Brain Tumour Research

This March, more than 1,000 people in the UK will be diagnosed with a brain tumour.

That’s why we’re raising awareness and supporting life-saving research to give patients and families hope. 💛

https://bit.ly/49AIz0x

#BrainTumourAwarenessMonth #TogetherWeWillFindACure

Historic moment for rare cancers!🎉

The Rare Cancers Bill, championed by Dr Scott Arthur MP, has passed its third reading in the House of Lords and will now proceed to Royal Assent - becoming law. 💛

https://bit.ly/4qZ90oA

Wear A Hat Day returns on Friday 27th March! 💛

Host an event in your community, at home or at work and turn a simple idea into a fundraiser that truly matters.

Wear A Hat. Raise Money. Change Lives. 👉 https://bit.ly/4a1RmbR

#WearAHatDay #BrainTumourResearch #TogetherWeWillFindACure

Why not show your love for SCIENCE this Valentine's Day and donate to my fundraiser for @braintumourrsch.bsky.social? I'm averaging just under 12k steps at day and hoping the rain stays away for the second half of the month so Marvin and I don't have to keep donning the waterproofs.

Donate below ❤️

What the National Cancer Plan means for brain tumour patients As the Government publishes its National Cancer Plan, Brain Tumour Research shares what difference it could make for the brain tumour community.

The Government has published a #NationalCancerPlan aiming to improve survival rates for cancer patients in England. 💛

What does this mean for the brain tumour community? bit.ly/4kje3yy

Thank you to everyone who has shared their stories & campaigned with us for change.

Three quarters will survive cancer by 2035, government promises There are plans for earlier diagnosis and faster treatment in England but experts worry about lack of staff.

The Government will publish the National Cancer Plan for England later this morning. 💛

It lays out a strategy to improve survival rates over the next ten years. We will bring you more on what the plan means for the brain tumour community later today.

bbc.co.uk/news/article...

#NationalCancerPlan

Shane Crommer, 35, lived an active life with his wife and son when fatigue, headaches & vision changes began. Months of misdiagnosis later, scans revealed multiple aggressive brain tumours, a rare diffuse midline glioma. 💛

Read his story: https://bit.ly/3O1Tz0Z #TogetherWeWillFindACure

If you fancy supporting this vital research may I suggest a donation to my fundraiser?

www.justgiving.com/fundraising/...

'My wife knew she wouldn't see our kids grow up' Charlotte Coxon was diagnosed with a grade four brain tumour in 2022 and died in 2024.

Charlotte was 39 when she died from a glioblastoma. Her story is why we fund vital research to give families clearer answers and better outcomes. Brain tumour research can’t wait. 💛

www.bbc.co.uk/news/article...

#TogetherWeWillFindACure #Glioblastoma #Nottingham

The Brain Tumour Research Centre of Excellence at the University of Nottingham officially launches today, a major leap forward in the fight against one of the most devastating cancers.

Together, with research, collaboration and continued support, we will change the story. https://bit.ly/49ZJKbl

We are thrilled to announce that the Rare Cancers Bill has passed its second reading in the House of Lords. 💛

Find out more ➡️ https://bit.ly/4pAm6ru

#TogetherWeWillFindACure #BrainTumourResearch #BrainTumourAwareness

Last week, NICE said that they will give an update on vorasidenib in April, when changes to the way medicines are assessed for cost effectiveness come into effect. We are optimistic about the impact of this change.

We are meeting with the Scottish Medicines Consortium today as part of their vorasidenib review process. We are taking your experiences of low-grade tumours and the lack of effective treatments, to make the case for drug approval. cont...

Less Survivable Cancers receive just 19% of research funding despite causing 40% of all cancer deaths. This glaring inequality is why we're calling for government to #CloseTheResearchGap. @lesssurvivable.bsky.social

👉 https://bit.ly/3Ngg6qF

“I thought it was just a gym injury… until a seizure changed everything.”

Sean Ryan Sweeney, 31, was diagnosed with a grade 3 astrocytoma. In his blog, he shares his journey through treatment and how he cycled to raise £2,500 for vital research into brain tumours. ➡️ https://bit.ly/3N4Zlid

Westminster Hall Debates are an important way of raising awareness of inequalities for patients and influencing Government policy.

You can watch the debate live here on Wednesday 7th January at 9:30am: bit.ly/3GIxEIF

We are calling on Government to ensure that fresh-frozen tissue storage is available in all possible instances. 💛

The way tissue is stored post-surgery has a critical impact on the ability to do this because there is a real risk that powerful information is lost, closing down pathways to clinical trials and innovative treatments.

Many new treatments in development rely on gathering detailed genetic information about the tumour, either straight after surgery or in the weeks and months that follow.

We will be in Parliament on Wednesday for a Westminster Hall Debate on tissue storage for brain tumour patients. We have worked with the Shadow Ministerial Health Team to help shape their response to the debate by providing briefings on policy and the key issues for MPs.
https://bit.ly/44SfOfI

This February, challenge yourself to walk 10,000 steps a day and support Brain Tumour Research along the way. It’s a simple way to move more, feel better and be part of something that really matters.

Who’s in? https://bit.ly/3VIoUHi

#10kStepsaDay #BrainTumourResearch #TogetherWeWillFindACure

This milestone includes a new UK-wide Brain Tumour Research Consortium through the National Institute for Health and Care Research, bringing together charities, clinicians, researchers and patients.

We welcome a significant Government investment, with more than £13 million now being made available for research and more funding for trials expected next year.

Millions of pounds for research into brain tumours unlocked!

This is the result of more than a decade of campaigning by our community. Your voices have been heard and real change is happening. Read more ➡️ https://bit.ly/3Yzsu7k

#TogetherWeWillFindACure #BrainTumourResearch #BrainTumourAwareness

#BrainTumourResearch #TogetherWeWillFindACure #BrainTumourAwareness #ChristmasAppeal

Christmas Appeal | Give the gift of Hope this Christmas Help fund game-changing research this Christmas. Your donations turn into research breakthroughs that take us closer to a cure for all types of brain tumours.

Joscelyne is still pursuing her studies in astrophysics and has recently returned to her former love of ballet.

Joscelyne’s family is supporting our Christmas Appeal. braintumourresearch.org/pages/give-h... 🎄

'I've got rare brain tumour aged 20 but there's no way I'm giving up' Joscelyne Kerr received the devastating news after her friends noticed that one of her pupils was dilated.

In December 2023, 19-year-old Joscelyne was diagnosed with a very rare brain tumour and given a prognosis of just 12 to 18 months. Determined not to let it define her, she joined a drug trial and has continued to live by her motto: go big or go home. 💛

news.stv.tv/east-central...

We won’t stop until patients and families get the answers and options they deserve.
Together, we will find a cure. 💛

#BrainTumourResearch #TogetherWeWillFindACure #BrainTumourAwareness

At the same time, we’re fundraising to build a network of seven Brain Tumour Research Centres of Excellence across the UK to drive life-changing breakthroughs.

We are the only UK charity dedicated solely to funding long-term, sustainable research across all brain tumour types, and we’re campaigning for the Government to invest £35 million per year to accelerate discoveries.