Katie Holten

Screenshot of a slide from Dysautonomia International. There are three colored bars on a graph representing NIH funding per patient in 2025. A huge blue bar shows that 250 million dollars are spent on 1 million Parkinson’s patients. A large orange block shows 100 million dollars spent on 1 million patients with Multiple Sclerosis. A tiny, almost invisible blue line shows that 1 million dollars are spent on 3-6 million POTS patients. The NIH spends 50cents per patient on research for POTS, a common form of Dysautonomia. Dysautonomia is an umbrella term for multiple conditions affecting the autonomic nervous system. The most common is POTS = Postural orthostatic tachycardia syndrome, a condition characterized by an abnormally large increase in heart rate upon sitting up or standing.

A picture says a 1,000 words! Today I met with staffers in Senator Schumer & Senator Gillibrand’s offices to advocate for #Dysautonomia patients. Grateful to staff for meeting with us virtually. As you can see—research funding is inadequate!

@schumer.senate.gov @kirstengillibrand.bsky.social

Wonderfully exhausted after 2 days of meetings on Capitol Hill. Grateful to all the staffers who met with us for Dysautonomia Advocacy Week 2026.

Autonomic nervous system disorders, collectively known as #dysautonomia, affect over 40 million in the US.

WE NEED MORE RESEARCH!

@schumer.senate.gov

Dysautonomia is a chronic complex illness affecting 40+ million people in the US. It’s an invisible illness. The research funding is also invisible!

$250 million for 1 million Parkinson’s patients

$100 million for 1 million patients with MS

$1 million for 6 million POTS patients

#Dysautonomia

Screenshot of a slide from Dysautonomia International. There are three colored bars on a graph representing NIH funding per patient in 2025. A huge blue bar shows that 250 million dollars are spent on 1 million Parkinson’s patients. A large orange block shows 100 million dollars spent on 1 million patients with Multiple Sclerosis. A tiny, almost invisible blue line shows that 1 million dollars are spent on 3-6 million POTS patients. The NIH spends 50cents per patient on research for POTS, a common form of Dysautonomia. Dysautonomia is an umbrella term for multiple conditions affecting the autonomic nervous system. The most common is POTS = Postural orthostatic tachycardia syndrome, a condition characterized by an abnormally large increase in heart rate upon sitting up or standing.

A picture says a 1,000 words! Today I met with staffers in Senator Schumer & Senator Gillibrand’s offices to advocate for #Dysautonomia patients. Grateful to staff for meeting with us virtually. As you can see—research funding is inadequate!

@schumer.senate.gov @kirstengillibrand.bsky.social

Selfie taken after I got a Novavax COVID vaccine in a CVS pharmacy. I’m a tired looking white lady wearing a black face mask showing off the love-heart bandage on my upper arm. The wall behind me is red with a sign that says Consultation Room. Vaccines save lives!

Photo of an old tree growing outside the entrance to a CVS pharmacy on Santa Monica Blvd in West Hollywood, Los Angeles. Lots of little ferns are growing on the trunk, blue sky above. Maybe this is a Jacaranda tree?

March is Long COVID Awareness Month. There is no cure for #LongCOVID. Millions live with life-altering symptoms & without adequate care. We need research & policy change that reflects the scale of the crisis. Vaccines and masks help! I got my Novavax vaccine under a tree. 🌿

#LongCovidAwarenessMonth

March is Long COVID Awareness month. This is a great time to share our stories of living with #LongCOVID.

Not sure where to start? This article has tips & key takeaways from the webinar (video👇) hosted by @thesicktimes.org 🙏

HOW TO WRITE AN OP-ED ABOUT LONG COVID: thesicktimes.org/2026/02/24/h...

The message from MaskTogetherAmerica invites you to sign a petition to NYC Mayor Zohran Mamdani asking NYC to recognize Long COVID Awareness Day by lighting up the City Hall in teal on Mar 15 every year. The picture of NY City Hall was manipulated to show it lit up to honor the International Long COVID Awareness day. Mayor Mamdani, please make our wish come true!  More info here: https://masktogetheramerica.org/blog/nyc-should-light-up-in-teal-for-international-long-covid-awareness-day-we-wrote-to-mayor-mamdani

Let's sign this petition to @mayor.nyc.gov asking NYC to join Los Angeles and other cities around the world in recognizing Long COVID as a historic struggle. We want New York City Hall to light up in teal on March 15 in observance of #LongCOVIDAwarenessDay. actionnetwork.org/petitions/pe...

HELLO NYC! It would be awesome to see City Hall and/or the Empire State Building light up in teal for Long COVID Awareness Day on March 15th.

DEAR MAYOR @zohrankmamdani.bsky.social & @nishaagarwal.bsky.social, please acknowledge c. 1 million New Yorkers who’ve suffered from #LongCOVID 🙏

We’re heading into dark times. This is how to be your own light in the Age of Trump Having studied authoritarian states for over a decade, I would never exaggerate the severity of the threat we now face. But an American kleptocracy is exactly where president-elect Trump and his backe...

Remember almost 10 yrs ago, in 2016 when Trump won his 1st election?

Days later, many of us shared @sarahkendzior.bsky.social's newest column "We're headed into dark times. This is how to be your own light in the Age of Trump."

Did you do what she suggested? Read it now, do it again, or start.

Opening today, 12-4pm. Aletheia by callie d. cohen at Eidmann Gallery, 1332 3/4 Miller Drive in West Hollywood, Los Angeles. Exhibition runs through March 2nd.

Entrance via this staircase, unfortunately the space is not wheelchair accessible.

www.calliedcohen.net

Photo of a black car with a white poster taped to the back passenger window. The sign says IMPEACH. CONVICT. REMOVE. There are seven tall palm trees behind the car reaching up to a big blue sky in Los Angeles.

HE’S UNFIT! #IMPEACH

We’re in Los Angeles for work and just got picked up by *the best* car! IMPEACH CONVICT REMOVE signs are taped to the passenger windows with a QR code 🗽

citizensimpeachment.com

Friends, if you happen to be in LA, please join us tomorrow!

Eidmann Gallery extends a warm invitation to callie d. cohen’s exhibition, Aletheia

February 25 - March 2

Opening: Wednesday, February 25, 12-4pm

1332 Miller Drive, Los Angeles

www.calliedcohen.net

Yes, there will be hummingbirds!

HELLO NYC! It would be awesome to see City Hall and/or the Empire State Building light up in teal for Long COVID Awareness Day on March 15th.

DEAR MAYOR @zohrankmamdani.bsky.social & @nishaagarwal.bsky.social, please acknowledge c. 1 million New Yorkers who’ve suffered from #LongCOVID 🙏

Miles, a white, bearded man in his early 30s poses for a selfie infront of City Hall in Los Angeles. He wears a n-95 mask, white shirt, and bolo tie. It’s a sunny, Southern California day.

Three supporters of the Long COVID Awareness Day motion stand outside city hall. They all wear high quality black masks and pose for a photo infront of colorful tile.

BREAKING: the city of Los Angeles just officially recognized Long COVID Awareness Day, and will light City Hall teal in observation of the day on March 15.

I was at the City Hall meeting and just spoke with the advocates that made it happen. Story to come in @thesicktimes.org!

Selfie! I just got my novavax covid vaccine at CVS. I’m wearing a black face mask showing off my little love-heart bandage on my upper arm and the wall behind me is red.

Photo of a gorgeous old tree growing outside the entrance to CVS pharmacy on Santa Monica blvd in West Hollywood, Los Angeles. Lots of little ferns on the trunk, blue sky above.

Awesome! Thank you all for advocating for #LongCOVID awareness. I’ve been in Los Angeles a week now and feel like a lone masker, so it’s nice to meet you and see other maskers in LA! I’m happy, just got my #Novavax COVID vaccine booster under this gorgeous tree.

Photo of a black car with a white poster taped to the back passenger window. The sign says IMPEACH. CONVICT. REMOVE. There are seven tall palm trees behind the car reaching up to a big blue sky in Los Angeles.

HE’S UNFIT! #IMPEACH

We’re in Los Angeles for work and just got picked up by *the best* car! IMPEACH CONVICT REMOVE signs are taped to the passenger windows with a QR code 🗽

citizensimpeachment.com

Friends, if you happen to be in LA, please join us tomorrow!

Eidmann Gallery extends a warm invitation to callie d. cohen’s exhibition, Aletheia

February 25 - March 2

Opening: Wednesday, February 25, 12-4pm

1332 Miller Drive, Los Angeles

www.calliedcohen.net

Yes, there will be hummingbirds!

March is Long COVID Awareness month. This is a great time to share our stories of living with #LongCOVID.

Not sure where to start? This article has tips & key takeaways from the webinar (video👇) hosted by @thesicktimes.org 🙏

HOW TO WRITE AN OP-ED ABOUT LONG COVID: thesicktimes.org/2026/02/24/h...

This was the coolest event! If you have any interest in writing Long COVID stories — or just generally want to feel encouraged by being surrounded by a panel of incredible people who just get it — you should definitely check it out!

Opinion | One Year of Trump. The Time to Act Is Now, While We Still Can.

The only way to avoid losing freedom, is to use it: to claim all the room there still is for speaking, writing, publishing, protesting, voting. It’s what the people of Minnesota are doing, and it’s something each of us needs to do — right now, WHILE WE STILL CAN. Story by M. Gessen.

GIFT LINK

Hi everyone, I earned my PhD from the Department of Child Study and Human Development. My studies, research, and professional work focus on how positive media use among children and young people… |... Hi everyone, I earned my PhD from the Department of Child Study and Human Development. My studies, research, and professional work focus on how positive media use among children and young people ca...

DOCTOR Rümeysa Öztürk has earned her PhD!!

U2 - American Obituary (Lyric Video) YouTube video by U2

U2 dropping a new surprise 6-song album explicitly addressing the hellscape of our nation.

Wow. Stunning stuff.

The world is with us.

www.youtube.com/watch?v=Y3zi...

Great! Dig it all up and plant trees and native plants and low water drinking plants, install outdoor classrooms and stormwater capture features, and more plants! 🌿🌾🌳

I was spotted at Stonewall with one of my flowers. “Are you okay?” Those were the final words of Alex Pretti. “I’m not mad at you,” the final words of Renee Good. I’m sad and angry as hell, so I started drawing wild flowers. Minnesota’s state flower is the pink and white lady’s slipper.

#AbolishICE

Remember: not all disabilities are visible

Hooray! Thanks for sharing 🙏

"Please keep priority seating available for riders with disabilities. Remember: not all disabilities are visible" is the announcement I just heard on the Light Rail in Seattle. I have never heard that second sentence before, hooray for progress, wherever we can find it.

None of this stuff is going to be fast. It's a long-term struggle as it has always been.

“I think all the older people out in the streets are heroic.” ~Rebecca Solnit ✊

@riseandresist.bsky.social 👀

Earthly Love! A recording of the conversation between Ross Gay and Aimee Nezhukumatathil with Mary Evelyn Tucker is now available with captions. Loved it all. The first question: How do trees speak to you? 🥰

@orionmagazine.bsky.social @yaleforestry.bsky.social
#NatureWriting #BookSky #LoveEarth

Selfie, I’m holding a sign shaped like a love heart up in the air. The heart says: WE ❤️IMMIGRANTS. HANDS OFF NYC. The sky is bright blue, tall buildings at the edges of the photo. It was so warm today in the sunshine that I took off my coat and rolled up my thermal sleeves! Indivisible 50501

Today, we handed out free whistles and Know Your Rights cards & zines at the Union Square Green Market. It was beautiful. Heart wrenching moment—a man came quietly to us and whispered, “I’m an immigrant, I’m undocumented.” He told us he’s scared. He prays every day. 🙏

@50501newyork.bsky.social