trap pathogens in the brain. But it also induces an extensive neuroinflammatory response, as shown here with 🟠astrocytes. #NeuroCovid

10.10.2025 17:58 πŸ‘ 143 πŸ” 36 πŸ’¬ 2 πŸ“Œ 2

I called him to wish him well
on his birthday
and as we talked he said:
β€œwe’re getting old,
but this year
this year I really felt it,”
and though I wanted to say
β€œwhat you’re feeling
is that you’ve had Covid six times”
it was his birthday
so I just said;
yeah, we’re getting old.

09.10.2025 17:10 πŸ‘ 86 πŸ” 13 πŸ’¬ 0 πŸ“Œ 0
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Opinion | Medicaid Work Requirements Will Devastate People With Invisible Disabilities ME/CFS and long COVID patients must qualify as 'medically frail'

"There is nothing beautiful about shifting the burden onto those least able to bear it. But this is precisely what our nation is now poised to do."

ME/CFS and long COVID advocate Laurie Jones writes on Medicaid work requirements. https://www.medpagetoday.com/opinion/second-opinions/117839?trw=no

08.10.2025 21:09 πŸ‘ 42 πŸ” 22 πŸ’¬ 0 πŸ“Œ 2

SARS-CoV-2 is airborne. It spreads and can linger in the air, a bit like cigarette smoke. High quality masks/respirators are critical to prevent infection from this dangerous SARS virus and other airborne pathogens

05.10.2025 13:36 πŸ‘ 551 πŸ” 168 πŸ’¬ 16 πŸ“Œ 6