@narcoplexic
Artist/Author/Photographer/Skateboarder An independent advocate for Sleep Disorders & Type 1 Narcolepsy w/ severe Cataplexy. Narcoplexic.com youtube.com/@Narcoplexic Narcoplexic.printify.me NarcoplexicArt.etsy.com Patreon.com/Narcoplexic
"Leo's Daily Normal" - a graphic novel series illustrating the reality of life with different sleep disorders.
Edition #1 is available now.
Edition #2 is in production.
Support independent advocacy.
patreon.com/Narcoplexic
#Narcolepsy #SleepApnea #DSPD #PatientAdvocacy #GraphicNovel #SleepHealth
Will be on the podcast:
'Sleep Is My Waking Passion'
Fri - Nov. 21st 2025
www.askthesleepmd.com
I'll be speaking on living with Type 1 #narcolepsy, severe-complete #cataplexy, evolving the terminology as well as my efforts toward bridging the gap between the clinical science & the human experience.
Reach out to Dr. Anne Marie Morse (DAMMgoodsleep).
She is at the top of the field and she is genuine, caring while very knowledge-able.
My life was dramatically altered at the age of 20 from severe complete Cataplexy on a regular frequent basis, I'll never be able to live how I could before. I'm 45 now and still impacted by those effects.
So many trade-offs in this life, things most can't fathom not being part of their normal...
Which makes it extremely hard for people to not just get off them, but be able to return to their baseline in any reasonable amount of time, if at all.
Most diseases have a drug or two that work, with N there is a commonality that it takes different combinations over time, changing regularly too.
There are people like myself, who have never tolerated nor benefited from any of the stims, antidepressants, or any of it. Hoping the Orexin Agonists will be tolerable and beneficial but time will tell.
As for the older stimulants, they have an EDS compounding effect when withdrawing from them.
As for the schizophrenia, I heard Dr. Ortiz say that around or less than 1% of PWN have or receive a dx of such. But the misdiagnosis is not uncommon - because of how misunderstood, little is understood, by the common doctors out there, when it comes to N.
Narcolepsy is brutal, and so barely begun to be understood, far less recognized, comprehended and furthest of all acknowledged for what it is and can be -> neurologic system dysfunction + many comorbidities, sensitivities, etc.
The meds can work for some, not all, and most have to juggle over time.
#birds #herons #rabbit
This American Goldfinch looks more like Cotton Candy!
#birds
Narcoplexic.com
Learn about Cataplexy in this interview I did on 'Sleep Science Today' Podcast with Andrew Culsky.
youtu.be/zjAoNY1L7gs?...
#narcolepsy #cataplexy #invisibleillness #raredisease #chronicillness #awareness #advocacy #sleepdisorders #sleeppeeps #sleepapnea #sleep #sleepmedicine
narcoplexic.com/el-vinculo-n...
Available in English, Spanish and Japanese - with French version coming soon.
#narcolepsia #narcolepsy #brainfog #chronicillness #invisibleillness #raredisease
narcoplexic.com/the-profound...
#narcolepsy #hypersomnolence #idiopathichypersomnia #sleepdisorders #chronicillness #invisibledisease
#notalone
Good to see some studying/focus into the Orexin A.
narcoplexic.com/the-unrecogn...
#brainfog #idiopathichypersomnia #narcolepsy #hypersomnolence #hypersomniadisorders #sleepdisorders #sleeppeeps
Big stuff:
"Locus coeruleus neurons facilitate muscle tone, thus their loss is responsible for cataplexy. These noradrenergic neurons also have ascending axons and their loss decreases altertness ( doi.org/10.1101/2025... )"
teams.semel.ucla.edu/sleep-research
#narcolepsy #cataplexy #sleeppeeps
narcoplexic.com/selfies-from...
#AASM #SLEEP2025 #sleeppeeps #narcolepsy #advocacy #SRS #AAPS #invisibleillness #chronicdisease
narcoplexic.com/the-cost-of-...
narcoplexic.com/breaking-thr...
narcoplexic.com/bridging-the...
#narcolepsy #advocacy #invisibleillness #chronicdisease #sleeppeeps
Criminals who belong behind bars.
Cataplexy is a brutal symptom/condition that is part of having Type 1 Narcolepsy; few people understand or can begin to fathom it, for what it is to live with.
The claim is completely respectable.
#birds #owl #hawk
#birds #barredowl
That was to hit on the current, Orexin B formula in trials.
They don't seem to be improving the disrupted nighttime sleep.
Perhaps, an alternate Orexin B formula will work for improving nighttime sleep?
Likely daytime Agonist, with the Oxybate's or other nighttime med/s, will be necessary for some.
The upcoming, currently in trials, Orexin B Agonist seems to help with wakefullness.
Whether that means a plethora of other things like vigilance, emotional processing, alertness, energy levels, appetite/metabolism, etc (& so much more); is to be determined.
Improved sleep, does not seem to be part.
Please figure out how to help with the disrupted fragmented nighttime sleep side of Narcolepsy, not just the excessive daytime sleepiness side.
