Rivka Solomon

Solve M.E. webinar announcement for April 28 on discovering target antigens for dysfunctional T cells in ME/CFS and Long COVID with four expert speakers.

📢 New webinar! Dr. Liisa Selin, Dr. Ayano Kohlgruber, & Dr. Roshan Kumar will discuss "The Discovery of Target Antigens for Dysfunctional T Cells in #MECFS and #LongCOVID."

WHEN: Tuesday, April 28 @ 3:00 pm PT / 6:00 pm ET.

Register here:
https://ow.ly/VnlJ50YmLTQ

Collage highlighting Solve ME/CFS Catalyst Awards honorees with portraits and their research topics on ME/CFS and Long Covid.

🚨 New Catalyst Awards! Solve is funding two groundbreaking studies to advance urgently needed treatment and diagnostic research for #MECFS and #Long Covid.

Read more here:
https://ow.ly/rlfQ50Yl4yN

How Covid Quietly Rewires the Brain Researchers keep discovering more about the long-term neurological effects of SARS-CoV-2.

Do you have #LongCovid and feel like you have to consciously control your breathing?

An NIH researcher studying this wants to connect with patients.

Free link to my story: tinyurl.com/a8e8v4xv

Email me confidentially: j.gale@bloomberg.net

RECOVER-TLC seeks input on planned study of possible Long COVID treatment Announcement February 23, 2026 1 min read Members of the public will have two weeks to provide feedback on a clinical trial testing the safety and effectiveness of a medical procedure that could help people experiencing a range of Long COVID symptoms. RECOVER-Treating Long COVID (RECOVER-TLC) invites patients, caregivers, advocates, healthcare providers, and researchers to provide feedback on its upcoming stellate ganglion nerve block (SGB) clinical trial. RECOVER-TLC wants to collect feedback on this planned clinical trial in the form of public comments on the draft SGB Protocol Synopsis. This draft protocol synopsis (brief summary) contains information about the questions the study will investigate, how researchers will look for answers, and who can join the study. The draft SGB Protocol Synopsis and comment submission form will be made available on the RECOVER-TLC Collaborator Portal on February 23 and will remain accessible for 2 weeks, closing on March 8 at 11:59 pm ET.

RECOVER-TLC seeks input on planned study of possible Long COVID treatment [stellate ganglion nerve block (SGB)]

recovercovid.org/news/recover...

#LongCovid #SGB

Getting ready to watch the livestream; it seems to be starting a few minutes late. I can't promise a full live blog but will do my best to share major updates here (while @mileswgriffis.bsky.social and I also work on our write-up).

Thank you, dear friend. 💝

That’s so kind. Thank YOU for all YOU do.

MEDIA ADVISORY—FOR PLANNING PURPOSES ONLY Livestream: Secretary Kennedy Convenes ‘Leading the Way on Long COVID’ Roundtables WASHINGTON—SEPTEMBER 17, 2025— Health and Human Services Secretary Robert F. Kennedy, Jr. will lead two roundtable discussions to drive actionable steps against Long COVID in the United States — one focused on patient experiences and the other on research. The event underscores the Trump Administration’s commitment to confronting the “invisible illnesses” that affect millions of Americans. WHO: Health and Human Services Secretary Robert F. Kennedy, Jr. FDA Commissioner Dr. Marty Makary NIH Director Dr. Jay Bhattacharya U.S. Senator Roger Marshall (R-KS) U.S. Senator Todd Young (R-IN) Congressman Jack Bergman (R-MI) Additional patients, providers, medical professionals, and others researching, treating, and who have been affected by Long COVID. WHEN: Thursday, September 18 at 2 pm ET WHERE: The event is not open to the public but press and the public are invited to watch the event livestream on HHS.gov, X, YouTube, and Facebook.

RFK Jr is holding a panel on Long Covid the day before Covid vaccines are discussed at ACIP. I wonder if he's going to claim that Covid vaccines cause Long Covid.

Yes, he was a hero too many

Contents How COVID and Long Covid Damage Lung Tissues, and a Drug to Reverse This Damage. . . . . . . . . . . . . . . . . . . . . . . . . 2 A Genetic Risk Score for ME/CFS. . . . . . 2 Solve M.E.’s Guide to Current Clinical Trials. . . . . . . . . . . . . . . . . . . . . . . . . 2 Endogenous Retrovirus Activation in ME/CFS, Fibromyalgia, and a Newly Discovered, Related Disease. . . . . . . . . . 3 Updating the Long Covid Research Index — Results from the RECOVERAdult Study. . . . . . . . . . . . . . . . . . . . . . . . . . 3 A Simple Hearing Test to Measure Cognitive Decline in People with Long Covid. . . . . . . . . . . . . . . . . . . . . . 4 Chronic Inflammation Raises IL-6 to Drive Neurobehavioral Symptoms via Dopamine Disruption. . . . . . . . . . . . . . 4 Register for Solve’s ADDRESS-LC Trial Webinar. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5

Solve ME/CFS Initiative Summer 2025 Chronicle

solvecfs.org/wp-content/u...

#LongCovid #MEcfs

Thank you for these important details

Have you thought of approaching Ken Burns, the documentary filmmaker?

@ztameez.bsk.social, yr fantastic interviews & book r important today, given our current political climate. Question: Did Sumner defended himself or fight back during the canning assault? How long did the assault go on? Did any witnesses try to intervene? I see u as a young Robert Caro. High praise.

Patient-reported treatment outcomes in ME/CFS and long COVID | PNAS Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and long COVID are persistent multisystem illnesses affecting many patients. With no kn...

The study's out--results from a large patient survey on symptoms and treatment efficacy for ME/cfs and Long COVID.

Spoiler alert! "Notably, there is significant overlap in the symptom profiles and treatment responses between ME/CFS and long COVID." (As we all knew.)

www.pnas.org/doi/10.1073/...

Severe ME Artists Project 2025 Learn more about this year’s project

#MEAction is proud to bring you our Severe ME Artists Project 2025 that will feature work from those within the severe ME community and will be in recognition of Severe ME Day on August 8th! We have all the details here and we are happy to help you submit your work: www.meaction.net/2025/07/10/s...

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): An Overview of Symptoms and Current Research | Johns Hopkins Events

#MedEd event -FREE CME/CNE credits for a virtual facilitated discussion on #MECFS -TOMORROW! events.jhu.edu/form/me-cfs

When: July 9th at 12p EST
Where: Zoom
Who: Johns Hopkins, Stanford & Karina (#pwME)
What: Overview of patience experience & current research

#MedTwitter #pwME

BREAKING: Scientists are staging a “science fair” in the lobby of a Congressional building to tell elected officials about the critical knowledge the US will lose because their research grants have been canceled.

Will it be available virtually?

Ask yr publicist send him a copy of yr book

Just bought yr book.

Dear @barackobama.bsky.social: You did a great job with the Bayard Rustin biopic on Netflix. Please consider focusing your next @netflix.com series on Senator Sumner, based on the stellar biography by @ztameez.bsky.social

@davidaxellrod.bsky.social

I don’t have a relationship. But someone here must

@barackobama.bsky.social

@barackobama.bsky.social

Opinion | The Civil War That Never Ended

An inspirational and essential July 4th interview by @nytimes.com great @jamellebouie.net of @ztameez.bsky.social on his new book about Charles Sumner. www.nytimes.com/2025/07/05/o...

I think someone should pitch this to Barack Obama who is a producer of Netflix programs. This really has to be turned into a series.

Opinion | The Civil War That Never Ended

“I knew about Charles Sumner as this U.S. senator who had been caned on the Senate floor as a prominent politician during the Civil War. What I did not know is that more than 100 years before Brown, Charles Sumner tried to integrate the schools of Boston in a case at the Massachusetts Supreme Court”

infographic on the PLRF with an address to register at bit.ly/PLRF-2025

list of researchers presenting, including on T cell responses, foraminal stenosis in ME/CFS patients, and more

list of researchers presenting, including on microclots, PEM pathophysiology, clinical trial results, and more

We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET!

Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.

🗓️ Register: us02web.zoom.us/webinar/regi...

#LongCOVID

Great! Thank you!