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Patients Association

@patients-association.org.uk

We are an independent charity campaigning for patient partnership. For our social media community guidelines, see: https://bit.ly/3X9Hd83

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19.11.2024
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Latest posts by Patients Association @patients-association.org.uk

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There’s still time to take part in our Patient Experience Survey, but the deadline is fast approaching. The survey will close today at 5pm on 6th March, so this is your final chance to have your say.
πŸ‘‰οΈ www.surveymonkey.com/r/EofC26Q6

06.03.2026 10:31 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Rachel Power: 'It’s not enough to tell patients that β€˜digital is good’ Join us for Digital Health Rewired 2026, the UK's #1 digital health event, taking place at the NEC (Hall 4) in Birmingham on 24-25 March 2026

Our Chief Executive @rachel-p.bsky.social is a keynote speaker at @dhrewired.bsky.social again this year. You can find out more by reading her interview: buff.ly/KNpVwi5

Book your tickets here: buff.ly/bgQIkg5

04.03.2026 09:37 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Thanks for sharing!

03.03.2026 10:46 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Solve the #NHS maze for patients and GPs as "It shouldn't be this hard"... Richmond Group of Charities at the launch of the RCGP and @patients-association.org.uk report. Patients & GPs must be equal partners www.patients-association.org.uk/news/it-shou...

26.02.2026 17:20 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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β€œIt shouldn’t be this hard”. Solving the NHS maze for patients and GPs (RCGP and Patients Association, February 2026) Royal College of General Practitioners and the Patients Association highlight how general practice can be made truly accessible and navigable for all.

β€œIt shouldn’t be this hard”. Solving the NHS maze for patients and GPs - a report from @patients-association.org.uk and Royal College of General Practitioners added to the hub.

27.02.2026 13:30 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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This week, Stephen Kinnock spoke at launch of
our report with Royal College of GPs, β€œIt shouldn’t be this hard” Solving the #NHS maze for patients & GPs. The report states how every patient should be able to navigate their care www.rcgp.org.uk/News/NHS-eas...

26.02.2026 13:40 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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@patients-association.org.uk CEO, @rachel-p.bsky.social speaking at launch of joint report with RCGP. #NHS must provide clear & consistent info about how to access services so #patients feel informed & empowered in decisions about their #healthcare www.patients-association.org.uk/news/it-shou...

26.02.2026 12:34 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Join our free membership!

Join our free membership!

πŸ‘‹ Our free membership brings you to the heart of our campaign for improvements in health and social care. Sign up today: buff.ly/2kFknqW

25.02.2026 09:37 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Unseen and unheard: why healthcare must listen to neurodivergent south Asian women Patient advocate Mala shares how bias and misunderstanding shape healthcare for neurodivergent South Asian women, and why empathy, inclusion, and small adjustments can transform patient trust and…

Too often, neurodivergent south Asian women are dismissed or misunderstood in healthcare. Patient advocate Mala shares why inclusion, empathy, and small changes can transform trust and outcomes.
πŸ‘‰ Read her blog: buff.ly/4F0sx8a

24.02.2026 07:56 πŸ‘ 1 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Missingness: exploring why patients miss multiple appointments and how the system can support This webinar explored the reasons why patients might miss their health appointments, from practical barriers to emotional and systemic factors that can make healthcare feel out of reach.

What can be done to ensure patients feel more confident in attending healthcare appointments, and how can services make it easier for people to communicate when they can’t?

Watch the recording of our webinar on 'Missingness' to learn more: buff.ly/jJeNhHl

23.02.2026 06:38 πŸ‘ 3 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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⚠️ Sometimes things go wrong when you receive healthcare. If you want to make a complaint but aren't sure how to, we can help! Contact our helpline on ☎️ 0800 345 7115 or take a look at this resources page on our website: buff.ly/L7d3AdN

20.02.2026 08:26 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Home - EBO: An Advanced Artificial Intelligence Solution for industry-critical requirements Dr Gege GattCEO and founderGet what EBOis in seconds EBO is a pioneer in scalable AI-powered customer engagement solutions Leveraging sophisticated Conversational AI and Generative AI EBO automates…

This work was supported by a charitable grant from @ebo-ai.bsky.social, who had no influence on the design or delivery of the project.

18.02.2026 09:37 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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The Patients Association response to the MHRA's call for evidence on AI regulation Our response to the MHRA’s call for evidence on regulating AI in healthcare, based on a UK-wide patient survey.

πŸ†• AI is being rolled out across the NHS, from appointment booking to diagnostics and new treatments. Our new findings show patients want greater transparency and stronger regulation on AI, as well as robust protections for their personal data.

Read more: buff.ly/5UFmOcM

18.02.2026 09:37 πŸ‘ 2 πŸ” 3 πŸ’¬ 1 πŸ“Œ 0
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🎀 @dhrewired.bsky.social 2026 (24–25 March, NEC Birmingham) is looking for patients & carers to join the line-up as speakers and panellists. Your experience would shape national conversations on important digital health issues.

Apply by Friday 27 Feb: a.jacobs@closerstillmedia.com

17.02.2026 07:56 πŸ‘ 1 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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Your experiences of the NHS matter and they can drive real change. That’s why we’re asking for 10 minutes of your time to complete our Patient experience survey. We want to hear about your experiences with NHS services over the last six months.
Take the survey: buff.ly/cP3nX1l

16.02.2026 06:38 πŸ‘ 2 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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Call for Evidence - National Maternity and Neonatal Investigation Baroness Amos is asking women and families across England to share their experiences of maternity and neonatal care through a public Call for Evidence.

Baroness Amos is inviting women & families across England to share their experiences of maternity and neonatal care 🍼

Your voice will help shape the findings of the National Maternity and Neonatal Investigation, and influence future improvements.

www.matneoinv.org.uk/call-for-evi...

13.02.2026 11:29 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Our insight into A&E experiences during the busy winter period found long waits and care in unsuitable spaces left people suffering an emotional and physical toll. Find out more in our latest blog - https://bit.ly/3MseVnM

11.02.2026 09:52 πŸ‘ 1 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Survey on patient experiences of receiving test results Take this survey powered by surveymonkey.com. Create your own surveys for free.

We’re working with LBC Radio to understand whether patients are experiencing delays or difficulties receiving their test results and we want to hear from you.

If you’ve had trouble accessing your NHS test results since Jan 2023, your experience could help support an investigation:

09.02.2026 06:38 πŸ‘ 5 πŸ” 7 πŸ’¬ 0 πŸ“Œ 0
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Help us make the strongest possible case for better NHS care. ✊

Share your experiences from the last 6 months in our 10-minute patient survey. Your voice will shape our campaigning & policy work.

Take the survey: buff.ly/Z49Tl1n

06.02.2026 16:18 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Patients will judge this plan by whether it delivers real change: joined-up care, meaningful two-way communication, and support that continues beyond treatment.
Read our full response πŸ‘‡https://www.patients-association.org.uk/news/the-patients-association-welcomes-the-national-cancer-plan 6/6

05.02.2026 17:12 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Improving health equity for patients living with cancer and/or blood disorders This report focuses on patients with blood disorders and/or cancer who experience health inequalities and what can be done to improve health equity.

We also welcome the plan’s acknowledgement that cancer risk, access, and outcomes are shaped by inequality. Our Improving health equity report highlights significant barriers faced by people in deprived areas and racially minoritised communities. www.patients-association.org.uk/blog/improvi... 5/6

05.02.2026 17:12 πŸ‘ 1 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0

The plan’s focus on diagnostics closer to home, alongside productivity, convenience and better co-ordination, reflects what patients are clear about: access must work in practice, not just exist. 4/6

05.02.2026 17:12 πŸ‘ 1 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
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Patients place huge importance on diagnostic services but face barriers to access – new report Our latest report shares the experiences and views of 1,000 patients on NHS diagnostic services.

It’s encouraging to see commitments that reflect what patients and carers have told us matters. Our Patient experiences of diagnostics report found 93% of patients support expanded access to diagnostic services. www.patients-association.org.uk/Blog/patient... 3/6

05.02.2026 17:12 πŸ‘ 1 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0

A stronger emphasis on co-production is a real step forward. A positive example of this is the introduction of co-produced end of treatment summaries, to address the β€œcliff edge” many patients describe when treatment ends 2/6

05.02.2026 17:12 πŸ‘ 1 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0

🧡We welcome the publication of the National Cancer Plan and its recognition that improving cancer outcomes depends not only on clinical innovation, but on meaningful partnership with patients and communities. 1/6

05.02.2026 17:12 πŸ‘ 1 πŸ” 2 πŸ’¬ 1 πŸ“Œ 0
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🀝 Patient partnership is the engine of better outcomes, safer care, and more efficient services. When the system is under strain, partnership isn’t a luxury. It’s the lever that helps services work smarter, fairer, and with purpose.

Find out more: buff.ly/DhjGI6U

02.02.2026 06:38 πŸ‘ 3 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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Rachel Power: 'It’s not enough to tell patients that β€˜digital is good’ Join us for Digital Health Rewired 2026, the UK's #1 digital health event, taking place at the NEC (Hall 4) in Birmingham on 24-25 March 2026

Our Chief Executive @rachel-p.bsky.social is a keynote speaker at @dhrewired.bsky.social again this year. You can find out more by reading her interview: buff.ly/rcdvxAJ

Book your tickets here: buff.ly/VkrwdOv

20.01.2026 06:38 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
"Thank you for your prompt response and guidance provided. I really appreciate your understanding and the resources you've shared with me."

"Thank you for your prompt response and guidance provided. I really appreciate your understanding and the resources you've shared with me."

πŸ“ž Our free helpline is open and ready to take your calls! We provide specialist health and social care information and guidance across all four UK nations.

πŸ‘‰ Call 0800 345 7115 or email helpline@patients-association.org.uk to speak to one of our team buff.ly/1rXtjxw

19.01.2026 09:30 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Patients Association: Shaping our response to the MHRA call for evidence on AI in health and care The Patients Association wants to hear your views on AI (Artificial Intelligence) in health and care settings, how AI is currently being used in your health and care, and how you think AI should be re...

Featured on the hub this week, @patients-association.org.uk wants to hear your views on AI (Artificial Intelligence) in healthcare. Your feedback will inform their response to a new call for evidence by the Medicines and Healthcare products Regulatory Agency. www.pslhub.org/learn/commis...

15.01.2026 13:10 πŸ‘ 1 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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We’re working to ensure patient factsheets truly reflect the experiences, language and cultural context of Portuguese-speaking patients. If you're fluent in Portuguese and English, we'd love to work with you!

πŸ“… Register your interest by 27 January: buff.ly/2mpFoCT

16.01.2026 17:45 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0