Oof. I canβt sort out what the threshold is for calling or not calling.
@kristinwrites
Poet, Wife, Mom, LongCovid/MECFS. Looking to connect and learning to advocate. EIC, Poetry @epistemiclit.Bsky.social, @nimblewitlit.bsky.social. Micropoetry chapbook Lift the Mask available widely. www.kristinhoulihan.com
Oof. I canβt sort out what the threshold is for calling or not calling.
π
Spouse is taking the other three to see their sisterβs meet today, bc itβs a home meet on a Friday and bc PEM. I will probably take my second nap if the day bc I feel it coming.
My kids call them βr2d2 birdsβ bc of how they sound
BIG, but also fool me once, you know...
"Vinay Prasad will depart in April, after a year leading the FDA division that approves vaccines and biotech drugs"
π: Liz Essley Whyte / WSJ www.wsj.com/health/healt...
A lot of follow on to-dos from todayβs longcovid dr appointment. Iβm overwhelmed, but Iβm in PEM so I need to let it all be for a day or two at least.
Apparently my child was hit with a water bottle by another child today. Heβs uninjured. But I have asked for more information bc as my spouse saidβ¦ seems like something we shouldβve heard from the school rather than from our kid at pickup?
I had to hear it, so Iβm graciously giving you the opportunity to as wellβ Chicken Banana:
m.youtube.com/watch?v=ig7E...
Between #100SmallPress ARCs and @stanchion.bsky.social book club I got four new books in the mail over the past week.
Spouse (in jest, to our child), shaking his head: βtoo many books! What are we going to do with her?β
Child: βmommy can own a bookstore and work there!β
ππππ
My arms are propped up, one 14inch squishmallow under each elbow. π€ͺ
Yeees sore throat too tho this go around thatβs only showing up if I talk. Ear pain was bad enough to wake me in the night thoβ¦ both ears and throat were some of my early symptoms, I always felt like I was getting a cold but it never hit. Have some sore swollen glands in my throat today too
#DisabilityRepresentation in media matters!
HuffPost has launched βVoices Of Disabled People,β the first national news section dedicated exclusively to #disability coverage. #BlindNewWorld
(Story via @huffpost.com β¬οΈ)
PEM is manifesting as widespread body pain (significantly reduced by three ibuprofen,thank goodness), ear pain (not much touched by ibuprofen but oh well), and shaking β donβt shake much lying down but sitting up, ohhh boy.
Hopefully π€ this is as bad as it gets bc I need more imaging next wk π
Today! Come learn about ways to fix breathing in sleep so the chronic stress response lowers.
New panelists:
Bela Chheda, MD, Inf. disease & internist
Anil Rama, MD, neurology and sleep medicine
Kishan Tarpara, DO, neurologist & sleep medicine at Vanderbilt Autonomic Dysfunction Center
(Free) Online Summer Arabic Translation Workshop Open for Applications
arablit.org/2026/03/06/o...
Black text on a pale blue background that says: March is the awareness month for Long Covid, Endometriosis, and Brain Tumours. So to support those with these conditions, I've made my poetry book about chronic illness free this month. Get your FREE copy at https://Books2Read.Com/U/3RAgOY. There is an image of an ereader with the book The Inadequacy of Words on it, which has a pale cream front cover with a light blue splash and a line drawing of a face with eyes closed.
I'm delighted to announce that my poetry book is available for FREE for the rest of March. It will also be in the Indie Visible Charity Event 30th & 31st March.
I know how hard it can be to explain what life is like with chronic illness. Hopefully my book will help you feel less alone.
Many thanks to @publichealthaction.bsky.social & @airsupportproject.bsky.social for hosting today's Zoom on living with long COVID with @ancirabecky.bsky.social and me. It's been a long six years, but I'm grateful you've been by my side, Becky.
Watch here:
www.youtube.com/live/NK3-hQN...
βMom, you should watch them. Itβs interesting.β (After watching 2 previous @thephysicsgirl.bsky.social videos)
I just cried. Bc Dianna has positively influenced my childβs life - FROM HER BED. Us people in bed, we matter. My spouse says βof course you doβ but itβs not so well recognized. #LongCovid
I very much dislike having to say no when my kids ask if I can read to them. I expected it today bc if my mammogram but I still donβt like it. #LongCovid #MECFS
Itβs SO awesome that Physics Girl put out a new video β I didnβt watch it but my spouse did, bc he was as excited for her as we all are and interested in how sheβs doing.
my 12yo wandered in while it was on and found it so interesting! She just asked spouse if heβll watch more videos with her!
There have been articles in SFGate recently talking about a nasty not covid not flu respiratory virus going around in the area, and popping up on various social media, so Iβm guessing itβs that.
In a plus,Iβd say more than half the people I saw at the health imaging center I was at this morning were wearing masks. Including my mammogram tech.
Spouse (who has been there twice recently with kids) says this is not typical.
#LongCovid #LongCovidAwarenessMonth
Can anyone point me to a resource on how sign "Long COVID" in American Sign Language? I've seen various ways from spelling it out, to using the sign for "Coronavirus" or "COVID-19" followed by "Long" or "Stay". I'm curious if there is any official guidance/recommendations. Many thanks π
There are a BUNCH of #EpistemicLitFamily in here!
@melissafitz.bsky.social
@pleomorphic2.bsky.social
@carriganak.bsky.social
@kathrynreese.bsky.social
@kristinwrites.bsky.social
Itβs a party!
Just emailed this to my daughter. My kids are gonna FLIP
A little snippet from the Lovehurts Audiobook, currently 80% off across multiple platforms, all of which pay authors a far higher royalty rate than Audibl3. As always, thank you for supporting indie authors!!
UBL: books2read.com/u/bpL80l
My composition "a small piece of sky" is being performed as part of the Saskatoon Symphony Chamber Players Time for Toddlers: Teddy Bear Picnic concerts at the Wonderhub in Saskatoon on April 24-25, 2026.
saskatoonsymphony.org/event/teddy-...
Oh how exciting! Congrats!
Now I remember why the last mammogram messed me up so much β the neck movements! Iβm hoping this time will be better bc now we know about manual traction β did it as soon as I got home and reset my alignment #CCI π€