Liz Burlingame

Protect Medicaid for People with ME/CFS and Long COVID New Medicaid work rules will take effect at the end of 2026. Our care and support systems have long been rigged against disabled people, and these new paperwork rules will push even more sick people o...

I just signed a @theactionnetwork.bsky.social petition: Protect Medicaid Access for People with ME/CFS and Long COVID. Sign here: actionnetwork.org/petitions/fr...

I’m just gonna keep saying “triple the NIH budget” until it sounds like common sense.

The sane people of the US have been saying the same thing since 2017.

This is really excellent.

'One year of failure.' The Lancet slams RFK Jr.'s first year as health chief In a scathing review, the top US medical journal's editorial board warned that the "destruction that Kennedy has wrought in 1 in office might take generations to repair."

In a scathing review, the top US medical journal's editorial board warned that the "destruction that Kennedy has wrought in 1 in office might take generations to repair."

This man is giving me hives.

1. Any drug is unsafe at the wrong dose. Tylenol and Benadryl overdose are both serious and potentially fatal. “Unsafe” is not a meaningful metric here.

2. If you think the average American can correctly self-manage antibiotic use you’ve never worked in healthcare.

At 3:26pm a runner was seen smiling after seeing a French flag at the fire tower. #BM100

Now TWO left: Damian Hall and Sébastien Raichon. #BM100

Just looking at the picture makes me shiver

Fire tower and the conditions the runners are dealing with.

Freezing fog and the bone chilling cold these conditions create.

The high moisture content and cold conditions wick away and pretence of warmth from even the best gear

#bm100

In addition to the rain, fog is rolling in. Now the Barkley is just playing with the runners. #BM100

Three of the five runners from loop 1 have returned to camp. There are still 2 runners on loop 1, 3 runners on loop 2, and 4 runners on loop 3. #BM100

The 2026 Barkley Marathons began with one of the strongest fields ever. The starting field came from 15 Counties as well as 15 States, and included ten women. The course seemed not to care. Over 70% of the field is done. #BM100

“I’ve never protested before - but I just watched 4th & 5th grade kids run away from our own government.” 😕🇺🇸💔

(From @crindivisible.bsky.social )

From ME Action GA’s @erinmarilee.bsky.social on the Barkley fundraiser:

“We’re pledging a $1 donation to the Open Medicine Foundation for every loop completed in the race. Every dollar donated moves us one step closer to a cure! Celebrate human endurance with us!”

More donation info to come!

Laurie Jones (white woman with long brown hair wearing an ivory sweater) smiles while holding up Visible bands outside on a deck.

Our executive director, Laurie Jones is sending out some love this Valentine's weekend- in the form of refurbished Visible bands! Those of you who won have been notified via email and the first round of bands are on their way! Thank you to Visible!

#PwME #StopRestPace

Gotta say, the language of the Barkley is one of my favorite things about following this race❣️ #BM100

Just wanted to confirm -- that joke was funny 🤣🤣🤣

Knee Guy has begun loop 2. Five runners are on loop two; 35 runners are on loop 1. #BM100

Two French Guys have finished loop 1 in 10:07:46 and 10:08:10, one of whom stopped to put trash bags over his shoes prior to crossing the creek. 🤦‍♂️ #BM100

The documentary is about a quirky, mysterious endurance event in the foothills of Tennessee. You will walk away from this event a superfan of Barkley and fired up about the challenges we can conquer.

Save the date and RSVP here: www.eventbrite.com/e/mecfs-bark... (3/3)

We’re hosting a virtual watch party of the documentary, “The Barkley Marathons: The Race That Eats Its Young.” There will be prizes, trivia, and the reminder that humans can do impossibly hard things and have joy too. (2/3)

Hi Meeps! I've been off socials for awhile, but I'm back to invite you to a party! After big funding losses for the #MECFS community, we need a pick me up. We would love to introduce you to ME Action Georgia’s favorite sporting event of the year - The Barkley Marathons! (1/3)

ICE Makes Me Sick—Fund Healthcare, Not Violence! Tell Congress to stop bankrolling ICE violence while slashing our healthcare and home care.

ICE Make Me Sick! Tell Congress to stop bankrolling ICE violence while slashing our healthcare and home care: makesmesick.org?source=blues...

Infectious Disease Control & Prevention — Unbreaking How the administration is breaking the government, and what that means for all of us.

Our newest timeline tracks actions that hamper our ability to control the spread of infectious diseases, making the US and the rest of the world more susceptible to disease outbreaks, including global pandemics:

unbreaking.org/issues/infec...

Those Who Were Already Here Learning to Live Inside a History I Did Not Choose

The people who live with ME/CFS did not greet Long COVID with surprise. They greeted it with recognition.
Gratitude to
@darthfoo.bsky.social
open.substack.com/pub/centerle...

Check out this helpful resource from our friends at @batemanhornecenter.bsky.social!

#pwME #disability #UnitedForME

'measles outbreak at the child prison' seems entirely avoidable, it's really the kind of thing that only happens if you do several unthinkably evil things on purpose all at once

Public health crisis unfolding in Minneapolis as residents avoid healthcare Providers are arranging home visits and telehealth as neighbors pick up prescriptions, groceries and diapers

The Guardian: 'Public health crisis unfolding in Minneapolis as residents avoid healthcare'

'Providers are arranging home visits and telehealth as neighbors pick up prescriptions, groceries and diapers'

www.theguardian.com/us-news/2026...