A symptom list doesn’t always show severity.
Our Good Day / Bad Day Questionnaire helps patients communicate real-world function in #MECFS & #LongCOVID.
🔗https://bit.ly/3n9foLx
Educational material by #MERC in collaboration with @openmedf.bsky.social
Free self‑paced education for ME/CFS, Long COVID and related conditions, from Bateman Horne Center & Emerge Australia
Through our ongoing partnership with @emergeaustralia.bsky.social, self-paced modules on PEM, pacing, orthostatic intolerance & sleep remain available for those living with ME/CFS & Long COVID.
Accessible. Practical. Built with lived experience + clinical insight.
🔗https://emerge.org.au/lea-ea-bhc/
Chronic illness can change how we communicate.
Join our March Support Group:
Tues, March 3
1:00 pm MST
Topic: Communicating Needs with Confidence
We'll talk about expressing needs, feeling heard, and navigating relationships.
Register: https://batemanhornecenter.org/events/
Green and tan event poster with the Society for Disability Studies logo in the top left. Event takes place March 2 at noon Eastern Time. Deborah Lefkowitz will give a talk titled "Navigating Disability: Living, working, and surviving financially with long COVID." Description reads "Long COVID, described as a 'mass disabling event,' forces millions of Americans to take time off work, work part-time, or leave the workforce altogether. Drawing on her extensive interview data, Deborah Lefkowitz discusses how individuals with long COVID navigate disability within complicated, not always consistent, legal, administrative, and workplace requirements." This event will include a 40-minute talk with a 35-minute Q&A after. Access copies and slides provided, and there will be a 5 minute break midway." On the right is a picture of Deborah, a white woman, smiling, with brown eyes, and wavy, salt-and-pepper hair.
Join us on March 2 at noon Eastern for one of our last events for the spring semester! Deborah Lefkowitz will give a talk on Long COVID and disability. Please email access needs to our admin assistant Gaby at admin@disstudies.org.
Register today at tinyurl.com/r3v5erxr 1/2
Graphic listing Bateman Horne Center’s March 2026 online events, including two support groups and a “Coffee with a Clinician” session, with dates, times (MST), and a link to batemanhornecenter.org/events to register.
March events are open for registration
3/3 Support Group: Communicating Needs with Confidence
3/11 “Coffee” with a Clinician: Key Characteristics & Pathophysiology of PEM
3/17 Support Group: Life Stages & Aging with ME/CFS or Long COVID
Register now: http://batemanhornecenter.org/events
Collage highlighting Solve ME/CFS Catalyst Awards honorees with portraits and their research topics on ME/CFS and Long Covid.
🚨 New Catalyst Awards! Solve is funding two groundbreaking studies to advance urgently needed treatment and diagnostic research for #MECFS and #Long Covid.
Read more here:
https://ow.ly/rlfQ50Yl4yN
Bateman Horne Center cover: how BHC provides complex care today and for the future, with arrow button.
Headline: Depth. Continuity. Time. Body: For every hour face-to-face, our team spends several more hours: • Reviewing histories • Coordinating labs and specialty care • Interpreting complex results • Managing medications
Bateman Horne Center: standard insurance models don't support episodic care; clinic left traditional insurance billing to protect continuity.
No single clinic can meet the global need. Bateman Horne Center: training, open knowledge, practical tools, research.
Complex illness requires depth and continuity. For each hour face-to-face, our small team spends several more coordinating care & reviewing complex results.
We’ve structured care to protect that depth while expanding education and research beyond our clinic walls.
Read more: https://bit.ly/3OuHMZu
What can you expect during a biobank research visit at Bateman Horne Center?
✔️ Provider screening
✔️ Consent review
✔️ Saliva, blood & urine samples
✔️ Supportive research staff
Participant involvement makes this work possible.
Learn more: https://batemanhornecenter.org/research/
Orthostatic intolerance in ME/CFS & Long COVID isn’t just a heart rate issue.
Jennifer Bell, FNP-C, reviews vascular volume support, venous return, heart rate management & individualized medication selection.
Watch the full presentation:
https://youtu.be/NcStTltuDYE
@openmedf.bsky.social #MERC
Blue note pinned on calendar reads: "REMINDER Online Support Group 'Coping with Depression and Emotional Overload' Tuesday, Feb 17, 1:00 pm MST". Bateman Horne Center logo at the bottom right.
Join us tomorrow for our online support group: Coping with Depression & Emotional Overload
Tuesday, February 17
1:00 pm MST
Zoom: https://bit.ly/4npZ4Ud
We’ll talk about managing depression, difficult symptoms, and what helps during dark emotional moments.
Text stating commitment to expanding healthcare access and support nationwide, with a right-pointing arrow symbolizing forward movement.
As Long COVID clinics close nationwide, patients are being left without care. Bateman Horne Center remains open, translating clinical care into education, resources, and pathways that help patients access informed care wherever they live. 💙
Visit https://batemanhornecenter.org/
In December, our community nominated providers to receive printed Clinical Care Guides. This week, those guides are landing in over 150 clinics across the country, each one packaged by hand, with a personalized note.
This is what “access to care” looks like.
youtube.com/shorts/Fo2Wq...
☕ Join our next "Coffee" with a Clinician on Assessing Impaired Function (Clinical Evaluation), with a focus on cognitive impairment in ME/CFS & Long COVID.
Feb 11 | 10am MST
Free | Zoom + YouTube livestream
🔗Register:
We’re releasing a new State-by-State Resource Directory to help people living with ME/CFS and other disabling chronic illnesses find local and national support.
Free, practical, and built for real life.
🔗https://bit.ly/3ZBBIAC
Infographic of Bateman Horne Center's Access to Care Model, depicting four stages: Evaluation, Care Planning, Provider Education, and Patient Support. Pilot planned for late 2026.
We’re building a new way to expand access to care.
Bateman Horne Center is developing the Access to Care Model, a scalable framework designed to extend informed care for ME/CFS & Long COVID beyond a single clinic.
Pilot launch planned for late 2026.
🔗 batemanhornecenter.org/building-access-now/
Woman sitting on bed with laptop; text reads, "Online Support Group: Chronic Illness - Facing Limits and Losses (Moving through Grief), Tuesday, Feb 3, 1 pm MST."
February Online Support Group
Chronic Illness: Facing Limits & Losses (Moving Through Grief)
Tues, Feb 3 | 1pm MST
🔗 https://bit.ly/4npZ4Ud
We’ll talk about depression in chronic illness, coping tools, and emotional support during dark moments. A space for honesty, care, and connection. 🩵
Upcoming online events in February 2026: Support Group on Feb 3 and 17, and "Coffee" with a Clinician on Feb 11. Register at batemanhornecenter.org/events.
February online events are here 💙
Support groups - Tuesdays, Feb 3 & 17
Coffee with a Clinician - Wednesday, Feb 11
Register: https://bit.ly/4npZ4Ud
Office hallway with text: "What happens here doesn’t stay here." Logo at bottom reads "Building Access Now."
What happens inside the clinic doesn’t stay there.
Care delivered at Bateman Horne Center helps shape education, clinical guidance, and access far beyond one location. That’s what we mean by local care, national impact.
As we enter 2026, we’re sharing how this work continues to grow.
🔗
New research from Griffith University shows people with ME/CFS and Long COVID have altered brain connectivity during cognitively demanding tasks, offering insight into brain fog, memory challenges, and mental fatigue.
🔗 news.griffith.edu.au/2026/01/28/a...
Gray background with text: "Long COVID & Post-Infectious Syndromes ECHO. Pediatrics & Young Adults Parts 1 & 2: Diagnosis, Management & Practical Care." Presented by Melanie Hoppers, MD, Bateman Horne Center, Project ECHO, University of Utah Health.
Long COVID affects children and young adults too, often with PEM, orthostatic symptoms, and major impacts on school and daily life.
Learn more in these two pediatric ECHO sessions with Melanie Hoppers, MD:
▶️ https://youtu.be/no1a1A4tMfw
▶️ https://youtu.be/u6PkRNiCbRQ
We agree! BHC is actively working to bring the Clinical Care Guide into medical schools, helping educate future clinicians.
Thank you for sharing 💙
Smiling woman wearing a marathon finisher medal signs a bright yellow poster reading "MOOSE 26.2" with a red marker.
Belief, support, knowledge, and encouragement made an unimaginable difference.”
Amy, a former Bateman Horne Center patient diagnosed with ME/CFS & fibromyalgia as a teen, recently shared that she’s doing well, became a mom, and completed a marathon. 🩵
At BHC, everything starts in the clinic.
As we enter 2026, we’re focused on a guiding question:
How does what we learn here change care everywhere else?
Because the goal has never been to serve only those who can come to us—but to make informed, compassionate care accessible everywhere.
Text saying "Physical Therapy Must Catch Up. Teaching ME/CFS is no longer optional." with Bateman Horne Center logo at the top.
Many physical therapy programs still don’t teach the realities of ME/CFS, including post-exertional malaise. It’s time physical therapy education catches up with the science. Read more in a new blog:
https://bit.ly/49MEYh4
Blue sticky note pinned on a calendar, reminding about an online support group titled "Navigating Loneliness & Rebuilding Connection," scheduled for Tuesday, Jan 20 at 1:00 pm MST by Bateman Horne Center.
Loneliness is a common, and often unseen, part of chronic illness.
Join our online support group on Tue, Jan 20 | 1:00 pm MST for a supportive conversation on Navigating Loneliness & Rebuilding Connection.
You’re welcome to listen, reflect, or share if you choose.
Register: https://bit.ly/4npZ4Ud
Six individuals in a virtual meeting. Text reads: "Strong leadership creates strong results." Logos of Bateman Horne Center, OMF, Solve M.E., and #MEAction displayed below.
Today, the CEOs of @solveme.bsky.social, @meactnet.bsky.social, @openmedf.bsky.social, and @batemanhornecenter.bsky.social met to align, collaborate, and strengthen how we support one another’s work.
Progress isn’t always visible, but it is happening. And we’re doing it together.
#UnitedForME
Event announcement: "Coffee" with a Clinician on Wednesday, January 14 at 10:00 am MST. Visit batemanhornecenter.org/events for details.
How were ME/CFS & Long COVID definitions developed, and why do they matter?
With no single diagnostic test, definitions guide care, communication, and research.
Join Lucinda Bateman, MD, and Lily Chu, MD, MSHS
January 14 | 10:00 am MST
Free & virtual
🔗 Register: https://bit.ly/3JCHAFq
Quote within a white circle on a textured blue background. It reads: "Your organization focuses on patients' practical needs, unlike those emphasizing research only. Day care for ME/CFS is crucial. With appreciation! -BHC Donor"
This donor perspective captures why Bateman Horne Center exists.
Our mission is built on three pillars - clinical care, research, and education - so people with ME/CFS receive care now while progress continues.
Thank you to our donors who make all three pillars possible. 💙
Event poster titled "Definitions Matter." It announces a "Coffee" with a Clinician session on how ME/CFS and Long COVID are clinically defined. Scheduled for Wed, Jan 14 at 10 am MST, featuring Lucinda Bateman, MD, and Lily Chu, MD, MSHS.
☕ Coffee with a Clinician (Jan)
How were the clinical definitions of ME/CFS and Long COVID developed, and why do they matter?
With no single diagnostic test, diagnostic criteria are used to guide care, communication, and research.
Wed, Jan 14 | 10 am MST
Free & virtual: https://bit.ly/3JCHAFq
