Depending on where you live, signs of spring might be happening outside your windows. Many of us do not get to see the change of seasons or if we do we might get a peek here and there.
This poem seemed a lovely way to start the weekend and bring a touch of spring!
www.meaction.net/post/now-ava...
Solve M.E. webinar announcement for April 28 on discovering target antigens for dysfunctional T cells in ME/CFS and Long COVID with four expert speakers.
📢 New webinar! Dr. Liisa Selin, Dr. Ayano Kohlgruber, & Dr. Roshan Kumar will discuss "The Discovery of Target Antigens for Dysfunctional T Cells in #MECFS and #LongCOVID."
WHEN: Tuesday, April 28 @ 3:00 pm PT / 6:00 pm ET.
Register here:
https://ow.ly/VnlJ50YmLTQ
A symptom list doesn’t always show severity.
Our Good Day / Bad Day Questionnaire helps patients communicate real-world function in #MECFS & #LongCOVID.
🔗https://bit.ly/3n9foLx
Educational material by #MERC in collaboration with @openmedf.bsky.social
Text based graphic with soft soothing colors or creams and light greens. Text: Reminder to take care of yourself! Step 1: Close your eyes. Take 3 deep breaths. You can put your hand on your chest and feel the movement. Step 2: Take a few minutes (or however long works for you) and breathe in for 4 and out for 6. Step 3: Say something kind to yourself.
This is your reminder to stop a moment & take care of you. So let's breathe together & take a moment to be kind to ourselves.
If the 3 steps feel too much to do- just take 3 deep breaths & say something kind to yourself. Be as encouraging to yourself as you would to a friend.
Graphics all have black background with red accents and white writing. The #MEAction logo is in top corner. Graphic explaining upcoming Medicaid changes with mandatory work requirements. "Medicaid Facts. One of the upcoming changes to Medicaid is mandatory work requirements. While it is falsely made to sound simple- hey people with disabilities are excluded from that right? - in reality it will be anything but simple. Here are some very important facts to help understand the issues."
Thanks for joining in to learn more about Medicaid so we can prepare for upcoming changes!
One of the changes to Medicaid is mandatory work requirements. While it is falsely made to sound simple- hey people with disabilities are excluded from that right? - in reality it will be anything but simple.
ME/CFS affects millions but isn't part of standard clinical training. This Advocacy Week (Mar 23–27), Solve M.E. & #MEAction Network will ask patient safety agencies to support our mission to introduce #MECFS questions into qualifying national medical exams.
Sign up:
🔗https://ow.ly/GbOp50YoTVe
Announcement for ME/CFS Advocacy Week 2026 from March 23 to 27 with upward arrows and a megaphone graphic. Megaphone in top corner. Solve M.E. logo and MEAction logo under each arrow.
#MECFS affects millions but is NOT part of standard clinical training.
This Advocacy Week (Mar 23–27), Solve M.E. & #MEAction Network will ask patient safety agencies to support our mission to introduce ME/CFS questions into qualifying national medical exams.
Register: https://ow.ly/Tqet50YoPG7
1) A new paper from the Lifelines cohort reports that only 14% of people with ME/CFS received a formal diagnosis.
Thinking deeply about anything. I have to go against my nature and keep it light. Ugh.
Covid virtual Memorial Vigil
Today, March 2nd @ 8pm ET/5pmPT
#MarkedByCovid
We Remember
#LongCovidAwareness
No fun at all.
1) A large study of ca. 2000 ME/CFS patients analyzed post-exertional malaise (PEM) scores and differences between ME/CFS subgroups that mostly experience physical or mental PEM.
This is from Lenny Jason's group in Chicago.
🧵 of highlighted #MECFS and #LongCovid research papers being discussed this week on the Science for ME forum.
23 Feb - 1 Mar 2026
This was an unusual and engrossing book.
Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Feb. 23 - Mar. 1:
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Great job, V!
I uploaded the full version of the video that will be shared at the Symposium for Disability and Accessibility at Yale on April 10th. A short version will be played that day. I uploaded this in advance in case ppl wanted to watch and prepare questions to bring to the conference (10-10:30 am ET)
A single candle burns in the forefront and a multitude of blurred lights are in the background. Text: Disability Day of Mourning March 1st.
CN: violence
.
.
Today is the Disability Day of Mourning. The disability community will gather to remember disabled victims of filicide – disabled people murdered by their family members or caregivers. https://ow.ly/Y9oG50Yn6ar
#DDofM2026 Autistic Self Advocacy Network (ASAN)
I like that!
Graphic listing Bateman Horne Center’s March 2026 online events, including two support groups and a “Coffee with a Clinician” session, with dates, times (MST), and a link to batemanhornecenter.org/events to register.
March events are open for registration
3/3 Support Group: Communicating Needs with Confidence
3/11 “Coffee” with a Clinician: Key Characteristics & Pathophysiology of PEM
3/17 Support Group: Life Stages & Aging with ME/CFS or Long COVID
Register now: http://batemanhornecenter.org/events
Portrait of Dr. Jessica Maya, new VP of Scientific Programs at Solve M.E., with a quote about advancing ME/CFS research and community support.
We’re excited to welcome Dr. Jessica Maya as our new VP of Scientific Programs!
Jessica brings deep experience in research strategy and collaboration, and will help accelerate progress for people living with ME/CFS, Long Covid, and associated conditions.
Join us in welcoming her!
Collage highlighting Solve ME/CFS Catalyst Awards honorees with portraits and their research topics on ME/CFS and Long Covid.
🚨 New Catalyst Awards! Solve is funding two groundbreaking studies to advance urgently needed treatment and diagnostic research for #MECFS and #Long Covid.
Read more here:
https://ow.ly/rlfQ50Yl4yN
300 million people globally live with a rare disease, highlighted for Rare Disease Day on February 28, 2026. Simple graphic with blue background and rare disease day logo #RareDiseaseDay and rarediseaseday.org are listed at the bottom.
We are sharing in support of #RareDiseaseDay! Myalgic encephalomyelitis (aka ME/CFS) is NOT a rare disease but we understand many of the struggles faced by those with rare disease. Some of us also have co-morbidities that are rare. You can learn more at rarediseaseday.org.
Next they’ll try speaking loud and slowly, but still in poorly accented English, of course.
Which is better than what the writers did to her on the show.
Congress rejected massive cuts to US science budgets for 2026, but much of the money still isn’t flowing to researchers.
The culprit? The White House Office of Management and Budget (OMB) is quietly slow-walking the release of funds. 🧵👇
1) 🇩🇪 The steering committee for the National Decade against Post-Infectious Diseases agreed on three measures to be implemented at the start of the decade, includes a genome sequencing project.
(An automatic translation of the German statement is pasted in the image below)
Explanation of Medicaid as a health coverage program for low-income Americans, including children, pregnant women, elderly, and disabled, funded by states and federal government. Simple graphic with cream background and black and red accents. What is Medicaid? is at the top and reply is at the bottom.
Happy Friday! What better way to spend the day than taking a moment to learn about Medicaid? Ok- it is not on my top ten list of fun Friday activities but it is so important to our community. So let’s dive in!
Let's start with the basics- What is Medicaid and how does it work?
#pwME #Medicaid
You can’t make this up.
Trump's plan to fix the health care crisis he created is to let insurance companies raise your deductible to $31,000.
He essentially wants people to pay for virtually no coverage.
What a joke.
Flyer for a Society for Disability Studies talk on living, working, and surviving financially with long COVID by Deborah Lefkowitz, March 2 at 12pm EST. Background is cream with green accents and photo of Lefkowitz (headshot of a person with light to medium skin tone with curly gray hair smiling at camera) Text with further details including it will be a 40 minute talk with 35 minute Q & A. 5 minute break. Access copy of talk and slides provided.
Upcoming virtual talk: Navigating Disability: Living, working, and surviving financially with long COVID with Deborah Lefkowitz will be held on March 2 at 12 pm EST. Register: https://tinyurl.com/r3v5erxr
#longCovid #Disability#pwME
