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flyawayrage

@flyawayrage

healthcare should be a RIGHT, not a fight ⚡️ musical artist ❤️‍🔥 living w PSC+IBD 🌙 listen to Moonshine⬇️ https://distrokid.com/hyperfollow/flyawayrage/moonshine-demo ❤️‍🔥 find me here⬇️ https://linktr.ee/flyawayrage 🧡🤍💝 | all views are my own

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09.12.2024
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Latest posts by flyawayrage @flyawayrage

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Desperate Dimes: we make em, they take em.. they have us payin’ every damn dime to stay alive.

#independentartist #chronicillness #invisibleillness #disability #newmusic

08.03.2026 03:52 👍 2 🔁 0 💬 0 📌 0

gosh, pink pony club still makes me cry sometimes. maybe it’s silly, but I grew up in TN/VA and moved away to Chicago at 18 to pursue music.. the end of that song really tugs at my heartstrings 💜

07.03.2026 16:36 👍 0 🔁 0 💬 0 📌 0
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desperate dimes: we make ‘em, they take ‘em. especially if you wanna stay alive.

❤️‍🔥find me here: linktr.ee/flyawayrage

#independentartist #chronicillness #invisibleillness #disability #newmusic

07.03.2026 07:15 👍 4 🔁 1 💬 0 📌 0
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desperate dimes: we make ‘em, they take ‘em. updated release coming soon❤️‍🔥

find me here: https://linktr.ee/flyawayrage

the OG demo (not mixed I’m so sorry❣️): https://youtu.be/W_XMDXwxS3A?si=i_3xJXP3shrflJdw

#independentartist #chronicillness #invisibleillness #disabilitytiktok #newmusic

06.03.2026 03:58 👍 6 🔁 0 💬 0 📌 0

We’re only 63 days into 2026 and already, I’ve nearly hit my out of pocket maximum for my health insurance.. the price of healthcare in this country is absolute insanity. 🫠

05.03.2026 06:03 👍 2 🔁 0 💬 0 📌 0
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do you relate? 🌙Moonshine - out everywhere ➡️ https://distrokid.com/hyperfollow/flyawayrage/moonshine-demo
#newmusic #moonshine

03.03.2026 03:51 👍 5 🔁 0 💬 0 📌 0
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make coffee with me 💖 (and go listen to Moonshine! ⬇️⬇️⬇️)

distrokid.com/hyperfollow/...

#independentartist #newmusic #coffee #espresso #latte

02.03.2026 02:04 👍 4 🔁 0 💬 0 📌 0

Thankful to be off prednisone, but already feeling worse after being off of it for 2 days 🙃 need a long term solution! But insurance denied the new treatment I was prescribed. Working on appealing now..

IT SHOULDNT BE THIS HARD

27.02.2026 17:08 👍 0 🔁 0 💬 0 📌 0

Of course isn’t just driving. It’s voting. Working. Travelling. Picking up a package. Applying for credit. Applying for a job. Renting a room. Filling prescriptions. Visiting loved ones in the hospital. Not expired either, but legally invalid.

26.02.2026 01:43 👍 3005 🔁 685 💬 7 📌 16

I love making art, but god it really is all consuming at times. And I’m not sure if that’s a good or bad thing😅

27.02.2026 05:43 👍 2 🔁 0 💬 1 📌 0

so sleepy 😭 so tired. so behind in school (oooof and I am rushing to catch up). flare symptoms have been a little better the past few days, but still having pain. fatigue is really bad today, but I’m thankful for the wins anyway ✨ one thing at a time, one day at a time.

26.02.2026 03:41 👍 2 🔁 0 💬 0 📌 0
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Premonition - coming to streaming later this year 💫

listen to my latest release here —> distrokid.com/hyperfollow/...

find me here —> linktr.ee/flyawayrage

#newmusic #independentartist #originalmusic #chronicillness #spoonie

25.02.2026 00:43 👍 0 🔁 0 💬 0 📌 0

it should not be possible to be this tired 😭

24.02.2026 02:45 👍 2 🔁 0 💬 0 📌 0
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🖤 all original film + music 🌙moonshine ✨ now streaming 💫

🌙 listen here —>
distrokid.com/hyperfollow/...

#loop #independentartist #singersongwriter #chronicillness #newmusic

24.02.2026 02:44 👍 4 🔁 0 💬 0 📌 0
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A song about survival - Premonition, coming soon ⚡️

find me here —> linktr.ee/flyawayrage

#newmusic #originalmusic #independentmusician #chronicillness

23.02.2026 00:10 👍 8 🔁 2 💬 0 📌 0
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1 flare, 2 months of prednisone, 3+ new medications & 1 insurance denial later, and this song is still unfinished - but more relevant than ever. Premonition - coming to streaming later this year 💫

linktr.ee/flyawayrage

#chronicillness #invisibleillness #originalmusic #independentartist #newmusic

22.02.2026 00:54 👍 3 🔁 0 💬 0 📌 0

Fingers crossed 🤞🏼🤞🏼

22.02.2026 00:47 👍 0 🔁 0 💬 0 📌 0

yeah it really sucks, honestly. But, I’ve got a few other options and am trying to be optimistic in the meantime 💜

21.02.2026 20:54 👍 0 🔁 0 💬 1 📌 0

annnnnnd insurance has DENIED the new treatment I was prescribed.. 🚫

I have options and will work to get the care I need, it will just take longer and a lot more effort on my part. And I’m tired ya’ll 🥲 living with a rare disease is hard, man.

#ibd #psc

21.02.2026 01:50 👍 6 🔁 0 💬 1 📌 0

Today: getting repeat labs, meeting with a study doctor about research that could help me, and trying to catch up on my to do list! Life does not stop when you get sick 😵‍💫 #ibd

19.02.2026 16:14 👍 1 🔁 0 💬 0 📌 0

I did do it!!! 😅☺️ It went well, and we have a new plan! ✨💖🙏🏻❤️‍🔥 I’m hopeful it will help

19.02.2026 04:43 👍 1 🔁 0 💬 1 📌 0
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Transgressions - the first song I ever created (honestly I was just trying to figure out GarageBand 😅) planning to re-record +release it on streaming later this year ❤️‍🔥 working through some health stuff first, #ibd + psc are tough to deal with.

getting through it one day at a time ✨💖💫 #newmusic

19.02.2026 04:35 👍 2 🔁 0 💬 0 📌 0

seeing GI today, they fit me in for an urgent appt. fingers crossed we can work together to come up with a plan to get my IBD+PSC back in remission. THEN, hopefully I can get back to making music!

#ibd #psc #spoonielife

18.02.2026 17:29 👍 4 🔁 0 💬 1 📌 0
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Have gotten to the point (in this flare) where sleep isn’t really restful anymore and I’m exhausted no matter what. Hanging in there ❤️‍🔥

Go stream 🌙Moonshine (no, not the drink. unless it speaks to you in that way - art is whatever you need it to be. God knows where’d I’d be without music)

#ibd

18.02.2026 02:06 👍 1 🔁 0 💬 0 📌 0

Thank you 🫂 doing my best!

16.02.2026 04:56 👍 0 🔁 0 💬 0 📌 0
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moonshine by flyawayrage - out everywhere ‼️‼️ listen here ⬇️
distrokid.com/hyperfollow/...

#newmusic #singersongwriter #music #cat #folkmusic

15.02.2026 18:24 👍 7 🔁 1 💬 0 📌 0
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does it feel like 🪐space✨ for you too? or is that just me?

had fun with this one - the last chorus of ✨chromatic💫

#newmusic #independentartist #originalmusic #synth #music

15.02.2026 17:50 👍 0 🔁 0 💬 0 📌 0
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chromatic ✨💫 still need to mix + master this | so excited to share the full song ❤️‍🔥

releases are a bit delayed bc of my health stuff / IBD flare - I’ll post regular updates here, taking things one day at a time right now 🩷

#independentartist #newmusic #sadpop #originalmusic #flyawayrage

15.02.2026 17:45 👍 0 🔁 0 💬 0 📌 0

health has gotten worse, liver labs are now slightly elevated and I’m also having a complication from the prednisone. have spent a lot of time this week trying to get a treatment plan in place with my team. fingers crossed we’ve caught this early and can get things back in remission asap.
#psc #ibd

13.02.2026 12:42 👍 5 🔁 1 💬 1 📌 0
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The ending of Chromatic (instrumental part only here) 💫 full song coming to streaming this Valentine’s Day ❤️‍🔥

all original music + videos - all parts played by me on my little early 2000s midi piano + my violin ✨

#independentartist #newmusic #valentinesday #originalmusic #lovesong #violin

13.02.2026 03:23 👍 2 🔁 1 💬 0 📌 0