A Chronic Voice

Crucial Ways to Prep for Surgery Recovery Ahead of Time My surgery recovery earlier this year was the first I’ve had in 5 years I had several months to prepare for it, which made my overall recovery easier. Unfortunately, I am a surgery pro, which is why...

“Pay #bills ahead of time if possible..You don’t want to stress about paying bills, especially if something goes wrong and requires you to be #hospitalized longer than planned.": buff.ly/iN685Hx

by @katethealmostgreat.bsky.social
#ChronicIllness #disability #surgery

“If you cite an article from a predatory journal..that’s based on flawed #research ..The #misinformation spreads quickly, and it can be hard to tell what is truly accurate.”: buff.ly/nWcxV4P

via @APAstyle.bsky.social
#researchers #MedicalResearch #disinformation #MedSky #academic

Are You a Capable Person? What Does That Even Mean? a chronic voice .com

"I hope that in future we will be able to experience a wide assortment of ailments..A box of colourful pills: “pick one to mimic the effects of a #symptom for a day”..You will realise that sometimes, u are no match for your own body.": buff.ly/SngMIaD

#InvisibleIllness #ChronicPain #ChronicFatigue

“Starting around age 40, u begin losing about 1% of your #muscle mass every year & the rate increases in your 50s. This loss of muscle, called #sarcopenia, directly impacts your #strength, #balance, #metabolism & independence.”: buff.ly/MskX79x

from Stanford
#MiddleAged #fitness

Trauma & Shame: The Struggle is Real Trauma & Shame: The Struggle is Real

“When healthy #shame turns toxic, it’s purpose is to keep us small & silent so as to try to mitigate risk for repeated chronic, consistent #trauma & #abuse ..has to be addressed for #healing to happen.”: buff.ly/6KVaX8s

by @jenniferkindera.bsky.social
#MentalHealthMatters

😱😱😱 I kind of understand. My heart valve was prolapsing in Mongolia and I thought it was just the dusty desert air heh.

It's pre-recorded so I think you can sign up and listen after should the topics interest you 😊

Aww thank you so much for the support 😊💕💕

Webinar: Shared Journeys in Hemostasis: Connecting Patient Voices with Hot Topics in the Hemostasis Laboratory | Werfen North America LOG IN

There's still time to sign up for the #Werfen symposium on #Hemophilia & #AntiphospholipidSyndrome! It's free to do so & will cover the latest advances & guidelines on these 2 #BloodDisorders. I will also be 1 of 2 two patient speakers 😊 buff.ly/vtjPjQI

#ChronicPain #medicine #hematology #webinar

March 2018: Sorting My Medications & a Hike Up Little Adam's Peak Read as I share about my chronic illness life for March 2018 where I took a little hike up Adam's Peak in Sri Lanka, and sorted my medications.

"I think it's always a good idea to get away from our regular #routines every now and then, for a change in rhythm and perspective. Sometimes by breaking routines, I realise that I didn't actually like what I 'needed' to have in my #DailyLife previously.": buff.ly/6NJMtYL

#mindfulness #lupus

Fighting Chronic Fatigue: How to Handle Being Exhausted All the Time | The Health Sessions Feeling exhausted all the time? These physical, practical and psychological coping strategies will help you deal better with chronic fatigue that won't go away.

“It can be so frustrating to do everything right..and still wake up every morning feeling worn-out. And worse: you probably have to spend the little #energy u do have on boring #SelfCare tasks & managing your #symptoms.”: buff.ly/DZUruGx

by thehealthsessions
#ChronicPain #ChronicFatigue #NEisVoid

Atkinson Hyperlegible Font - Braille Institute Read easier with Atkinson Hyperlegible Font, crafted for low-vision readers. Download for free and enjoy clear letters and numbers on your computer!

"Our award-winning #font has made #reading easier for millions..of people & continues to change lives daily..it’s free for everyone—from personal use to all commercial applications. Start reading with ease today!": buff.ly/3SMc3fn

via @brailleinstitute.bsky.social
#design #disability #disabled

Surviving a Life Made of Crises - Beyond the Limits：不自由をデザインし、新しい生を共創するラボ The “Akan” Strategy: How I Clear the Game on Highest Di

“In #English, “ #GivingUp ” tastes like defeat..
In #Japanese, akirameru (to “ #GiveUp ”) has a hidden spine:
it carries the sense of clarifying..
To “give up,” in this sense, is not to drop yr life.
It is to stop feeding [it] to illusions.”: buff.ly/FlTAONo

by kenken02122000

"When I left Taiwan, I did not get the #goodbye I would have liked. I never imagine I’d leave under the cover of secrecy with no time to say #farewell to friends, special places, or the things that mattered to me.": buff.ly/MJwsC2M

by @carriekellenberger.bsky.social
#ChronicIllness #NEisVoid

Your Voice Gives Away Valuable Personal Information Your Voice Gives Away Valuable Personal Information: The risks of always-listening voice control systems—and how to protect against them.

"The new metric..can capture how much is revealed in any 1 #audio recording of a #voice. Bäckström says the #technology cld be used..to help people understand how much of their #privacy is at risk when they use certain #speech -recording technologies.": buff.ly/qgA0kfD

via @nautil.us

@stillrollingout.stillrollingoutdoors.com thanks for resharing 🌾

@xoelive.bsky.social thanks for resharing 🌾

😲 That must have horrifying!

Haha maybe overstrengthen? Bit like how our bodies attack itself enthusiastically lol.

Is My Doctor Right for Me? Is my doctor right for me? How do you differentiate between a good and bad doctor? How do you know if the diagnosis presented is accurate?

"How do you differentiate between a ‘good’ and ‘bad’ #doctor? How do you know if the #diagnosis presented is accurate, or if the #treatment options presented are the best ones? How do you know if your doctor or #surgeon suits your needs?": buff.ly/gpXaZk7

#ChronicIllness #disability #NEisVoid

Scientists finally explain statin muscle pain Statins are a cornerstone of heart health, but muscle pain and weakness cause many patients to quit taking them. Scientists have now identified the precise molecular trigger behind these side…

" #Researchers have discovered why #statins can cause #MusclePain: the drugs force open a key #muscle channel, flooding #cells with calcium. The finding could help scientists design next-generation statins.": buff.ly/erbgV0D

via sciencedaily
#cholesterol #medication #statin #medicine

@markdignam69.bsky.social thanks for resharing 🌾

Dynamic Disability: The Truth About Life in an Unpredictable Body – A personal journey of living with a dynamic disability, navigating mobility aids, imposter syndrome, and finding resilience in daily life.

"I show up in whatever way my #body allows that day..as an act of #resilience & honesty. It’s me, standing in the middle of #unpredictability, choosing #adaptation over #denial, colour over invisibility & compassion over shame.": buff.ly/NOz0KLn

by @serenebutterfly.bsky.social
#ChronicIllness

"Some #DisabledPeople are not able to #exercise ..because they are not physically able to do [so]..1 the best things you can do for yourself is to commit to eating healthier.. #Fitness and #nutrition go hand in hand.": buff.ly/5ddKmAg

by sarahlynn358
#ChronicIllness #spoonies #disability #exercise

What's it Like to Live with a Heart Rhythm Disorder — Read the post. a chronic voice .com

"[The #HeartRhythm Specialist] #diagnosed it as a #JunctionalRhythm, which is a less common form of #PSVT ..She also told me that #surgery to fix junctional rhythms can be trickier..A miscalculation could mean that I’d need a pacemaker for life.": buff.ly/Z9apew9

Burnout With Chronic Illness: Why It Isn’t a Phase Burnout with chronic illness isn’t a phase. Learn why burnout happens for spoonies and what actually helps.

"#Burnout becomes esp difficult to recognize when it’s woven into #survival..You compensate where u can..because u r still technically functioning, it’s easy to miss how much this way of living is costing u until your body forces a reckoning.": buff.ly/9ueifN9

by @thethrivingspoonie.com
#disability

Oh interesting! Never knew there were such things go help :)

40 People with Chronic Illness Share Their Best Pain Management Tips (What to Do if an Unforeseen Pain Flare Hits) A roundup of best chronic pain management tips from 40 people who live with chronic illness, for when a pain flare strikes without warning.

"Rest and let it ride. I don’t fight flares or try to push through them. I find that by allowing them to happen and resting into them, I can limit how long they last." achronicvoice.com/pain-managem... via @achronicvoice.com

#ChronicPain #PainManagement #ChronicallyIll #ChronicLife

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Why I Needed a Blogging Break and How it Helped - Despite Pain A couple of years ago, I realised I needed a break from blogging, and I eventually gave myself permission to do that. I was tired — physically, mentally, and emotionally. At first, I thought a few…

"I felt #guilty if I didn’t post enough on my #blog or social media to create awareness about #health issues. I felt as though I was letting people down. #Guilt, as I’ve written about before, is an #emotion that is extremely draining.": buff.ly/lcrWyTf

by @@despitepain.bsky.social
#ChronicPain