Lillian Isabella

Book cover, "Stream and Shale Story Coloring Book: A True Environment Tale to Read Aloud and Color" by Jennifer J. Brown, PhD https://www.amazon.com/Stream-Shale-Coloring-Environment-Children/dp/B0GLYNBTZ4/

"Stream & Shale Story Coloring Book" with my drawings, story of a Citizen's Tour of fracking country in Pennsylvania, + inspiring quotes by environmentalists, 2nd edition, is now up today in print, for children of all ages: www.amazon.com/Stream-Shale... #booksky #SciComm #wildlifeart #coloringbooks

J.J.Brown Author - 11 Great Books for Juneteenth Reading To celebrate Juneteenth add these 11 great books by African American and Black authors to your reading list! Juneteenth celebrates Black excellence, and part of the celebration is honoring great au…

11 Great Books for Juneteenth Reading! A list of my favorites that educate + inspire. jjbrownauthor.com/11-great-boo... #booksky #writingcommunity #books #booklist #juneteenth

J.J.Brown Author - International PKU Day 2025: Hopes and Dreams With PKU in the Family “Hope is a waking dream.” – Aristotle  International PKU Day 2025, I’m reflecting how my hopes and dreams for what follows after a healthcare system reports the baby is “not OK”, …

Happy International PKU Day! “Hope is a waking dream.” – Aristotle / Access to care is something to work on + hope for in order to realize our shared, waking dream. For many of us + families like mine with #PKU. Read my column to mark the day here -> jjbrownauthor.com/internationa... #IPKUDay2025

Rare Creatives' Lives: Advocacy & Artists YouTube video by J.J. Brown Books

Rare Creatives Lives: Advocacy & Artists - Can't have a fire without a spark... www.youtube.com/watch?v=3S4i... Fellow artists @kevinalexander-pku.bsky.social, Pauline O'Connor, Kurt Sensenbrenner and @lillianisabella.com in the #raredisease community inspired my advocacy. Who inspires yours?

Check out this OpEd written my my daughter @lillianisabella.com, whose rare health condition PKU was picked up 9 days after newborn screening in NY. She's more than an advocate on #raredisease, she has one. #PKU.

The volunteer committee advising on newborn screening must be reinstated Cutting the federal newborn screening advisory committee either demonstrates a lack of understanding of the group’s function or represents a worrisome policy shift.

"Without the committee, we have a gaping hole where a collective of leaders once championed for newborn health," - #PKU advocate Lillian Isabella.

#NewbornScreening saves lives. Cutting the committee responsible for #RUSP was a mistake.

Read more in @statnews.com: www.statnews.com/2025/04/24/a...

hands holding infant feet

Maternal Mortality is getting worse--it doesn't have to be that way. open.substack.com/pub/sharonbu...

"Rising Maternal Mortality: When the Hand We Reach for Isn’t There Steps to protect US mothers’ health are urgently needed when the baby comes." By Jennifer J. Brown, PhD at https://sharonbuchbinder.substack.com/p/rising-maternal-mortality-when-the Sharon Buchbinder's Substack Healthcare at the Crossroads. Apr 28, 2025

Childbirth can be the most special of times for a family, but risks of a US mom dying then are up -> 27% higher in 2022 than 2018... at rates triple those of other high-income countries. My new column at @sharonbuchbinder.bsky.social site: sharonbuchbinder.substack.com/p/rising-mat... Please share!

When the Baby Is Not OK: Hopes & Genes Hopes & Genes

Loving Independent Bookstore Day today! 📚An author's dream to reach community members this way. I'm walking over to mine soon. #IndieBookstoreDay here's Bookshop.org's link to locate my new book - on becoming a mom & genetics - at a local indie near you: bookshop.org/p/books/when... #Booksky #books

The ACHDNC provides essential guidance and expertise to help protect newborns from ~treatable~ disorders that would otherwise cause severe, debilitating outcomes, including death. Newborn screening saves newborns’ lives and futures.

The volunteer committee advising on newborn screening must be reinstated Cutting the federal newborn screening advisory committee either demonstrates a lack of understanding of the group’s function or represents a worrisome policy shift.

"The volunteer committee advising on newborn screening must be reinstated!"- new on @statnews.com this morning, a strong opinion column by my daughter @lillianisabella.bsky.social Lillian Isabella, with the "why", she knows...she has the rare health condition #PKU. www.statnews.com/2025/04/24/a...

The volunteer committee advising on newborn screening must be reinstated Cutting the federal newborn screening advisory committee either demonstrates a lack of understanding of the group’s function or represents a worrisome policy shift.

My op-ed about the federal government's termination of the ACHDNC was just published on @statnews.com! I was driven to write this because newborn screening changed the course of my life forever. Please read and repost. www.statnews.com/2025/04/24/a...

#raredisease #raredisorder #newbornscreening

Hi!! I'm just getting started on here - cool to find you.

Very inspiring!! Happy International Women's Day!