🚨MCAS: EXCITING NEWS & SURVEY OPPORTUNITY🚨
Dr Larry Afrin & MANY others have been working behind the scenes for years trying to improve the mast cell activation syndrome situation. The work has paid off & we now have an International Society for MCAS: ismcas.org 🧵
I (sometimes) diligently label my plants each year, only to find that the ink has washed off the labels by the following year, so then have to wait until they sprout leaves or flowers to identify them! 🙄
How ever did plants cope before there were humans around to prune them at the right time... 😏
@continuitytweets.bsky.social You OK?
Missed your #totp posts yesterday. 😟
This is something that the #MEDeliveryPlan FDP should have addressed as an *absolute* priority.
Language matters. Awareness matters.
Great that the BBC are showing these stories, but they shouldn't be getting these details wrong.
@sharonhodgsonmp.bsky.social
This is shocking stuff!
Fmr Marine Brian McGinnis's whereabouts is currently unknown. His wife and his attorney are not allowed to see him.
He has undergone surgery.
Anthony Aguilar's call to action is now up on YT for those who don't want to/can't view it on X:
www.youtube.com/watch?v=FV6T...
WTAF?! 👇
Marine vet whose forearm was snapped by a senator has been DISAPPEARED by the US government.
His family is desperately seeking help to find Brian McGinnis, the marine and firefighter who stood up against Trump's war in a hearing.
#WhereIsBrian
Or that we have known and ignored it for decades...
Lots of large pink camellia blooms
Camellia through the window
A thrush in the middle of the front lawn
Spot the thrush…
"Here is how bullshit replicates itself in today’s medical world: Conduct a flawed trial, declare success despite serious questions, then develop health policy based on these hyped-up claims."
Why even do studies if their results don't even matter?
:sigh:
with alt - everybody needs to see this.
Yes. That's an advert for the event, not a report of it.
I do not think the police have ever raided the Quakers and been on the correct side of history
‘AI’ is not a source. It’s a literature review. Always check the sources.
Unfortunately, I don't think any other news org covered the symposium.
Hampshire Chronicle previewed it, but didn't report on the event itself.
www.hampshirechronicle.co.uk/news/2587967...
Statement on the UK Parliament Petitions site: Petitions started on other websites. The Committee will only consider, and the Government is only obliged to respond to, petitions which people have started on the UK Government and Parliament petitions website. The Committee will not consider petitions hosted on external websites.
I wish those with larger reach could promote this #DirtyBusiness petition.
Instead they are promoting petitions that the Government have clearly stated that they will ignore.
To sign: petition.parliament.uk/petitions/75...
Another important article about an *international* ME conference listed under "local news" by the BBC, rather than "health".
And please stop calling it "chronic fatigue"!!!
www.bbc.co.uk/news/article...
Dear Shabana, I notice today that you referred to me in your speech on immigration at the IPPR think tank. You said: “A party leader should not be on the beaches of France encouraging people to make a perilous crossing on small boats.” I suppose I shouldn’t be surprised especially after the hateful Labour campaign in Gorton and Denton, but this is just the latest in a string of lies peddled by a discredited Government who intentionally fan the flames of racism and division. When I went to Calais, I was not there to encourage people to travel to the UK. I was there to see at first hand the suffering your Government and successive Governments have done in demonising migrants in a pathetic bid to pander to the base instincts of Reform and the flawed strategy of Morgan McSweeney. As you will know, if you even bothered to research my visit instead of taking Reform talking points, I was there to witness the brutality of families living in tents in freezing temperatures. I filled water tanks and picked up litter. What that visit did do is confirm my belief that if we are to smash the boat gangs and stop the boats, we need to offer safer and managed routes for migrants to come to this country. Showing compassion as a politician is not a crime. In fact, we need to see much more of it. It reminded me of a young MP who in October 2015 spent three days in Lesbos helping migrants fleeing war-torn Syria. She posted videos on X, talked about handing out water and croissants to refugees and food parcels. When she returned to the UK, she wrote a very moving piece in the New Statesman. She said “we have to work with our European partners and create new, safe, and legal routes for refugees to get to Europe. We cannot abandon them to their fate, left as prey for smugglers whilst risking death on the seas.” She said “maybe we can make ourselves feel better by saying no-one is making them get on the boats. And again, the Home Secretary is not entirely wrong when …
Dear Shabana,
Let's clear some things up around migration and remember we're talking about people's lives.
Tens of thousands flee Beirut’s southern suburbs after Israeli warnings
www.channel4.com/news/tens-of...
wrt the B12 stuff, this is a response that members of the so-called "B12 lobby" wrote to address some of that a few years ago...
www.b12info.com/gp-writes-ab...
My mistake, not the latest, that was from 2 years ago.
But they probably hid this one behind a paywall for "reasons"...
23 July 2025 - Neighbourhood ME/CFS care should energise GPs - Copperfield
www.pulsetoday.co.uk/views/copper...
In case anyone thinks that Pulse are likely to "do the right thing", take a look at their latest piece from their resident satirist Dr Copperfield...
www.pulsetoday.co.uk/views/specia...
However, I suspect they've just hidden it from view, rather than removed it from the schedule.
Pulse virtual conference event schedule that omits Miller's talk.
Pulse have now removed Miller's talk (was at 10.40-11.35) from the published agenda. 🤔
As part of the plan, NHS England is developing a ‘template service specification for mild and moderate ME/CFS’, which will be shared with integrated care boards (ICBs) to support commissioning. Dr Miller’s session will look at: What is ME/CFS? How to diagnose the condition How to manage and treat patients with ME/CFS Other sessions across the event – worth up to six CPD points – include: the role of primary care in migraine; how to master the 10-minute chronic pain consultation; primary care approaches to metabolic and cardiovascular disease and more. The full agenda can be found here. The virtual event is open to all UK GMC-registered GPs and is free to attend. Discover our programme of free, CPD-accredited events – delivered face-to-face and online – designed to bring you practical clinical updates and expert-led sessions. Book your free place today and join us in person or virtually.
Second half of the Pulse article...
www.pulsetoday.co.uk/news/clinica...
No. Come on. He wrote the NHS modules. He should be giving the talk on ME. Instead it *looks* like he’s being paid by Pfizer to *not* do that.
ME/CFS diagnosis and management among topics at free Pulse virtual event for GPs 2 March 2026 GPs are invited to a free virtual event this month featuring sessions across a variety of clinical topics across public health and chronic conditions, including how to best support patients with ME/CFS. The Pulse 365 event, on 24 March, is designed to support GPs in confident decision-marking as well as highlighting strategies for earlier diagnosis and management. Tickets can be found here. ‘ME/Chronic Fatigue Syndrome – not just tired all the time’ will be presented by Dr Alastair Miller consultant physician at the Royal Liverpool University Hospital. This comes following the Department of Health and Social Care’s announcement last summer that GPs will play a key role in delivering care for people with mild and moderate ME/CFS under a new delivery plan.
wtaf is Alastair Miller doing ANYWHERE NEAR an education session for GPs on ME???? 😱
www.pulsetoday.co.uk/news/clinica...
