Hi everyone, Iβm sorry I havenβt followed up from the last zoom on our next group hangout, I have progressively gotten worse and am not functioning well. Promise I will set a recurring schedule for us once I am more stable π€π₯Ί
@chronicillnessfc
An inclusive community, resource hub & mutual support for people w/chronic & invisible illness. Friendship & Digital hangouts! πSF #EDS #MCAS #POTS #MECFS #PMDD #AuDHD #PTSD Mental health advocate, indigenous #LGBTQIA+π Sign up at the form belowπ€β¨
Hi everyone, Iβm sorry I havenβt followed up from the last zoom on our next group hangout, I have progressively gotten worse and am not functioning well. Promise I will set a recurring schedule for us once I am more stable π€π₯Ί
Sensitive club here too!!!
Glad youβre good now. Sorry about your big crash. π₯Ίπ€
Woah
They donβt!?
Iβve been really wanting to try it - does it make u really exhausted to even get out of bed? Hope todays getting betterπ€
Congratulations!!!!
Commenting so I can come back and share Resoruces as I come across them π€
Itβs really really wonderful. Im glad they did. Thank you!!!
I want to start something like this in the US π₯Ή
We appreciate you over here!
Wow this is freaking incredible. π₯Ί
Love this journey for you
Hi Bluesky, Iβm @gabbyoglesby.bsky.social & kinda new here. Iβm hosting a hangout this weekend for anyone w/chronic or invisible illness to come make friends!
If youβre up for new friends & around, come, Iβd love to meet you! Itβll be on zoom π€ Sign up here:
docs.google.com/forms/d/e/1F...
Thank you π₯Ίπ€β¨
When will be the next one, friends? Weβd love to attend.β¨
Your bio made me laugh so hard thank you.
#bajablastforever
Ahh The lovely cloud backups.
I wish all your data to be restored, as it was, COMPLETE AND IN ORDER
π€π€π€π€π€
as they should have!!!
Iβll be requesting a prior authorization from Aetna stat for MEDICALLY necessary treatment for all pre & post operative treatment from MD rahaeli, from now on.
Teach me your ways π€£ Iβll pay for a masterclass
So when will YOU be accepting new patients? π π₯²
ππ€π€π€π€π€
I AM CRYING. I really can not thank you enough for these resources. Seriously.
Also, Iβm really sorry to hear about your laptop meltdown. I can offer some tech support if you ever need it. β>
Iβm pretty savvy when my energy allows me to do things. Iβm @gabbyoglesby.bsky.social π€
π₯Ίπ₯Ίπ€π€ I DEEPLY appreciate you
You just probably gave me back 6 months of my life in the next 2 years. thank you for sharing this. ππ€β¨
They have never heard of anyone else having this before :( even after telling them about MCAS etc - and I am supposed to have a few surgeries & procedures Iβve been putting off - any help would be much appreciated if you have any bandwidth to share β¨π€π€π€π€π€
Hi rahaeli, I was wondering if you ever had energy to find that list or if you remember how to find it. Iβve been having extreme reactions to anesthetics and Iβm trying to find some data to share with my providers. Iβve asked all my providers at UCSF & Anesthesiology at UCLA and they all say
Yes they also have that advocate nurse email / line available to call!
This made me scream laugh. HAHAHA
Punk rock pole dancing sounds so epic
Omg I want!!!
Thank you for what youβre doing β¨π€
Love what youβre doing thank you π₯Ίπ€
Preach