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ADHD Pathfinding

@adhdpathfinding.org.uk

Working towards a society where ADHD is understood, supported, and never a barrier to thriving medium.com/adhd-pathfinding

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05.07.2025
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Latest posts by ADHD Pathfinding @adhdpathfinding.org.uk

Still looking for Content Designer and Graphic Designer (both unpaid volunteer, part-time, 4-6 hours, flexible).

Have lived experience of ADHD and want to work with a great team pushing for change in ADHD care?

Email: adhdpathfinding@googlegroups.com

29.01.2026 10:08 πŸ‘ 6 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0

We're looking for two part-time volunteers with lived experience of ADHD: a Content Designer and Graphic Designer.

Both roles are flexible (4–6 hours/week).

Want to help us prototype a guidance service and build our new website and visual identity? Email: adhdpathfinding@googlegroups.com

20.01.2026 09:56 πŸ‘ 6 πŸ” 12 πŸ’¬ 0 πŸ“Œ 2
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ADHD Pathfinding: From Discovery to Delivery What we’ve learned from a year of listening, publishing, and convening, and why we’re moving into delivery next

We're starting the new year by moving from discovery to delivery.

We're prototyping a guidance service for people navigating ADHD care and shaping a Service Standard.

Also changing how we share updates β€” monthly newsletter instead of weekly weeknotes.
Read our end-of-year reflection here.

14.01.2026 13:21 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Post image Post image

What a start to the year! Yesterday's social was brilliant and the first time many of us met face-to-face.

Thank you to everyone who came and continues to be part of this community.

Lots in store for 2026 as we shift from discovery to delivery: guidance service and service standard.

09.01.2026 16:19 πŸ‘ 7 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Selfie with people 6 sat around two pub tables.

Selfie with people 6 sat around two pub tables.

Selfie of man and woman making peace sign.

Selfie of man and woman making peace sign.

Selfie of man and woman

Selfie of man and woman

Selfie at end of table with 8 people, 4 either side.

Selfie at end of table with 8 people, 4 either side.

@adhdpathfinding.org.uk end/start of year social. So lovely to see @sianmurrayhuynh.bsky.social, @pixlz.com, @priyanca.bsky.social, @zzgavin.bsky.social, @powlander.bsky.social, @johnjarcher.bsky.social and so many others! This is what it’s about: people. Thank you all for just being so amazing.

08.01.2026 22:35 πŸ‘ 11 πŸ” 1 πŸ’¬ 1 πŸ“Œ 1
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ADHD Pathfinding: From Discovery to Delivery What we’ve learned from a year of listening, publishing, and convening, and why we’re moving into delivery next

Over the last six months we’ve been in discovery.

We’ve listened, published in the open and convened across the system to understand how ADHD care actually works, and where it doesn’t.

This post looks back on that first phase, and why we’re now ready to move from discovery into delivery in 2026.

22.12.2025 11:15 πŸ‘ 3 πŸ” 3 πŸ’¬ 0 πŸ“Œ 1
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ADHD Pathfinding: From Discovery to Delivery What we’ve learned from a year of listening, publishing, and convening, and why we’re moving into delivery next

Over the last six months we’ve been in discovery.

We’ve listened, published in the open and convened across the system to understand how ADHD care actually works, and where it doesn’t.

This post looks back on that first phase, and why we’re now ready to move from discovery into delivery in 2026.

22.12.2025 11:15 πŸ‘ 3 πŸ” 3 πŸ’¬ 0 πŸ“Œ 1
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ADHD Pathfinding Weeknote #23 19 December 2025β€Šβ€”β€ŠMoving from discovery to delivery

Weeknote 23 is live.

We’re shifting from discovery to delivery in 2026!

- A draft ADHD Service Standard
- A small guidance and navigation service
- Test-and-learn approaches in line with Taskforce recs

We’ll also be building design capability to support this work.
More on roles in the new year.

19.12.2025 14:59 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 1
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ADHD Taskforce Part 2: A strong foundation, but who will deliver it? A deep dive into what the final report gets right, where gaps remain, and what’s needed to turn recommendations into real change

We’ve published our response to the ADHD Taskforce report.

One big win: it calls for a β€œsingle front door” for ADHD care, helping replace today’s fragmented pathways.

With a new review now underway, it’s vital this progress isn’t paused.

Test-and-learn pilots can move this forward safely.

16.12.2025 09:38 πŸ‘ 7 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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ADHD Pathfinding Weeknote #22 12 December 2025β€Šβ€”β€ŠClosing one chapter, preparing for the next

Weeknote 22 is live.

We’ve closed our survey and shared topline insights.

Consistent patterns: fragile pathways, repeated assessments, long waits and a heavy emotional toll. More soon.

We also cover NHS England’s new ADHD payment consultation and the opportunities and risks it presents.

12.12.2025 17:23 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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ADHD Taskforce Part 2: A strong foundation, but who will deliver it? A deep dive into what the final report gets right, where gaps remain, and what’s needed to turn recommendations into real change

The ADHD Taskforce published its final report recently. The recommendations are strong, but delivery is still undefined.

Now that the Taskforce has disbanded, who takes this forward?
We’ve published our full analysis.

What’s solid, what’s missing, and why momentum can’t stall now.

05.12.2025 13:40 πŸ‘ 5 πŸ” 3 πŸ’¬ 0 πŸ“Œ 1
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ADHD Pathfinding Weeknote #21 5 December 2025β€Šβ€”β€ŠFrom Taskforce to test-and-learn: what comes next

Weeknote 21 is live!

This week we published our full response to the ADHD Taskforce Report: Clear recommendations but unclear ownership or next steps. Yet the Taskforce has disbanded and the government has announced another review.

We also did Q1 planning and started mapping our next phase.

05.12.2025 17:13 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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ADHD Taskforce Part 2: A strong foundation, but who will deliver it? A deep dive into what the final report gets right, where gaps remain, and what’s needed to turn recommendations into real change

The ADHD Taskforce published its final report recently. The recommendations are strong, but delivery is still undefined.

Now that the Taskforce has disbanded, who takes this forward?
We’ve published our full analysis.

What’s solid, what’s missing, and why momentum can’t stall now.

05.12.2025 13:40 πŸ‘ 5 πŸ” 3 πŸ’¬ 0 πŸ“Œ 1

This was such good fun. How I do love a good producty nerd out πŸ€“

04.12.2025 15:46 πŸ‘ 6 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Calling for help from our community!

We’re making a full list of existing guidance on ADHD diagnosis to build our service prototype. Can you help? If you know of any:

- Resources
- Documents
- Websites
- Other guidance

Please email us on adhdpathfinding@googlegroups.com.

Thank you in advance.

01.12.2025 12:27 πŸ‘ 3 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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ADHD Pathfinding Weeknote #20 ADHD Pathfinding Weeknote #20

Weeknote 20 is live.

- End-of-year social locked in for 8th Jan
- Work continues on our ADHD Taskforce Part 2 response
- Quarterly planning, fika, and show-and-tells
- @sianmurrayhuynh.bsky.social and team holding the fort with @himal.bsky.social in Kazakhstan

Read it here.

28.11.2025 15:51 πŸ‘ 2 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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ADHD Pathfinding Weeknote #19 21 November 2025β€Šβ€”β€ŠNew connections and clarity

Weeknote 19 is live.

- @sianmurrayhuynh.bsky.social has published our first roadmap draft
- @himal.bsky.social has connected with @jackgoulder.bsky.social
- Lots of reading, including from Himal at the UN in Nepal

Read it here.

21.11.2025 17:30 πŸ‘ 4 πŸ” 3 πŸ’¬ 1 πŸ“Œ 0
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ADHD Pathfinding Weeknote #18 14 November 2025β€Šβ€”β€ŠAnalysis, resilience, and advocacy

Weeknote 18 is out.

- ADHD Taskforce report part 2: we're going deeper to write a full and comprehensive response.

- Team resilience tested and passed (@himal.bsky.social in Cambodia, @sianmurrayhuynh.bsky.social holding the fort)

- Call to participate in ADHD research studies

Read it here.

14.11.2025 16:09 πŸ‘ 4 πŸ” 1 πŸ’¬ 1 πŸ“Œ 1
Post image

Team fika

07.11.2025 15:48 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 1
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ADHD Pathfinding Weeknote #17 7 November 2025β€Šβ€”β€ŠPicking up where the Taskforce ends

Weeknote 17 is out.

ADHD Taskforce Part 2 has landed. Good recommendations (waiting times, higher NHS priority) but no clear ownership and accountability.

Also this week:
- Working on visual map of ADHD landscape
- Updated vision board live
- First team fika happened today!

Read it here.

07.11.2025 15:42 πŸ‘ 2 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
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NHS England Β» Report of the independent ADHD Taskforce NHS England Β» Report of the independent ADHD Taskforce

The ADHD Taskforce report is finally out.

We called what it needed to contain a month ago: national standards, fair shared care, real ownership.

First look: some movement, still too many gaps.

Reports don’t fix systems. Continuity does.

Read the report here www.england.nhs.uk/publication/...

06.11.2025 13:28 πŸ‘ 7 πŸ” 3 πŸ’¬ 0 πŸ“Œ 1

The ADHD Taskforce full report is expected to land today. We already covered what we expect to see in it and how we will benchmark.

06.11.2025 09:06 πŸ‘ 4 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
Man and woman at table in cafe. MacBook with white text on black. 

Our vision: a society where ADHD is understood, supported, and never a barrier to thriving

Man and woman at table in cafe. MacBook with white text on black. Our vision: a society where ADHD is understood, supported, and never a barrier to thriving

@adhdpathfinding.org.uk planning with @sianmurrayhuynh.bsky.social, our service owner!

04.11.2025 15:46 πŸ‘ 14 πŸ” 3 πŸ’¬ 1 πŸ“Œ 1
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31 Days, 31 Barriers to ADHD Care What ADHD Awareness Month taught us

The final barrier from our ADHD Awareness Month campaign: lack of national ownership, accountability, and strategy.

Without this, barriers stay stuck locally.

Our blog post explains why national ownership is the only way to change the system.

Read it here.

04.11.2025 10:17 πŸ‘ 3 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

Day 31: Lack of national ownership, accountability and strategy.

01.11.2025 09:11 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Day 30: Fear of stimulant medication.

01.11.2025 09:11 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Day 29: Costing blind spots in flexible dosing.

01.11.2025 09:11 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Day 28: Costs of untreated ADHD not captured.

01.11.2025 09:11 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Day 27: Locally commissioned services underfunded.

01.11.2025 09:11 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Day 26: Primary care not commissioned for ADHD.

01.11.2025 09:11 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0