Mae Be Exhausted

Happy belated birthday - I hope you can redeem it somehow now or in the future and have a day where you celebrate you!

I am an editor & technical writer. All I seem to do is organize digital files from clients and constantly replace said files with newer files. Trying not to lose track of what is what.

#MigraineChat is on indefinite break but I'm resurrecting an old question in honor of the Olympics/Paralympics:

In what event would you win gold if there were #migraine or chronic illness Olympics?

It's like the bobsled, but for the face

Most Miles Traveled For Care

(Including my 23 yrs of caregiving for my 3 now-adult kids with rare disease... and then becoming disabled myself.)

And as we all know, you can't just start aggressively shopping pain doctors. I'm not on any opioids but there is still the stigma of being a pain patient looking for 2nd/3rd opinions.

Let me be clear, I have a ton of NPs and PAs who are wonderful. I'm not one of those "MD only" kind of medical patients. But alas, just like docs, they can be dismissive assholes too. I know, I know... it's the system. But still. Ugh.

My pain neurologist that handles my spinal damage left. And his replacement left a few months after that. I'm now stuck with the NP who was GREAT at my 1st visit. Today was visit #3 or 4 (can't remember) and she has been awful ever since that 1st one. No help, rude, super quick, dismissive.

Currently experiencing that chronic illness phenomenon where you see a new doc 1st time and they seem to really want to help you ... and then the next 2-3 followup visits they are short, dismissive, and no real help at all. Feels kinda like bait and switch ya know?

Y'all I am so fucking tired in every possible way.

YES. Some days I drink a soda or put sugar in my coffee simply because I need the calories and actually for the first time in my life need to gain some weight.

The healthy eating discourse is one of the most frustrating forms of ableism out there. It's subtle but it is very harmful. And after years of disability I am so so sick of the wellness = guaranteed good health propaganda.

In the last decade I've lost parents, family and friends to it. I guess they were always somewhat this way deep down, and I just didn't know or realize how hateful, bigoted, racist, and vile they really were underneath. The knowing hurts, but I won't forget.

Looks like one of those Fisher Price shape sorting toys for babies and toddlers to me... ;)

In my little red rural corner of the USA, I would venture to say at LEAST 60% of my fellow teachers would have been considered MAGA type folks then and many of them are outwardly MAGA now. I watched them vote against their own professional interests REPEATEDLY. It's sick.

I heard some really god awful things my fellow teachers would say about their students; especially the poor and disabled ones. So much so that when my middle child with ultra rare disease started school, I was unable to let her go into that system. We pulled out & did homeschool (worked for us)

I'm a former teacher in the south. I could easily name you at least 10 teachers I worked with that would have called in a student like this lady did. People like to worship teachers (and nurses too) - but they aren't living in some moral vacuum. They are part of the problem in some schools/areas.

I work in an industry that was hit incredibly hard by tariffs this year and I made $30,000 less than I did in 2024. I am seething. But then again I have been. This is just a different type of

So, Board of Peace today ... War with Iran tomorrow. Got it.

The UK arrested Prince Andrew. Hakeem Jeffries is telling Democrats not to boo Trump at the State of the Union.

All day long! Fabulous day of watching

FYI I've stopped saying "pain-free" for myself and others who deal with chronic pain. At this point I'll take a day with less pain than the day or night or minute before, you know? It's been an awful kind of acceptance. I'm sorry you are struggling my friend.

I am so sorry. I think I got 4 hours last night because of same kind of pain in my shoulder and neck. I've thrown EVERYTHING at it I know to do medically and holistically and I still can't sleep when I get in horrible spirals like this. Sending you wishes for a peaceful pain-less kind of day

Semi-rural area of NC which is probably no surprise - BUT! You'll find them in random parking lots and public places sometimes. They do not just stick to the woods. And god forbid you get near one when it's in mating season and looking for his lady!

Someone has sure already made this observation but the fact they can convert all those empty warehouses into prison camps means they could have converted them into housing, community centers, job training centers or, hell, libraries or schools all along. It’s always a matter of will not resources.

Also, the poor Welsh. Always the bridesmaid, never the bride.

Might seem drastic but I absolutely have cut people out of my life because of this. It gets real old after years and years of disability and chronic illness to have to listen to that mess on repeat from clueless & insensitive and ableist people

I'm Q*bert years old.

My husband works for a UAW automaker and I felt 100% confident the union would back him and do everything in their power; I was not as confident in the employer making the final call. Happy to be proven wrong. This guy deserves a parking spot up front for life.

Thank you; it's similar in the sense you are born with the cyst - it's from where something doesn't form exactly right in the pituitary. And it just fills up with fluid over the years (or doesn't, for some folks). I appreciate the feedback!