📢 Today @karenlhargrave.bsky.social and @binitakane.bsky.social will be representing #ThereForME on the Task & Finish group for the new delivery plan for ME.
Today's #ThereForME blog outlines six things they'll be looking out for as the delivery plan is finalised.
www.thereforme.uk/p/a-delivery...
The BMJ @bmj.com has published a review of Long Covid interventions that of course recommends CBT and a mental/physical health rehab program. But the studies underlying the recommendations are at "high risk of bias." This is really propaganda.
virology.ws/2024/12/03/t...
Please share widely! This was the best an inquest could do. It took 4 years and the death of my only child to get here.
NHS England must keep to this promise; the simplest change to a long established narrative that killed Maeve and threatens every other person with #ME.
🙏 @gwynnemp.bsky.social
"NHS to review ME services after death of Maeve Boothby O’Neill: Health minister and Nice commit to work to improve patient outcomes after landmark inquest" (The Times):
www.thetimes.com/uk/healthcar...
📣 If you’re in the UK and have not done so already, please email your MP today asking them to get involved with the #LongCovid APPG (All-Party Parliamentary Group)!!
Suggested content for your email can be found here:
www.longcovid.org/impact/news/...
2/
bsky.app/profile/tomk...
Done. Written to Valerie Vaz MP
A pretend polaroid shows Dr William Weir posing for a photo holding a #ThereForME Christmas card. The design shows two presents, one labelled "patient safety", the other "research". The photo is labelled "1".
This second image displays Dr Weir's handwritten message. It reads “Best wishes for Christmas to everyone with ME or Long Covid. You all deserve excellent and appropriate treatment, with a full understanding of its causes. William Weir”
Dec 1: It's Dr William Weir, who has worked with and supported patients with ME for decades.
His message: “Best wishes for Christmas to everyone with ME or Long Covid. You all deserve excellent and appropriate treatment, with a full understanding of its causes. William Weir”
Find #MECFS, #LongCovid, and related news, advocacy and research in our latest News in Brief forum post for w/c 18th Nov.
Topics covered:
News, articles and advocacy
In Memory
Trial by Error by David Tuller
Research news
& Published research
www.s4me.info/threads/news...
Why are they suggesting exercise to "prevent" Long Covid? And CBT as a treatment? Based on "evidence" that doesn't pass the smell test, it seems.
I spoke earlier today with @karenlhargrave.bsky.social about the #ThereForME campaign to bring awareness to lack of care and treatment for patients with ME and Long Covid.
virology.ws/2024/11/21/t...
youtu.be/RiwX9Y0NbiQ
