COVID-19 Longhauler Advocacy Project

Have you prepared your posters for the #LongCOVIDAwareness Week Social Media #WeekofAction?!

Join us globally across social media with daily themes starting on #LongCOVIDAwarenessDay March 15th!

All directions and posters can be found at longhauler-advocacy.org/lcamonth2026

Learn more about #LongCOVID and workforce impact here: https://youtu.be/sLNgtYN0xLM

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

Learn more about #LongCOVID and disability here: https://youtu.be/XolmYZ_gom4

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

Learn more about #LongCOVID and the hematologic system here: https://youtu.be/DdYPvgdz-4o

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

Week One of #LongCOVIDAwareness Month is Underway!
See What's Been Happening & Learn How to Participate.

www.longhauler-advocacy.org/so/99Pow1lxG... #LongCOVID #OneInfectionAway

Learn more about #LongCOVID and vaccine injury: understanding the difference here: https://youtu.be/SxbtQuKHyxA

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

Learn more about #LongCOVID and the nervous system here: https://youtu.be/9sRQ4qhOn_o

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

Learn more about #LongCOVID and the immune & lymphatic system here: https://youtu.be/KhazJ6UOW5Y

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

March is Long COVID Awareness Month | COVID-19 Longhauler Advocacy Project Take action this March for Long COVID Awareness Month. Support Long COVID longhaulers, raise awareness, and advocate for better COVID-19 care in your community.

Learn more about Long COVID and how to get involved this Long COVID Awareness Month:
www.longhauler-advocacy.org/lcamonth2026

Help Us Fund Patient-Led Solutions this #LongCOVIDAwareness Month! Help Us Fund Patient-Led Solutions for Long COVID!Why Patient-Led Work MattersLong COVID has exposed gaps across healthcare access and delivery, diagnostics, surveillance, research translation, and pu...

Start your Team or Individual Zeffy Campaign or Donate Here:
www.zeffy.com/en-US/peer-t...

(Tutorial here: youtu.be/SNLyeA-jUoE)

As time goes on however, our health declines, resources have disappeared, while conversely, the demand for our work and presence has grown. We want to do more — and we need to do more — but the resources to sustain and expand this work must exist.

Will you help us get there?

Education drives awareness, informs clinicians, shapes research, strengthens policy, and protects communities.

For six years, people living with #LongCOVID have volunteered their time through C19LAP, as an all-volunteer, patient-led organization —& together, we’ve accomplished a tremendous amount.

March is #LongCOVIDAwareness Month — and we’re asking you to help power the patient-led work that makes every other part of the Long COVID response possible.

Start your Team or Individual Zeffy Campaign or Donate Here:
www.zeffy.com/en-US/peer-t...

(Tutorial here: youtu.be/SNLyeA-jUoE)

Well, there are some bio markers, but they are not consistent or present in all with Long COVID and therefor not reliable enough to say if you do not have this bio marker you do not have long COVID. We will have a new topic daily, please follow along to learn more.

Sending strength. 🩵

Learn more about #LongCOVID and the cardiovascular system here: https://youtu.be/R2JXyh5Vf1E

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

Our newly launched #LongCOVIDAwareness month page is filled with everything you need to take action and spread the word this #LongCOVIDAwareness Month. Watch our tutorial here: https://www.youtube.com/watch?v=t48DSF7BCjQ

Head to https://www.longhauler-advocacy.org/lcamonth2026 to get started.

You can still write you mayor, any governor, local health departments, congress/ president. Anyone who can deliver change is a contact target.

Our #LongCOVIDAwareness Month website is launching tomorrow with a full calendar of events, coordinated actions, ready-to-use resources, shareable materials, and meaningful opportunities to raise awareness, drive education, and push for real change for #LongCOVID.

If interested, please email us at admin@longhauler-advocacy.org and comment below for traction!

We encourage everyone across the U.S. to begin sending out the pre-made template letters we released earlier this month.

THIS IS WHY WE NEED CONSTITUENT OUTREACH.

This is a response from one of the nearly 1,000 letters we sent out earlier this month. We are looking for urgent assistance from an Alaskan constituent (or multiple) who we can add on to communications to get a Long COVID Awareness proclamation in Alaska.

Get this years profile frame at www.longcovidawareness.life —> scroll to mid page.

Upload your image (you may need to crop it prior to upload), hit download, and then choose a new profile picture across your socials using this frame!

We are asking everyone to please move to this frame this year.

#LongCOVIDAwareness Month is 10 days away! Use our planning guide below to start participating and preparing! #SpreadTheWord #LongCOVID

Send your letters, register, prep!

March is Long COVID Awareness Month! The COVID-19 Longhauler Advocacy Project (C19LAP), alongside other Long COVID organizations and advocates, has actions and events planned throughout the month of M... We strongly encourage community members to begin participating in February by mailing letters to lawmakers, agencies, media outlets, and other decision-makers. These letters should then be followed up...

Long COVID is ongoing. So is our commitment to visibility, prevention, and patient-led action. Let’s move into March organized, unified, and paced.

View our announcement and Preparation Guide here: bit.ly/LCA26PGE 11/

March is Long COVID Awareness Month! The COVID-19 Longhauler Advocacy Project (C19LAP), alongside other Long COVID organizations and advocates, has actions and events planned throughout the month of M... We strongly encourage community members to begin participating in February by mailing letters to lawmakers, agencies, media outlets, and other decision-makers. These letters should then be followed up...

Every action counts, from a single share or teal light in your home, to organizing meetings with decision-makers, to standing visibly with a Street Team. Small and large efforts together create real impact.
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March is Long COVID Awareness Month! The COVID-19 Longhauler Advocacy Project (C19LAP), alongside other Long COVID organizations and advocates, has actions and events planned throughout the month of M... We strongly encourage community members to begin participating in February by mailing letters to lawmakers, agencies, media outlets, and other decision-makers. These letters should then be followed up...

4. Save the date for Topic Days and help amplify our daily Fact of the Day throughout March by liking, sharing, and reposting.

Kick off Long COVID Awareness Month on March 1 by updating your (new!) profile picture frame and posting throughout the month using #LongCOVID and #LongCOVIDAwareness.
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3. Participate in our coordinated social media actions March 15–21 (Long COVID Awareness Day & Week). We’ve created downloadable and printable posters (including materials for kids) to make participation simple and accessible.
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March is Long COVID Awareness Month! The COVID-19 Longhauler Advocacy Project (C19LAP), alongside other Long COVID organizations and advocates, has actions and events planned throughout the month of M... We strongly encourage community members to begin participating in February by mailing letters to lawmakers, agencies, media outlets, and other decision-makers. These letters should then be followed up...

2. Draft your Long COVID Awareness Day and Week posts now so they are ready to publish in March with minimal effort.
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1. Send letters in February to help secure meetings, commitments, and meaningful visibility in March. You can also begin coordinating with others in your state to request and organize meetings with policymakers.
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March is Long COVID Awareness Month! The COVID-19 Longhauler Advocacy Project (C19LAP), alongside other Long COVID organizations and advocates, has actions and events planned throughout the month of M... We strongly encourage community members to begin participating in February by mailing letters to lawmakers, agencies, media outlets, and other decision-makers. These letters should then be followed up...

We encourage the Long COVID community to thoughtfully prioritize spoons for the actions and moments that will have the greatest impact.
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